Development and validation of a measurement tool to assess perceptions of palliative care

Psycho-Oncology

Volumn 22, Issue 4, 2013, Pages 940-946

  Milne, Donna ^a,b   Aranda, Sanchia ^a,b,c   Jefford, Michael ^a,b   Schofield, Penelope ^a,b  

^a PETER MACCALLUM CANCER CENTRE   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

^c Cancer Institute New South Wales   (Australia)

Author keywords

cancer; measurement; oncology; palliative care; perceptions; psychometrics

Indexed keywords

ADULT; ADVANCED CANCER; AGED; ARTICLE; BREAST CANCER; CANCER PALLIATIVE THERAPY; CAREGIVER; COGNITION; COLON CANCER; CORRELATION COEFFICIENT; DISTRESS THERMOMETER SCALE; EDMONTON SYMPTOM ASSESSMENT SCALE; FACTORIAL ANALYSIS; FEMALE; HEALTH BELIEF; HUMAN; INTERNAL CONSISTENCY; KIDNEY CANCER; MAJOR CLINICAL STUDY; MALE; MELANOMA; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PALLIATIVE CARE OUTCOME SCALE; PATIENT ATTITUDE; PERCEPTION; PERCEPTIONS OF PALLIATIVE CARE INSTRUMENT; PROSTATE CANCER; RELIABILITY; SEMI STRUCTURED INTERVIEW; STOMACH CANCER; TEST RETEST RELIABILITY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; FACTOR ANALYSIS, STATISTICAL; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; NEOPLASMS; OUTCOME ASSESSMENT (HEALTH CARE); PALLIATIVE CARE; PATIENT ACCEPTANCE OF HEALTH CARE; PERCEPTION; PREDICTIVE VALUE OF TESTS; PSYCHOMETRICS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 84876047303     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.3071     Document Type: Article

References (25)

1. Jemal A, Murray T, Samuels A, et al,. Cancer statistics 2003. CA Cancer J Clin 2003; 53: 5-26.
2. Parkin DM,. Global cancer statistics in the year 2000. Lancet Oncol 2000; 2: 533-543.
3. Teunissen S, Wesker W, Kruitwagen C, et al,. Symptom prevalence in patients with incurable cancer: a systematic review. J Pain Symptom Manag 2007; 34 (1): 94-104.
4. Lloyd-Williams M, Friedman T,. Depression in palliative care patients-a prospective study. Eur J Cancer Care 2001; 10 (4): 270-274.
5. Hwang SS, Chang VT, Fairclough DL, et al,. Longitudinal quality of life in advanced cancer patients: pilot study results from a VA medical cancer center. J Pain Symptom Manag 2003; 25 (3): 225-235.
6. Johnson CE, Girgis A, Paul CL, et al,. Cancer specialists' palliative care referral practices and perceptions: results of a national survey. Palliative Med 2008; 22: 51-57.
7. Milne D,. The Perceptions of Palliative Care Instrument (PPCI): Development and Validation in an Advanced Cancer Setting. The University of Melbourne: Melbourne, 2009.
8. Arnold RM,. Half-full or half empty: making the message of palliative care palatable. J Palliat Med 2005; 8 (3): 474-476.
9. Rosenstock IM, Historical origins of the health belief model. Health Educ Quart 1974; 2: 328-335.
10. Janz NK, Champion VL, Strecher VJ,. The health belief model. In Health Behaviour and Health Education: Theory, Research, and Practice, Glanz K, Rimer BK, Lewis FM, (eds). Jossey-Bass: San Francisco, 2002.
11. Sprangers MA, Cull A, Groenvold M, et al,. The European Organization for Research and Treatment of Cancer approach to developing questionnaire modules: an update and overview. Qual Life Res 1998; 7: 291-300.
12. Hearn J, Higginson I,. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Qual Health Care 1999; 8: 219-227.
13. Bruera E, Kuehn N, Miller MJ, et al,. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care 1991; 7: 6-9.
14. Roth AJ, Kornblith AB, Batel-Copel L, et al,. Rapid screening for psychologic distress in men with prostate cancer. Cancer 1998; 82 (10): 1904-1908.
15. Bennett M, Adam J, Alison D, et al,. Leeds eligibility criteria for specialist palliative care services. Palliative Med 2000; 14: 157-158.
16. Bestall JC, Ahmed N, Ahmedzai S, et al,. Access and referral to specialist palliative care: patients' and professionals' experience. Int J Palliat Nurs 2004; 10 (8): 381-389.
17. Kirk P, Kirk I, Kristjanson LJ,. What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. BMJ 2004; 328: 1343-1349.
18. Addington-Hall J, Altmann D,. Which terminally ill cancer patients in the United Kingdom receive care from community specialist palliative care nurses? J Adv Nurs 2000; 32 (4): 799-806.
19. Tabachnick BG, Fidell LS,. Using Multivariate Statistics (3rd edn). Harper & Row: New York, 1996.
20. Cattell RB,. The scree test for the number of factors. Multivar Behav Res 1966; 1: 245-276.
21. De Villis RF,. Scale Development: Theory and Applications. Applied Social Research Methods Series. Sage: Newbury Park, 1991.
22. Nunnally JC,. Psychometric Theory (2nd edn). McGraw-Hill: New York, 1978.
23. Shrout PE, Fleiss JL,. Intraclass correlations: uses in assessing rater reliability. Psychol Bull 1979; 86: 420-428.
24. Steinhauser KE, Christakis NA, Clipp EC, et al,. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000; 284 (19): 2476-2482.
25. Streiner DL, Norman GR,. Health Measurement Scales: A Practical Guide to Their Development and Use (3rd edn). Oxford University Press: Oxford, 2003.