Parent cough-specific quality of life: Development and validation of a short form

Journal of Allergy and Clinical Immunology

Volumn 131, Issue 4, 2013, Pages 1069-1074

  Newcombe, Peter A ^a   Sheffield, Jeanie K ^a   Chang, Anne B ^b,c  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b ROYAL CHILDREN'S HOSPITAL   (Australia)

^c MENZIES SCHOOL OF HEALTH RESEARCH   (Australia)

Author keywords

minimally important difference; pediatric cough; psychometrics; Quality of life

Indexed keywords

ARTICLE; CHILD; CONTROLLED STUDY; COUGHING; DEPRESSION ANXIETY STRESS SCALE; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; PARENT COUGH SPECIFIC QUALITY OF LIFE; PRESCHOOL CHILD; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; SENSITIVITY ANALYSIS; SHORT FORM 12; TEST RETEST RELIABILITY; VALIDATION PROCESS; VALIDITY; VISUAL ANALOG SCALE;

ADULT; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; COUGH; FEMALE; HUMANS; INFANT; MALE; PARENTS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 84875700437     PISSN: 00916749     EISSN: 10976825     Source Type: Journal    
DOI: 10.1016/j.jaci.2012.10.004     Document Type: Article

References (39)

1. E.C. Young, and J.A. Smith Quality of life in patients with chronic cough Ther Adv Respir Dis 4 2010 49 55
2. J.M. Marchant, P.A. Newcombe, E.F. Juniper, J.K. Sheffield, S.L. Stathis, and A.B. Chang What is the burden of chronic cough for families? Chest 134 2008 303 309
3. M.A. Testa, and D.C. Simonson Assessment of quality of life outcomes N Engl J Med 334 1996 835 840
4. M. Solans, S. Pane, M.-D. Estrada, V. Serra-Sutton, S. Berra, and M. Herdman Health-related quality of life measurement in children and adolescents: a systematic review of generic and disease-specific instruments Value Health 11 2008 742 764 (Pubitemid 352032809)
5. J.M. Landgraf, and L. Abetz Measuring health outcomes in pediatric populations: issues in psychometrics and application B. Spilker, Quality of life and pharmacoeconomics in clinical trials 2004 Lippincott-Raven Philadelphia 793 802
6. E.F. Juniper, G.H. Guyatt, R.S. Epstein, P.J. Ferrie, R. Jaeschke, and T.K. Hiller Evaluation of impairment of health-related quality of life in asthma: development of a questionnaire for use in clinical trials Thorax 47 1992 76 83
7. S. Wiebe, G. Guyatt, B. Weaver, S. Matijevic, and C. Sidwell Comparative responsiveness of generic and specific quality-of-life instruments J Clin Epidemiol 56 2003 52 60 (Pubitemid 36183315)
8. A.F. Kalpaklioglu, T. Kara, E. Kurtipek, P. Kocyigit, A. Ekici, and M. Ekici Evaluation and impact of chronic cough: comparison of specific vs generic quality-of-life questionnaires Ann Allergy Asthma Immunol 94 2005 581 585 (Pubitemid 40712783)
9. S.S. Birring, B. Prudon, A.J. Carr, S.J. Singh, M.D. Morgan, and I.D. Pavord Development of a symptom specific health status measure for patients with chronic cough: Leicester Cough Questionnaire (LCQ) Thorax 58 2003 339 343 (Pubitemid 36411421)
10. P.A. Newcombe, J.K. Sheffield, E.F. Juniper, J.M. Marchant, R.A. Halsted, and I.B. Masters Development of a parent-proxy quality of life chronic cough specific questionnaire: clinical impact versus psychometric evaluations Chest 133 2008 386 395 (Pubitemid 351272396)
11. M.P. Murray, K. Turnbull, S. Macquarrie, J.L. Pentland, and A.T. Hill Validation of the Leicester Cough Questionnaire in non-cystic fibrosis bronchiectasis Eur Respir J 34 2009 125 131
12. P.A. Newcombe, J.K. Sheffield, and A.B. Chang Minimally important change in a parent-proxy quality of life questionnaire for pediatric chronic cough Chest 139 2011 576 580
13. A.B. Chang Therapy for cough: where does it fall short? Exp Rev Respir Med 5 2011 503 513
14. P.W. Jones, G. Harding, P. Berry, I. Wiklund, W.-H. Chen, and N. Kline Leidy Development and first validation of the COPD Assessment Test Eur Respir J 34 2009 648 654
15. A.B. Chang, C.F. Robertson, P.P. van Asperen, N. Glasgow, C.M. Mellis, and I.B. Masters A multi-centre study on chronic cough in children: Burden and etiologies based on a standardized management pathway Chest 2012 [Epub ahead of print]
16. S.H. Lovibond, and P.F. Lovibond Manual for the Depression Anxiety and Stress Scales 1995 Psychological Foundation of Australia Sydney
