Patients' and professionals' views on managing fibromyalgia

Pain Research and Management

Volumn 18, Issue 1, 2013, Pages 19-24

  Briones Vozmediano, Erica ^a   Vives Cases, Carmen ^a   Ronda Pérez, Elena ^a   Gil González, Diana ^a  

^a UNIVERSITY OF ALICANTE   (Spain)

Author keywords

Fibromyalgia; Pain management; Patient care; Qualitative research; Therapy

Indexed keywords

ANTIDEPRESSANT AGENT; TRANQUILIZER;

ACUPUNCTURE; ADULT; ARTICLE; ATTITUDE TO ILLNESS; CLINICAL ARTICLE; DELAYED DIAGNOSIS; DIAGNOSTIC APPROACH ROUTE; EMPATHY; FEMALE; FIBROMYALGIA; GENERAL PRACTITIONER; HEALTH CARE COST; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; INSOMNIA; MALE; PATIENT ATTITUDE; PATIENT REFERRAL; PATIENT SATISFACTION; PERSONAL EXPERIENCE; PROFESSIONAL KNOWLEDGE; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; TAI CHI; DOCTOR PATIENT RELATION; MIDDLE AGED; PATIENT; PHYSICIAN;

ADULT; FEMALE; FIBROMYALGIA; HUMANS; MALE; MIDDLE AGED; PATIENT SATISFACTION; PATIENTS; PHYSICIAN-PATIENT RELATIONS; PHYSICIANS; QUALITATIVE RESEARCH;

MLCS; MLOWN;

EID: 84876046886     PISSN: 12036765     EISSN: None     Source Type: Journal    
DOI: 10.1155/2013/742510     Document Type: Article

References (63)

