-
1
-
-
42049108433
-
Special article: Chronic granulomatous disease in the United Kingdom and Ireland: A comprehensive national patient based registry
-
Jones LBKR, McGrogan P, Flood TJ, Gennery AR, Morton L, Thrasher A, et al. Special article: chronic granulomatous disease in the United Kingdom and Ireland: a comprehensive national patient based registry. Clin Exp Immunol. 2008;152(2):211-8.
-
(2008)
Clin Exp Immunol.
, vol.152
, Issue.2
, pp. 211-218
-
-
Jones, L.B.K.R.1
McGrogan, P.2
Flood, T.J.3
Gennery, A.R.4
Morton, L.5
Thrasher, A.6
-
2
-
-
37849008955
-
Clinical features, long term follow up and outcome of a large cohort of patients with Chronic Granulomatous Disease: An Italian multicentre study
-
Martire B, Rondelli R, Soresina A, Pignata C, Broccoletti T, Finocchi A, et al. Clinical features, long term follow up and outcome of a large cohort of patients with Chronic Granulomatous Disease: an Italian multicentre study. Clin Immunol. 2008;126:155-64.
-
(2008)
Clin Immunol.
, vol.126
, pp. 155-164
-
-
Martire, B.1
Rondelli, R.2
Soresina, A.3
Pignata, C.4
Broccoletti, T.5
Finocchi, A.6
-
3
-
-
61949241213
-
Unrelated donor and HLA-identical sibling haematopoietic stem cell transplantation cure chronic granulomatous disease with good long-term outcome and growth
-
Soncini E, Slatter MA, Jones LBKR, Hughes S, Hodges S, Flood TJ, et al. Unrelated donor and HLA-identical sibling haematopoietic stem cell transplantation cure chronic granulomatous disease with good long-term outcome and growth. Br J Haematol. 2009;145:73-83.
-
(2009)
Br J Haematol.
, vol.145
, pp. 73-83
-
-
Soncini, E.1
Slatter, M.A.2
Jones, L.B.K.R.3
Hughes, S.4
Hodges, S.5
Flood, T.J.6
-
4
-
-
34548523100
-
Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/ severities utilizing the PedsQL 4.0 Generic Core Scales
-
doi:10.1186/1477-7525-5-43
-
Varni JW, Limbers CA, Burwinkle TM. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/ severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes. 2007;5:43. doi:10.1186/1477-7525-5-43.
-
(2007)
Health Qual Life Outcomes.
, vol.5
, pp. 43
-
-
Varni, J.W.1
Limbers, C.A.2
Burwinkle, T.M.3
-
5
-
-
3442877820
-
Gastrointestinal involvement in chronic granulomatous disease
-
Marciano BE, Rosenzweig SD, Kleiner DE, Anderson VL, Darnell DN, Anaya-O'Brien S, et al. Gastrointestinal involvement in chronic granulomatous disease. Pediatrics. 2004;114(2):462-8.
-
(2004)
Pediatrics.
, vol.114
, Issue.2
, pp. 462-468
-
-
Marciano, B.E.1
Rosenzweig, S.D.2
Kleiner, D.E.3
Anderson, V.L.4
Darnell, D.N.5
Anaya-O'Brien, S.6
-
6
-
-
84455208725
-
Emotional and behavioural difficulties in chronic granulomatous disease
-
doi:10.1136/archdischild-2011-300780
-
Cole TS, Jones LK, McGrogan P, Pearce MS, Flood TJ, Cant AJ, et al. Emotional and behavioural difficulties in chronic granulomatous disease. Arch Dis Child. 2011. doi:10.1136/archdischild-2011-300780.
-
(2011)
Arch Dis Child.
-
-
Cole, T.S.1
Jones, L.K.2
McGrogan, P.3
Pearce, M.S.4
Flood, T.J.5
Cant, A.J.6
-
7
-
-
0037114622
-
Treatment of chronic granulomatous disease with myeloablative conditioning and an unmodified hemopoietic allograft: A survey of the European experience, 1985-2000
-
Seger RA, Gungor T, Belohradsky BH, Blanche S, Bordigoni P, Di Bartolomeo P, et al. Treatment of chronic granulomatous disease with myeloablative conditioning and an unmodified hemopoietic allograft: a survey of the European experience, 1985-2000. Blood. 2002;100(13):4344-50.
-
(2002)
Blood.
, vol.100
, Issue.13
, pp. 4344-4350
-
-
Seger, R.A.1
Gungor, T.2
Belohradsky, B.H.3
Blanche, S.4
Bordigoni, P.5
Di Bartolomeo, P.6
-
9
-
-
33745750818
-
Health related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow transplantation: Results of a longitudinal, multi-centre study
-
Felder-Puig R, di Gallo A, Waldenmair M, Norden P, Winter A, Gadner H, et al. Health related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow transplantation: results of a longitudinal, multi-centre study. Bone Marrow Transplant. 2006;38:119-26.
