The national plan for orphan rare diseases: Nearly 10 years on;Le plan national Maladies rares - Bientôt 10 ans

Revue Neurologique

Volumn 169, Issue SUPPL.1, 2013, Pages

  Guillevin, L ^a,b  

^a Institut Cochin   (France)

^b Centre de Reference Maladies Systemiques et Auto immunes Rares Vascularites et Sclerodermie   (France)

Author keywords

Orphan rare diseases; Reference centers; Research

Indexed keywords

ARTICLE; CLINICAL RESEARCH; GOVERNMENT; HUMAN; RARE DISEASE;

DATABASES, FACTUAL; FRANCE; GOVERNMENT PROGRAMS; HISTORY, 21ST CENTURY; HUMANS; INFORMATION DISSEMINATION; INFORMATION SERVICES; INTERNET; ORPHAN DRUG PRODUCTION; RARE DISEASES;

EID: 84875591859     PISSN: 00353787     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0035-3787(13)70053-5     Document Type: Article

References (5)

1. Orphanet. http://www.orphanet.fr
2. Alliance Maladies Rares. http://www.alliance-maladies-rares.org/
3. Fédération des Maladies Orphelines. www.fmo-afrg.com
4. EURORDIS http://www.eurordis.org/
5. Maladies Rares Info Service.0810 63 19 20- http://www.maladies.raresinfo. org/