1. Arnold LM. Strategies for managing fibromyalgia. Am J Med 2009;122(12 Suppl):S31-43.
2. Ruiz Moral R, Rodriguez Salvador J, Perula L, et al. [Problems and solutions in health care for chronic diseases. A qualitative study with patients and doctors]. Aten Primaria 2006;38:483-9.
3. Bowen J, Pheby D, Charlett A, McNulty C. Chronic fatigue syndrome: A survey of GPs' attitudes and knowledge. Fam Pract 2005;22:389-93. (Pubitemid 41487373)
4. Chew-Graham C, Dixon R, Shaw JW, Smyth N, Lovell K, Peters S. Practice nurses' views of their role in the management of chronic fatigue syndrome/myalagic encephalitis: A qualitative study. BMC Nurs 2009;8:2.
5. Epstein RM, Shields CG, Meldrum SC, et al. Physicians' responses to patients' medically unexplained symptoms. Psychosom Med 2006;68:269-76. (Pubitemid 43740131)
6. Lundh C, Segesten K, Bjorkelund C. To be a helpless helpoholic - GPs' experiences of women patients with non-specific muscular pain. Scand J Prim Health Care 2004;22:244-7. (Pubitemid 39601987)
7. Risor MB. Illness explanations among patients with medically unexplained symptoms: Different idioms for different contexts. Health (London) 2009;13:505-21.
8. Wileman L, May C, Chew-Graham CA. Medically unexplained symptoms and the problem of power in the primary care consultation: A qualitative study. Fam Pract 2002;19:178-82. (Pubitemid 34257780)
9. Branco JC, Bannwarth B, Failde I, et al. Prevalence of fibromyalgia: A survey in five European countries. Semin Arthritis Rheum 2010;39:448-53.
10. Carmona L, Ballina J, Gabriel R, Laffon A. The burden of musculoskeletal diseases in the general population of Spain: Results from a national survey. Ann Rheum Dis 2001;60:1040-5. (Pubitemid 32989176)
11. Sauer K, Kemper C, Glaeske G. Fibromyalgia syndrome: Prevalence, pharmacological and non-pharmacological interventions in outpatient health care. An analysis of statutory health insurance data. Joint Bone Spine 2011;78:80-9.
12. Copenhagen Declaration. Consensus document on fibromyalgia: The Copenhagen Declaration. J Musculoskel Pain 1993;1:295-312.
13. Wolfe F. The relation between tender points and fibromyalgia symptom variables: Evidence that fibromyalgia is not a discrete disorder in the clinic. Ann Rheum Dis 1997;56:268-71. (Pubitemid 27239584)
14. Wolfe F, Smythe HA, Yunus MB, et al. The American College of Rheumatology 1990 Criteria for the Classification of Fibromyalgia. Report of the Multicenter Criteria Committee. Arthritis Rheum 1990;33:160-72. (Pubitemid 20098653)
15. Hauser W, Thieme K, Turk DC. Guidelines on the management of fibromyalgia syndrome - A systematic review. Eur J Pain 2010;14:5-10.
16. Mease P. Fibromyalgia syndrome: Review of clinical presentation, pathogenesis, outcome measures, and treatment. J Rheumatol Suppl 2005;75:6-21. (Pubitemid 41113954)
17. Barker KK. Listening to Lyrica: Contested illnesses and pharmaceutical determinism. Soc Sci Med 2011;73:833-42.
18. Care Continuum Alliance. CCA definition of disease management. 〈http://www.carecontinuum.org/dm-definition.asp〉 (Accessed November 11, 2010)
19. Schiltenwolf M, Eich W, Schmale-Grete R, Hauser W. [Aims of the guidelines for diagnostic and treatment of fibromyalgia syndrome]. Schmerz 2008;22:241-3.
20. Clark NM, Nothwehr F, Gong M, et al. Physician-patient partnership in managing chronic illness. Acad Med 1995;70:957-9.
21. Von Korff M, Gruman J, Schaefer J, Curry SJ, Wagner EH. Collaborative management of chronic illness. Ann Intern Med 1997;127:1097-102. (Pubitemid 28012080)
22. Hellstrom O, Bullington J, Karlsson G, Lindqvist P, Mattsson B. A phenomenological study of fibromyalgia. Patient perspectives. Scand J Prim Health Care 1999;17:11-6. (Pubitemid 29200192)
23. Raymond MC, Brown JB. Experience of fibromyalgia. Qualitative study. Can Fam Physician 2000;46:1100-6.
24. Lachapelle DL, Lavoie S, Boudreau A. The meaning and process of pain acceptance. Perceptions of women living with arthritis and fibromyalgia. Pain Res Manag 2008;13:201-10.
25. Asbring P, Narvanen AL. Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia. Qual Health Res 2002;12:148-60.
26. Steinberg DP. The experience of relationships: Twelve people with fibromyalgia. New York: New York University; 2007.
27. Cunningham MM, Jillings C. Individuals' descriptions of living with fibromyalgia. Clin Nurs Res 2006;15:258-73. (Pubitemid 44570048)
28. Dobkin PL, De Civita M, Bernatsky S, Filipski M, Sita A, Baron M. Preliminary validity of the barriers to treatment adherence questionnaire in fibromyalgia: Combining quantitative and focus group data. Psychol Rep 2009;105:447-60.
29. Paulson M, Norberg A, Danielson E. Men living with fibromyalgiatype pain: Experiences as patients in the Swedish health care system. J Adv Nurs 2002;40:87-95.
30. Sim J, Adams N. Systematic review of randomized controlled trials of nonpharmacological interventions for fibromyalgia. Clin J Pain 2002;18:324-36. (Pubitemid 35001159)
31. Haugli L, Strand E, Finset A. How do patients with rheumatic disease experience their relationship with their doctors? A qualitative study of experiences of stress and support in the doctorpatient relationship. Patient Educ Couns 2004;52:169-74. (Pubitemid 38169229)
