Predictors of psychological adjustment, experienced parenting burden and chronic sorrow symptoms in parents of children with cerebral palsy

Child: Care, Health and Development

Volumn 39, Issue 3, 2013, Pages 366-373

  Whittingham, K ^a   Wee, D ^a   Sanders, M R ^a   Boyd, R ^a  

^a UNIVERSITY OF QUEENSLAND   (Australia)

Author keywords

Cerebral palsy; Chronic sorrow; Coping; Experiential avoidance; Parent

Indexed keywords

ADAPTIVE BEHAVIOR; ADJUSTMENT DISORDER; ARTICLE; AVOIDANCE BEHAVIOR; BEHAVIOR DISORDER; CEREBRAL PALSY; CHILD; CHILD PARENT RELATION; COST OF ILLNESS; CROSS-SECTIONAL STUDY; FAMILY HEALTH; FEMALE; GRIEF; HUMAN; MALE; NURSING; PARENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; STATISTICS;

ADAPTATION, PSYCHOLOGICAL; ADJUSTMENT DISORDERS; AVOIDANCE LEARNING; CEREBRAL PALSY; CHILD; CHILD BEHAVIOR DISORDERS; CHILD, PRESCHOOL; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; FAMILY HEALTH; FEMALE; GRIEF; HUMANS; MALE; PARENT-CHILD RELATIONS; PARENTING; PARENTS; PSYCHOMETRICS;

EID: 84876089884     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2012.01396.x     Document Type: Article

References (36)

1. Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G. & Murphy, M. M. (2004) Psychological well-being and coping in mothers of youths with autism, down syndrome or fragile X syndrome. American Journal of Mental Retardation, 109, 237-254.
2. Barlow, J. H., Cullen-Powell, L. A. & Cheshire, A. (2006) Psychological well-being among mothers of children with cerebral palsy. Early Child Development and Care, 176, 421-428.
3. Blackledge, J. T. & Hayes, S. C. (2006) Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy, 28, 1-18.
4. Bond, F. W. & Bunce, D. (2003) The role of acceptance and job control in mental health, job satisfaction and work performance. The Journal of Applied Psychology, 88, 1057-1067.
5. Brehaut, J. C., Kohen, D. E., Raina, P., Walter, S. D., Russell, D. J., Swinton, M., O'Donnell, M. & Rosenbaum, P. (2004) The health of primary caregivers of children with cerebral palsy: how does it compare with that of other canadian caregivers? Pediatrics, 114, e182-e191.
6. Carlsson, M., Olsson, I., Hagberg, G. & Beckung, E. (2008) Behaviour in children with cerebral palsy with and without epilepsy. Developmental Medicine and Child Neurology, 50, 784-789.
7. Cheshire, A., Barlow, J. H. & Powell, L. A. (2010) The psychosocial well-being of parents of children with cerebral palsy: a comparison study. Disability and Rehabilitation, 32, 1673-1677.
8. Coyne, L. W., McHugh, L. & Martinez, E. R. (2011) Acceptance and Commitment Therapy (ACT): advances and applications with children, adolescents and families. Child and Adolescent Psychiatric Clinics of North America, 20, 379-399.
9. Eakes, G. G., Burke, M. L. & Hainsworth, M. A. (1998) Middle-range theory of chronic sorrow. Image-the Journal of Nursing Scholarship, 30, 179-184.
10. Glenn, S., Cunningham, C., Poolem, H., Reeves, D. & Weindling, M. (2008) Maternal parenting stress and its correlates in families with a young child with cerebral palsy. Child: Care, Health and Development, 35, 71-78.
11. Glidden, L. M. & Natcher, A. L. (2009) Coping strategy use, personality, and adjustment of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 53, 998-1013.
12. Glidden, L. M., Billings, F. J. & Jobe, B. M. (2006) Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50, 949-962.
13. Goodman, R. (2001) Psychometric properties of the strengths and difficulties questionnaire. Journal of the American Academy of Child and Adolescent Psychiatry, 40, 1337-1345.
14. Greco, L., Heffner, M., Poe, S., Ritchie, S., Polak, M. & Lynch, S. (2005) Maternal adjustment following preterm birth: contributions of experiential avoidance. Behavior Therapy, 36, 177-184.
15. Gupta, V. B. (2007) Comparison of parenting stress in different developmental disabilities. Journal of Developmental and Physical Disabilities, 19, 417-425.
16. Hayes, S. C., Strosal, K. D. & Wilson, K. G. (2003) Acceptance and Commitment Therapy: An Experiential Approach to Behavior Change. Guilford Press, New York, USA.
17. Hayes, S. C., Luoma, J. B., Bond, F. W., Masuda, A. & Lillis, J. (2006) Acceptance and Commitment Therapy: model, processes and outcomes. Behaviour Research and Therapy, 44, 1-25.
18. Henry, J. D. & Crawford, J. R. (2005) The short form version of the Depression Anxiety Stress Scales (DASS-21): construct validity and normative data in a large non-clinical sample. British Journal of Clinical Psychology, 44, 227-239.
19. Hobdell, E. (2004) Chronic sorrow and depression in parents of children with neural tube defects. The Journal of Neuroscience Nursing, 36, 82-94.
20. Ketelaar, M., Volman, M. J. M., Gorter, J. W. & Vermeer, A. (2008) Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Child: Care, Health and Development, 34, 825-829.
21. Lach, L. M., Kohen, D. E., Garner, R. E., Brehaut, J. C., Miller, A. R., Klassen, A. F. & Rosenbaum, P. L. (2009) The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders. Disability and Rehabilitation, 31, 607-618.
22. Lloyd, T. & Hastings, R. P. (2008) Psychological correlates of adjustment in mothers of children with intellectual disabilities: cross-sectional and longitudinal relationships. Journal of Intellectual Disability Research, 51, 47-48.
23. Lovibond, P. E. & Lovibond S. H. (1995) The structure of negative emotional states: comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories. Behaviour Research and Therapy, 33, 335-343.
24. McCubbin, H. I., McCubbin, M. A., Patteron, J. M., Cauble, A. E., Wilson, L. R. & Warwick, W. (1983) CHIP. Coping health inventory for parents: an assessment of parental coping patterns in the care of the chronically ill child. Journal of Marriage and the Family, 45, 359-370.
25. Palisano, R. (1997) Development & reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine and Child Neurology, 39, 214-223.
26. Parkes, J., White-Koning, M., Dickinson, H. O., Thyen, U., Arnaud, C., Beckung, E., Fauconnier, J., Marcelli, M., McManus, V., Michelsen, S. I., Parkinson, K. & Colver, A. (2008) Psychologicalproblems in children with cerebral palsy: a cross-sectional European study. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 49, 405-413.
27. Parkes, J., White-Koning, M., McCullough, N. & Colver, A. (2009) Psychological problems in children with hemiplegia: a European multicentre survey. Archives of Disease in Childhood, 94, 429-433.
28. Parkes, J., McCullough, N., Madden, A. & McCahey, E. (2011) The health of children with cerebral palsy and stress in their parents. Journal of Advanced Nursing, 65, 2311-2323.
29. Plant, K. M. & Sanders, M. R. (2007) Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51, 109-124.
30. Rentinck, I. C. M., Ketelaar, M., Jongmans, M. J. & Gorter, J. W. (2007) Parents of children with cerebral palsy: a review of factors related to the process of adaptation. Child: Care, Health and Development, 33, 161-169.
31. Rosenbaum, P. (2003) Cerebral palsy: what parents and doctors want to know. BMJ (Clinical Research ed.), 326, 970-974.
32. Sanders, M. R., Mazzucchelli, T. & Studman, L. (2003) Practitioner's Manual for Standard Stepping Stones Triple P. Triple P International, Brisbane, Qld, Australia.
33. Singh, N. N., Lancioni, G. E., Winton, A. S. W., Fisher, W. R. G., McAleaney, K. M. & Singh, J. (2006) Mindful parenting decreases aggression, non-compliance and self-injury in children with Autism. Journal of Emotional and Behavioural Disorders, 14, 169-177.
34. Singh, N. N., Lancioni, G. E., Winton, A. S. W., Singh, J., Curtis, W. J., Wahler, R. G. & McAleaney, K. M. (2007) Mindful parenting decreases aggression and increase social behaviour in children with developmental disabilities. Behavior Modification, 31, 749-771.
35. Stanley, F., Blair, E. & Alberman, E. (2000) Cerebral Palsies: Epiemiology and Causal Pathways. Mackeith, London, UK.
36. Whittingham, K., Wee, D., Sanders, M. R. & Boyd, R. (2012) Responding to the challenges of parenting a child with cerebral palsy: a focus group. Disability and Rehabilitation, 33, 1557-1567.