17. A.B. Chang, R.G. Newman, J. Carlin, P.D. Phelan, and C.F. Robertson Subjective scoring of cough in children: parent-completed vs child-completed diary cards vs an objective method Eur Respir J 11 1998 462 466 (Pubitemid 28108366)
18. N. Kapur, I.B. Masters, P.A. Newcombe, and A.B. Chang The burden of disease in pediatric non-cystic fibrosis bronchiectasis Chest 141 2012 1018 1024
19. J.W. Varni, T.M. Burwinkle, and I.S. Szer The Peds QL Multidimensional Fatigue Scale in pediatric symptomatology J Rheumatol 31 2004 2494 2500 (Pubitemid 39603103)
20. J.W. Varni, M. Seid, and P.S. Kurtin PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations Med Care 39 2001 800 812 (Pubitemid 33686263)
21. J.R. Crawford, and J.D. Henry The Depression Anxiety Stress Scales (DASS): normative data and latent structure in a large non-clinical sample Br J Clin Psychol 42 2003 111 131 (Pubitemid 36781039)
22. B.G. Tabachnick, and L.S. Fidell Using multivariate statistics 3rd ed. 1996 Harper Collins New York
23. L. Kazis, J. Anderson, and R. Meenan Effect sizes for interpreting changes in health status Med Care 27 suppl 1989 S178 S189
24. K.W. Wyrwich Minimal important difference thresholds and the standard error of measurement: is there a connection? J Biopharm Stat 14 2004 97 110 (Pubitemid 38294754)
25. R. Shikiar, G. Harding, M. Leahy, and R.D. Lennox Minimal important difference (MID) of the Dermatology Life Quality Index (DLQI): results from patients with chronic idiopathic urticaria Health Qual Life Outcomes 3 2005 36 40
26. E.F. Juniper, G.H. Guyatt, A. Willan, and L.E. Griffith Determining a minimally important change in a disease-specific quality of life questionnaire J Clin Epidemiol 47 1994 81 87 (Pubitemid 24034293)
27. K.J. Yost, and D.T. Eton Combining distribution- and anchor-based approaches to determine minimally important differences: the FACIT experience Eval Health Prof 28 2005 172 191 (Pubitemid 40628906)
28. J. Lemieux, D.E. Beaton, S. Hogg-Johnson, L.J. Bordeleau, and P.J. Goodwin Three methods for minimally important difference: no relationship was found with the net proportion of patients improving J Clin Epidemiol 60 2007 448 455 (Pubitemid 46529142)
29. K.J. Yost, D.T. Eton, S.F. Garcia, and D. Cella Minimally important differences were estimated for six PROMIS-Cancer scales in advanced-stage cancer patients J Clin Epidemiol 64 2011 507 516
30. H.C. de Vet, B. Terluin, D.L. Knol, L.D. Roorda, L.B. Mokkink, and R.W. Ostelo Three ways to quantify uncertainty in individually applied "minimally important change" values J Clin Epidemiol 63 2010 37 45
31. J.J. Ware, M. Kosinski, and S.D. Keller A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity Med Care 34 1996 220 233 (Pubitemid 126433231)
32. A.B. Chang, P.D. Phelan, S.M. Sawyer, and C.F. Robertson Airway hyperresponsiveness and cough-receptor sensitivity in children with recurrent cough Am J Respir Crit Care Med 155 1997 1935 1939 (Pubitemid 27256122)
33. R.S. Irwin Assessing cough severity and efficacy of therapy in clinical research: ACCP evidence-based clinical practice guidelines Chest 129 suppl 2006 232S 237S (Pubitemid 43265227)
34. A.H. Morice, G.A. Fontana, M.G. Belvisi, S.S. Birring, K.F. Chung, and P.V. Dicpinigaitis ERS guidelines on the assessment of cough Eur Respir J 29 2007 1256 1276 (Pubitemid 46895388)
35. A.B. Chang, P.D. Phelan, C.F. Robertson, R.D.G. Roberts, and S.M. Sawyer Relation between measurements of cough severity Arch Dis Child 88 2003 57 60 (Pubitemid 36098967)
36. E.F. Juniper, G.H. Guyatt, D.H. Feeny, P.J. Ferrie, L.E. Griffith, and M. Townsend Measuring quality of life in children with asthma Qual Life Res 5 1996 35 46 (Pubitemid 26100501)
37. K.W. Wyrwich, and F.D. Wolinsky Identifying meaningful intra-individual change standards for health-related quality of life measures J Eval Clin Pract 6 2000 39 49 (Pubitemid 30182755)
38. K.W. Wyrwich, M. Bullinger, N. Aaronson, R.D. Hays, D.L. Patrick, and T. Symonds Estimating clinically significant differences in quality of life outcomes Qual Life Res 14 2005 285 295 (Pubitemid 40576381)
39. I.J. Higginson, and A.J. Carr Measuring quality of life: using quality of life measures in the clinical setting BMJ 322 2001 1297 1300 (Pubitemid 32493968)