Continuous innovation: Developing and using a clinical database with new technology for patient-centred care-the case of the swedish quality register for arthritis

International Journal for Quality in Health Care

Volumn 25, Issue 2, 2013, Pages 118-124

  Ovretveit, John ^a   Keller, Christina ^a   Forsberg, Helena Hvitfeldt ^a   Essén, Anna ^a   Lindblad, Staffan ^a   Brommels, Mats ^a  

^a KAROLINSKA INSTITUTE   (Sweden)

Author keywords

Clinical database; Improvement; Quality; Safety

Indexed keywords

ARTICLE; CONSULTATION; DATA BASE; DISEASE REGISTRY; EMPOWERMENT; HUMAN; LONGITUDINAL STUDY; PATIENT CARE; PRIORITY JOURNAL; RHEUMATOID ARTHRITIS;

ARTHRITIS; DATABASES, FACTUAL; DIFFUSION OF INNOVATION; HUMANS; LONGITUDINAL STUDIES; PATIENT EDUCATION AS TOPIC; PATIENT-CENTERED CARE; POWER (PSYCHOLOGY); QUALITATIVE RESEARCH; QUALITY OF HEALTH CARE; REGISTRIES; SWEDEN; TREATMENT OUTCOME;

EID: 84875774711     PISSN: 13534505     EISSN: 14643677     Source Type: Journal    
DOI: 10.1093/intqhc/mzt002     Document Type: Article

References (18)

1. Langley GJ, Nolan KM, Nolan TW et al. The Improvement Guide: A Practical Approach to Enhancing Organizational Performance. San Francisco: Jossey-Bass, 1996.
2. Garpenby P, Carlsson P. The role of national quality registers in the Swedish health service. Health Policy 1994;29:183-95.
3. Weppner W, Coleman K, Reid R et al. Improving management of chronic disease. In: Berman S. (ed). From Front Office to Front Line: Essential Issues for Health Care Leaders. 2nd edn. Oak Brook, IL: Joint Commission Resources, 2011.
4. Gliklich R, Dreyer N (eds.) (2010) Registries for Evaluating Patient Outcomes: A User's Guide Second Edition, AHRQ Publication No. 10-EHC049 September 2010.
5. Kennedy L, Craig AM. Global registries for measuring pharmacoeconomic and quality-of-life outcomes: focus on design and data collection, analysis and interpretation. Pharmacoeconomics 2004;22:551-68.
6. Nazi KM, Hogan TP, Wagner TH et al. Embracing a health services research perspective on personal health records: lessons learned from the VA My HealtheVet system. J Gen Intern Med. 2010;25:62-7.
7. Elwyn G, Edwards A, Kinnersley P et al. Shared decision making and the concept of equipoise: the competences of involving patients in healthcare choices. Br J Gen Pract 2000;460:892-9.
8. Patients Like Me web site http://www.patientslikeme.com/(24 February 2012, date last accessed).
9. Connecting for Health Report 2003. The personal health working group final report. Markle Foundation, 2003.
10. Tang P, Ash J, Bates D et al. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc 2006;13:121-6. DOI 10.1197/jamia.M2025.
11. Ovretveit J, Keller C, Hvitfeldt-Forsberg H et al. Continuous innovation: from provider- to patient-use of registry data: a case study report of the development and use of the Swedish rheumatology register to improve the quality of arthritis care, Case study report: Medical Management Centre, Karolinska Institutet, Stockholm, 2012.
12. Pettigrew A, Whipp R. Managing change and corporate performance. In: Cool K, Neven DJ, Walter I (eds). European Industrial Restructuring in the 1990s. Basingstoke, Hampshire: Houndsmill, 1992.
13. Gremler DD. The critical incidents technique in service research. J Serv Res 2004;7:65-89.
14. Hvitfeldt H, Carli CA, Nelson EC et al. Feed-forward systems for patient participation and provider support: adoption results from the original US context to Sweden and beyond. Qual Manag Health Care 2009;18:247-56.
15. Carli C. Exploring a national practice based register for the management of rheumatoid arthritis. Dissertation. Stockholm, Karolinska Institutet, 2008.
16. Svensk Reumatologis Kvalitetsregister - Ger kvalitetsförbättringar i den kliniska vardagen. Årsrapport 2010 [Swedish Rheumatology Quality Register - Enhances quality improvement in clinical practice. Annual Report 2010]. Stockholm, Svensk Reumatologisk Förening [Swedish Society for Rheumatology], 2011.
17. Neovius M, Simard J, Sundström A et al. Generalisability of clinical registers used for drug safety and comparative effectiveness research: coverage of the Swedish Biologics Register. Ann Rheum Dis 2011;70:516-9.
18. Williams CA, Mosley-Williams AD, Overhage JM. Arthritis quality indicators for the veterans administrations: implications for electronic data collection, storage format, quality assessment, and clinical decision-support, in AMIA, Chicago, IL. In: American Medical Informatics Association 2007 Symposium Proceedings, 2007, 806-810.