32. Escudero-Carretero MJ, García-Toyos N, Prieto-Rodríguez MA, Pérez Corral O, March-Cerdá JC, López-Doblas M. [Fibromyalgia: Patient perception on their disease and health system. Qualitative research study] Reumatol Clin 2010;6:16-22
33. Rodham K, Rance N, Blake D. A qualitative exploration of carers' and patients' experiences of fibromyalgia: One illness, different perspectives. Musculoskeletal Care 2010;8:68-77.
34. Asbring P, Narvanen AL. Patient power and control: A study of women with uncertain illness trajectories. Qual Health Res 2004;14:226-40. (Pubitemid 44526388)
35. Alghalyini B. That sinking feeling: A patient-doctor dialogue about rescuing patients from fibromyalgia culture. Can Fam Physician 2008;54:1576-7.
36. Asbring P, Narvanen AL. Ideal versus reality: Physicians perspectives on patients with chronic fatigue syndrome (CFS) and fibromyalgia. Soc Sci Med 2003;57:711-20. (Pubitemid 36773162)
37. Hellstrom O, Bullington J, Karlsson G, Lindqvist P, Mattsson B. Doctors' attitudes to fibromyalgia: A phenomenological study. Scand J Soc Med 1998;26:232-7.
38. Sim J, Madden S. Illness experience in fibromyalgia syndrome: A metasynthesis of qualitative studies. Soc Sci Med 2008;67:57-67. (Pubitemid 351749506)
39. Pope C, Ziebland S, Mays N. Qualitative research in health care. Analysing qualitative data. BMJ 2000;320:114-6.
40. Fitzpatrick R, Boulton M. Qualitative methods for assessing health care. Qual Health Care 1994;3:107-13.
41. Steihaug S, Malterud K. Part process analysis: A qualitative method for studying provider-patient interaction. Scand J Public Health 2003;31:107-12. (Pubitemid 41007523)
42. Spanish Reumatology Society. Estudio EPISER. Prevalencia e impacto de las enfermedades reumáticas en la población adulta española. Madrid: Spanish Reumatology Society 2001.
43. Miles MB, Huberman AM. Qualitative data analysis. Thousand Oaks: Sage, 1994.
44. Larun L, Malterud K. Identity and coping experiences in chronic fatigue syndrome: a synthesis of qualitative studies. Patient Educ Couns 2007;69:20-8. (Pubitemid 350064451)
45. Recla JM. New and emerging therapeutic agents for the treatment of fibromyalgia: An update. J Pain Res 2010;3:89-103.
46. Soderberg S, Lundman B, Norberg A. Struggling for dignity: The meaning of women's experiences of living with fibromyalgia. Qual Health Res 1999;9:575-87.
47. Pérez-Martín A, López-Lanza JR, Avellaneda- Fernández A. Evidencias en fibromialgia. FMC 2007;14:465-73.
48. Lempp HK, Hatch SL, Carville SF, Choy EH. Patients' experiences of living with and receiving treatment for fibromyalgia syndrome: A qualitative study. BMC Musculoskelet Disord 2009;10:124.
49. Angst F, Verra ML, Lehmann S, Brioschi R, Aeschlimann A. Clinical effectiveness of an interdisciplinary pain management programme compared with standard inpatient rehabilitation in chronic pain: A naturalistic, prospective controlled cohort study. J Rehabil Med 2009;41:569-75.
50. Goldenberg DL, Burckhardt C, Crofford L. Management of fibromyalgia syndrome. JAMA 2004;292:2388-95. (Pubitemid 39491924)
51. Strobel ES, Wild J, Muller W. [Interdisciplinary group therapy for fibromyalgia]. Z Rheumatol 1998;57:89-94.
52. Salmon P, Peters S, Stanley I. Patients' perceptions of medical explanations for somatisation disorders: Qualitative analysis. BMJ 1999;318:372-6. (Pubitemid 29192087)
53. Bruckle W. [Fibromyalgia - the new guideline]. Z Rheumatol 2009;68:451-8.
54. Scascighini L, Toma V, Dober-Spielmann S, Sprott H. Multidisciplinary treatment for chronic pain: A systematic review of interventions and outcomes. Rheumatology (Oxford) 2008;47:670-8. (Pubitemid 351619211)
55. Stanos S, Houle TT. Multidisciplinary and interdisciplinary management of chronic pain. Phys Med Rehabil Clin N Am 2006;17:435-50, vii.
56. Hallberg LR, Carlsson SG. Coping with fibromyalgia. A qualitative study. Scand J Caring Sci 2000;14:29-36.
57. Schoofs N, Bambini D, Ronning P, Bielak E, Woehl J. Death of a lifestyle: The effects of social support and healthcare support on the quality of life of persons with fibromyalgia and/or chronic fatigue syndrome. Orthop Nurs 2004;23:364-74.
58. Crooks VA, Chouinard V, Wilton RD. Understanding, embracing, rejecting: Women's negotiations of disability constructions and categorizations after becoming chronically ill. Soc Sci Med 2008;67:1837-46.
59. Arillo A, Vilches C, Mayor M, Gurpegui JR, Arroyo C, Extremera V. [Frequent users and difficult patients: How do they feel about their treatment by doctors?]. An Sist Sanit Navar 2006;29:47-58.
60. Kenny DT. Constructions of chronic pain in doctor-patient relationships: Bridging the communication chasm. Patient Educ Couns 2004;52:297-305. (Pubitemid 38283901)
61. Arnold LM, Clauw DJ. Fibromyalgia syndrome: Practical strategies for improving diagnosis and patient outcomes. Am J Med 2010;123:S2.
62. Alameda Cuesta A, Pazos Garciandia A. [Qualitative research on the conceptualization around the frequent attendance by primary medical staff]. Rev Esp Salud Publica 2009;83:863-75.
63. Undeland M, Malterud K. The fibromyalgia diagnosis: Hardly helpful for the patients? A qualitative focus group study. Scand J Prim Health Care 2007;25:250-5. (Pubitemid 350179036)