How to analyze palliative care outcome data for patients in sub-Saharan Africa: An international, multicenter, factor analytic examination of the apca African pos

Journal of Pain and Symptom Management

Volumn 45, Issue 4, 2013, Pages 746-752

  Harding, Richard ^a   Selman, Lucy ^a   Simms, Victoria M ^a   Penfold, Suzanne ^a   Agupio, Godfrey ^b   Dinat, Natalya ^e   Downing, Julia ^a,c   Gwyther, Liz ^f,g   Ikin, Barbara ^h   Mashao, Thandi ^g   Mmoledi, Keletso ^e   Sebuyira, Lydia Mpanga ^d   Moll, Tony ^h   Mwangi Powell, Faith ^c   Namisango, Eve ^c   Powell, Richard A ^c   Walkey, Frank H ⁱ   Higginson, Irene J ^a   Siegert, Richard J ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b Hospice Africa Uganda   (Uganda)

^c AFRICAN PALLIATIVE CARE ASSOCIATION   (Uganda)

^d MAKERERE UNIVERSITY   (Uganda)

^e UNIVERSITY OF THE WITWATERSRAND   (South Africa)

^f Hospice Palliative Care Association of South Africa   (South Africa)

^g UNIVERSITY OF CAPE TOWN   (South Africa)

^h South Coast Hospice ^*  (South Africa)

ⁱ VICTORIA UNIVERSITY OF WELLINGTON   (New Zealand)

Author keywords

Africa; cancer; factor analysis; HIV; outcome measure; Palliative; progressive

Indexed keywords

ADULT; ARTICLE; CROSS-SECTIONAL STUDY; EXISTENTIAL WELLBEING; FACTORIAL ANALYSIS; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERPERSONAL WELLBEING; KENYA; MAJOR CLINICAL STUDY; MALE; MEDICAL AUDIT; OUTCOME ASSESSMENT; PALLIATIVE THERAPY; PSYCHOLOGICAL WELL BEING; SECONDARY ANALYSIS; SELF REPORT; SOUTH AFRICA; UGANDA; WELLBEING;

ADULT; AFRICA SOUTH OF THE SAHARA; FEMALE; HIV INFECTIONS; HUMANS; INTERNATIONALITY; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PALLIATIVE CARE; PREVALENCE; PROGNOSIS; RISK FACTORS; TERMINAL CARE; TREATMENT OUTCOME;

EID: 84875746758     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2012.04.007     Document Type: Article

References (20)

1. C. Sepulveda, V. Habiyambere, and J. Amandua Quality care at the end of life in Africa BMJ 327 2003 209 213 (Pubitemid 36920590)
2. L.E. Selman, I.J. Higginson, and G. Agupio Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study Health Qual Life Outcomes 9 2011 21
3. R. Harding, L. Selman, and G. Agupio The prevalence and burden of symptoms amongst cancer patients attending palliative care in two African countries Eur J Cancer 47 2011 51 56
4. K. Wakeham, R. Harding, and D. Bamukama-Namakoola Symptom burden in HIV-infected adults at time of HIV diagnosis in rural Uganda J Palliat Med 13 2010 375 380
5. K. Peltzer, and N. Phaswana-Mafuya The symptom experience of people living with HIV and AIDS in the Eastern Cape, South Africa BMC Health Serv Res 8 2008 271
6. E. Kikule A good death in Uganda: survey of needs for palliative care for terminally ill people in urban areas BMJ 327 2003 192 194 (Pubitemid 36920583)
7. UNAIDS. AIDS epidemic update 2009. Available from http://data.unaids.org/ pub/Report/2009/JC1700-Epi-Update-2009-en. Accessed March 2012.
8. American Cancer Society Cancer in Africa 2011 American Cancer Society Atlanta, GA Available from http://www.cancer.org/acs/groups/content/ @epidemiologysurveilance/documents/document/acspc-031574.pdf Accessed March 2012
9. R. Harding, and I.J. Higginson Palliative care in sub-Saharan Africa Lancet 365 2005 1971 1977 (Pubitemid 40797509)
10. R.A. Powell, J. Downing, R. Harding, F. Mwangi-Powell, and S. Connor Development of the APCA African Palliative Outcome Scale J Pain Symptom Manage 33 2007 229 232 (Pubitemid 46188679)
11. R. Harding, L. Selman, and G. Agupio Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale Health Qual Life Outcomes 8 2010 10
12. J. Hearn, and I.J. Higginson Development and validation of a core outcome measure for palliative care: the Palliative Care Outcome Scale. Palliative Care Core Audit Project Advisory Group Qual Health Care 8 1999 219 227
13. R.J. Siegert, W. Gao, F.H. Walkey, and I.J. Higginson Psychological well-being and quality of care: a factor-analytic examination of the palliative care outcome scale J Pain Symptom Manage 40 2010 67 74
14. R. Harding, V. Simms, and S. Penfold Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: study protocol BMC Public Health 10 2010 584
15. L.K. George Research design in end-of-life research: state of science Gerontologist 42 2002 86 98 (Pubitemid 35231161)
16. World Health Organization. Definition of palliative care. 2011. Available from http://www.who.int/cancer/palliative/definition/en/. Accessed March 2012.
17. M.M. Oken, R.H. Creech, and D.C. Tormey Toxicity and response criteria of the Eastern Cooperative Oncology Group Am J Clin Oncol 5 1982 649 655 (Pubitemid 13149996)
18. M. Pett, N. Lackley, and J. Sullivan Making sense of factor analysis: The use of factor analysis for instrument development in health care research 2003 Sage Publications Thousand Oaks, CA
19. B. Thompson Exploratory and confirmatory factor analysis: Understanding concepts and applications 2004 American Psychological Association Washington DC
20. J. Ullman Structural equation modelling B. Tabachnick, L.E. Fidel, Using multivariate statistics 4th ed. 2001 Allyn & Bacon Needham Heights, MA 653 771