Deaths Among Children, Adolescents, and Young Adults with Down Syndrome

Journal of Applied Research in Intellectual Disabilities

Volumn 26, Issue 3, 2013, Pages 207-214

  Miodrag, Nancy ^a,b   Silverberg, Sophie E ^b,c   Urbano, Richard C ^b,c   Hodapp, Robert M ^b,c  

^a CALIFORNIA STATE UNIVERSITY   (United States)

^b VANDERBILT UNIVERSITY MEDICAL CENTER   (United States)

^c VANDERBILT UNIVERSITY   (United States)

Author keywords

Causes of death; Children adolescents young adults; Death rates; Down syndrome; Hospitalizations

Indexed keywords

ADOLESCENT; ADULT; AGE; ARTICLE; CAUSE OF DEATH; CHILD; DOWN SYNDROME; FEMALE; HOSPITALIZATION; HUMAN; INFANT; MALE; MORTALITY; PRESCHOOL CHILD; RISK FACTOR; SEX DIFFERENCE; STATISTICS; UNITED STATES;

ADOLESCENT; ADULT; AGE FACTORS; CAUSE OF DEATH; CHILD; CHILD, PRESCHOOL; DOWN SYNDROME; FEMALE; HOSPITAL MORTALITY; HOSPITALIZATION; HUMANS; INFANT; MALE; RISK FACTORS; SEX FACTORS; TENNESSEE; YOUNG ADULT;

EID: 84876380712     PISSN: 13602322     EISSN: 14683148     Source Type: Journal    
DOI: 10.1111/jar.12023     Document Type: Article

References (23)

1. American Academy of Pediatrics, Committee on Genetics (2001) Health supervision for children with Down syndrome. Pediatrics 107, 442-449.
2. Bittles A. H. & Glasson E. J. (2004) Clinical, social, and ethical implications of changing life expectancy in Down syndrome. Developmental Medicine and Child Neurology 46, 282-286.
3. Boulet S. L., Molinari N.-A., Grosse S. D., Honein M. A. & Correa-Villasenor A. (2008) Health care expenditures for infants and young children with Down syndrome in a privately insured population. Journal of Pediatrics 153, 241-246.
4. Bull M. J. (2011) Pulmonary complications and chronic conditions of Down syndrome during childhood: an agenda for clinical care and research. The Journal of Pediatrics 158, 178-179.
5. Day S. M., Strauss D. J., Shavelle R. M. & Reynolds R. J. (2005) Mortality and causes of death in persons with Down syndrome in California. Developmental Medicine and Child Neurology 47, 171-176.
6. Esbensen A. J., Seltzer M. M. & Greenberg J. S. (2007) Factors predicting mortality in midlife adults with and without Down syndrome living with family. Journal of Intellectual Disability Research 51, 1039-1050.
7. Friedman J. M. (2001) Racial disparities in median age at death of persons with Down syndrome - United States, 1968-1997. Morbidity and Mortality Weekly Report 50, 463-465.
8. Glasson E. J., Sullivan S. G., Hussain R., Petterson B. A., Montgomery P. D. & Bittles A. H. (2003) Comparative survival advantage of males with Down syndrome. American Journal of Human Biology 15, 192-195.
9. Goldman S. E., Urbano R. C. & Hodapp R. M. (2011) Determining the amount, timing and cause of mortality among infants with Down syndrome. Journal of Intellectual Disability Research 55, 85-94.
10. Hodapp R. M., Miodrag N., Goldman S. E. & Urbano R. C. (2010) Health outcomes of infants and toddlers with Down syndrome. International Review of Research in Mental Retardation 39, 37-66.
11. Kapell D., Nightingale B., Rodriguez A., Lee J. H., Zigman W. B. & Schupf N. (1998) Prevalences of chronic medical conditions in adults with mental retardation: comparison with the general population. Mental Retardation 36, 269-279.
12. McDowell K. M. & Craven D. I. (2011) Pulmonary complications of Down syndrome during childhood. The Journal of Pediatrics 158, 319-325.
13. National Center for Health Statistics (2002) Classification of Diseases and Injuries. Available at: ftp://ftp.cdc.gov/pub/Health_Statistics/NCHS/Publications/ICD-9/ucod.txt (accessed on 25 January 2013).
14. Rasmussen S. A., Wong L.-Y., Correa A., Gambrell D. & Friedman J. M. (2006) Survival in infants with Down syndrome, metropolitan Atlanta, 1979-1998. Journal of Pediatrics 148, 806-812.
15. Shin M., Kucik J. E. & Correa A. (2007) Causes of death and case fatality rates among infants with Down syndrome in metropolitan Atlanta. Birth Defects Research (Part A): Clinical and Molecular Teratology 79, 775-780.
16. So S. A., Urbano R. C. & Hodapp R. M. (2007) Hospitalizations of infants and young children with Down syndrome: evidence from inpatient person-records from a statewide administrative database. Journal of Intellectual Disability Research 51, 1030-1038.
17. SPSS Inc. (2010). Statistical Package for the Social Sciences. SPSS, Inc., Chicago, IL Available at: www.spss.com.
18. Thomas K., Bourke J., Girdler S., Bebbington A., Jacoby P. & Leonard H. (2011) Variation over time in medical conditions and health service utilization of children with Down syndrome. The Journal of Pediatrics 158, 194-200.
19. United States Department of Health and Human Services (US DHHS), Centers for Disease Control and Prevention, National Center for Health Statistics (2008). Compressed Mortality File 1999-2008. CDC WONDER On-line Database, compiled from Multiple Cause of Death File 2008, Series 20 No. 2M, 2011. Available at: http://wonder.cdc.gov/ucd-icd10.html (accessed on 25 January 2013).
20. Urbano R. C. (ed.) (2010) Health Issues Among Persons With Down Syndrome. International Review of Research in Mental Retardation, Whole 39. Elsevier, San Diego, CA.
21. Urbano R. C., Phillips J., Hannig V. L., Beck C. A., Stephens J. F. & Hodapp R. M. (2007) Sensitivity and Specificity of Down Syndrome Diagnosis from Combined Birth and Hospital Records Versus Clinical Diagnosis. Poster session presented at the 5th annual meeting on Birth Defects Monitoring and Prevention in Georgia. Center for Disease Control and Prevention, Atlanta, GA.
22. Wallace R. A. & Dalton A. J. (2006) Clinicians' guide to physical health problems of older adults with Down syndrome. Journal on Developmental Disabilities 12(Supp 1), 1-92.
23. Yang Q., Rasmussen S. A. & Friedman J. M. (2002) Mortality associated with Down's syndrome in the USA from 1983 to 1997: a population-based study. Lancet 359, 1019-1025.