-
(2006)
Bone Marrow Transplant.
, vol.38
, pp. 119-126
-
-
Felder-Puig, R.1
Di Gallo, A.2
Waldenmair, M.3
Norden, P.4
Winter, A.5
Gadner, H.6
-
10
-
-
23844497831
-
Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales
-
doi:10.1186/1477-7525-3-22
-
Upton P, Eiser C, Cheung I, Hutchings HA, Jenney M, Maddocks A, et al. Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes. 2005;3:22. doi:10.1186/1477-7525-3-22.
-
(2005)
Health Qual Life Outcomes.
, vol.3
, pp. 22
-
-
Upton, P.1
Eiser, C.2
Cheung, I.3
Hutchings, H.A.4
Jenney, M.5
Maddocks, A.6
-
11
-
-
84892825705
-
Youth in mind
-
Accessed 17.01 2011
-
Youth in mind. SDQ: Normative SDQ Data from Britain. http://www.sdqinfo. org/UKNorm.html. Accessed 17.01 2011.
-
SDQ: Normative SDQ Data from Britain
-
-
-
12
-
-
0023864136
-
Who should measure quality of life, the doctor or the patient?
-
Slevin ML, Plant H, Lynch D, Drinkwater J, Gregory WM. Who should measure quality of life, the doctor or the patient? Br J Cancer. 1988;57(1):109-12.
-
(1988)
Br J Cancer.
, vol.57
, Issue.1
, pp. 109-112
-
-
Slevin, M.L.1
Plant, H.2
Lynch, D.3
Drinkwater, J.4
Gregory, W.M.5
-
13
-
-
79954434741
-
Self-reported quality of life in children and young people with chronic kidney disease
-
doi:10.1007/s00467-011-1784-2
-
Heath J, Mackinlay D, Watson AR, Hames A, Wirz L, Scott S, et al. Self-reported quality of life in children and young people with chronic kidney disease. Pediatr Nephrol. 2011;26(5):767-73. doi:10.1007/s00467-011-1784-2.
-
(2011)
Pediatr Nephrol.
, vol.26
, Issue.5
, pp. 767-773
-
-
Heath, J.1
Mackinlay, D.2
Watson, A.R.3
Hames, A.4
Wirz, L.5
Scott, S.6
-
14
-
-
84856104521
-
The proxy problem anatomized: Child-parent disagreement in health related quality of life reports of chronically ill adolescents
-
doi:10.1186/1477-7525-10-10
-
Sattoe JN, van Staa A, Moll HA. The proxy problem anatomized: child-parent disagreement in health related quality of life reports of chronically ill adolescents. Health Qual Life Outcomes. 2012;10:10. doi:10.1186/1477-7525-10-10.
-
(2012)
Health Qual Life Outcomes.
, vol.10
, pp. 10
-
-
Sattoe, J.N.1
Van Staa, A.2
Moll, H.A.3
-
15
-
-
0033374144
-
Health-related quality of life in childhood cancer: Discrepancy in parent-child reports
-
Levi RB, Drotar D. Health-related quality of life in childhood cancer: discrepancy in parent-child reports. Int J Cancer Suppl. 1999;12:58-64.
-
(1999)
Int J Cancer Suppl.
, vol.12
, pp. 58-64
-
-
Levi, R.B.1
Drotar, D.2
-
16
-
-
33846154928
-
Disease severity, mental health, and quality of life of children and adolescents with asthma
-
doi:10.1002/ppul.20509
-
Goldbeck L, Koffmane K, Lecheler J, Thiessen K, Fegert JM. Disease severity, mental health, and quality of life of children and adolescents with asthma. Pediatr Pulmonol. 2007;42(1):15-22. doi:10.1002/ppul.20509.
-
(2007)
Pediatr Pulmonol.
, vol.42
, Issue.1
, pp. 15-22
-
-
Goldbeck, L.1
Koffmane, K.2
Lecheler, J.3
Thiessen, K.4
Fegert, J.M.5
-
17
-
-
62549148653
-
Disease control and health-related quality of life in juvenile idiopathic arthritis
-
doi:10.1002/art.24477
-
Seid M, Opipari L, Huang B, Brunner HI, Lovell DJ. Disease control and health-related quality of life in juvenile idiopathic arthritis. Arthritis Rheum. 2009;61(3):393-9. doi:10.1002/art.24477.
-
(2009)
Arthritis Rheum.
, vol.61
, Issue.3
, pp. 393-399
-
-
Seid, M.1
Opipari, L.2
Huang, B.3
Brunner, H.I.4
Lovell, D.J.5
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