Parents' Perceptions of a Pediatric Palliative Program

American Journal of Hospice and Palliative Medicine

Volumn 30, Issue 3, 2013, Pages 291-296

  Sheetz, M Joan ^a,b   Bowman, Mary Ann Sontag ^c  

^a PRIMARY CHILDREN'S MEDICAL CENTER   (United States)

^b UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF MONTANA   (United States)

Author keywords

end of life care; family satisfaction; family support; medical decision making; pediatric palliative care; program development

Indexed keywords

CHILD; CONSUMER; HUMAN; INFANT; INTERPERSONAL COMMUNICATION; PALLIATIVE THERAPY; PARENT; PATIENT CARE PLANNING; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; REVIEW; STANDARD; TERMINAL CARE; TOTAL QUALITY MANAGEMENT;

CHILD; CHILD, PRESCHOOL; COMMUNICATION; CONSUMER SATISFACTION; HUMANS; INFANT; PALLIATIVE CARE; PARENTS; PATIENT CARE PLANNING; QUALITY IMPROVEMENT; TERMINAL CARE;

EID: 84876256644     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909112449376     Document Type: Review

References (10)

1. Committee on Bioethics and Committee on Hospital Care. Palliative care for children.Pediatrics. 2000;106 (2): 351-357.
2. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: National Academies Press; 2003:.
3. Hinds PS,Schum L,Baker J,Wolfe J.Key factors affecting dying children and their families.J Palliat Med. 2005;8 (1): 70-78.
4. Himmelstein B.Palliative care for infants, children, adolescents, and their families.J Palliat Med. 2006;9 (1): 163-181.
5. Weissman DE,Meier DE,Spragens LH.Center to Advance Palliative Care palliative care consultation service metrics: consensus recommendations.J Palliat Med. 2008;11 (10): 1294-1298.
6. Weissman DE,Morrison RS,Meier DE.Center to Advance Palliative Care Palliative Care clinical care and customer satisfaction metrics consensus recommendations.J Palliat Med. 2010;13 (2): 179-184.
7. Wolffe J,Robert R,Sommerer A,Volz-Fleckenstein M.Impact of a Pediatric Palliative Care Program.Pediatr Blood Cancer. 2010;54 (2): 279-283.
8. Hayes R,Valentine J,Haynes G, et al.The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life.J Palliat Med. 2006;9 (3): 716-728.
9. Sheetz MJ,Bowman M.Pediatric palliative care: an assessment of physicians' confidence in skills, desire for training and willingness to refer for end-of-life care.Am J Hosp Palliat Med. 2008;25 (2): 100-105.
10. Feudtner C,Christakis DA,Connell FA.Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington state, 1980-1997.Pediatrics. 2000;106 (1): 205-209.