Competitive adaptation: Biobanking and bioethical governance in China Medical City

East Asian Science, Technology and Society

Volumn 7, Issue 1, 2013, Pages 125-143

  Sleeboom Faulkner, Margaret ^a  

^a UNIVERSITY OF SUSSEX   (United Kingdom)

Author keywords

Bioethics; China; Competitive adaptation; Innovation; Moral economy

Indexed keywords

EID: 84875552529     PISSN: 18752160     EISSN: 18752152     Source Type: Journal    
DOI: 10.1215/18752160-2075670     Document Type: Article

References (70)

1. Adams, Vincenne, Kathleen Erwin, and Phudoc V. Le (2009). Public Health Works: Blood Donation in Urban China. Social Science and Medicine 68, no. 3: 410-448.
2. Bionet (2010). Bionet: Ethical Governance of Biological and Biomedical Research: Chinese-European Cooperation (http://www.bionet-china.org/, accessed 3 January 2013).
3. Bloom, Gerald, Barun Kanjilal, and David H. Peters (2008). Regulating Health Care Markets in China and India. Reform Goes Global 27, no. 4: 352-363.
4. Cerny, Philip G. (1995). Globalisation and the Changing Logic of Collective Action. International Organization 49, no. 4: 595-625.
5. Chen, Haidan, and Herbert Gottweis (2011). Stem Cell Treatments in China: Rethinking the Patient Role in the Global Bio-economy. Bioethics 17 November (http://onlinelibrary.wiley.com/doi/10.1111/j.1467-8519.2011.01929.x/abstract).
6. Dickenson, Donna (2007). Property in the Body: Feminist Perspectives. Cambridge: Cambridge University Press.
7. Dikötter, Frank (1992). The Discourse of Race in Modern China. London: Hurst.
8. Dikötter, Frank, ed. (1997). The Construction of Racial Identities in China and Japan: Historical and Contemporary Perspectives. London: Hurst.
9. Dikötter, Frank (1998). Imperfect Conceptions: Medical Knowledge, Birth Defects, and Eugenics in China. London: Hurst.
10. Fan, Ruiping, ed. (1999). Confucian Bioethics. Dordrecht: Kluwer.
11. Frank, Lone (2011). High-Quality DNA: In an Improbable Corner of China, Young Scientists Are Rewriting the Book on Genome Research. Newsweek 24 April (http://www.newsweek.com/2011/04/24/high-quality-dna.print.html).
12. Fukuyama, Francis (2003). Our Posthuman Future. New York: Picador.
13. Glanz, Karen, Michelle C. Kegler, and Barbara K. Rimer (2009). Ethical Issues in the Design and Conduct of Community-Based Intervention Studies. In Ethics and Epidemiology, edited by Steven S. Cougllin, Tom L. Beauchamp, and Douglas L. Weed, 103-146. Oxford: Oxford University Press.
14. GOV.cn (2006). China Issues S&T Development Guidelines. 26 February (http://www.gov.cn/english/2006-02/09/content_183787.htm).
15. Guo, Sunwei (2009). The "Gene War of the Century": A Cautionary Tale. Paper presented at Biobanking and Personal Genomics, Bionet Symposium, Shenzhen, China, 27-29 April.
16. Halpern, Nina (1992). Information Flows and Policy Coordination in the Chinese Bureaucracy. In Bureaucracy, Politics, and Decision Making in Post-Mao China, edited by Kenneth G. Lieberthal and David M. Lampton, 125-148. Berkeley: University of California Press.
17. Harris, Jennifer R., Paul Burton, Angela Brand, Anthony Brooks, Anne Cambon-Thomsen, Joakim Dillner, Jan-Eric Litton, Peter Riegman, Eero Vuorio, and Kurt Zatloucal (2008). Network Meeting for EUFunded Biobanking Projects: Report and Recommendations. Brussels, 15 December (ftp://ftp.cordis.europa.eu/pub/fp7/docs/report-meeting-eu-funded-biobanks_en.pdf).
18. Hay, Colin (2004). Re-stating Politics, Re-politicising the State: Neo-liberalism, Economic Imperatives, and the Rise of the Competition State. Political Quarterly 75, supp. 1: 38-50.
19. Hayden, Cori (2007). Taking as Giving: Bioscience, Exchange, and the Politics of Benefit-Sharing. Social Studies of Science 37, no. 5: 729-758.
20. Hennig, Wolfgang (2009). Research in China. Experiences from 23 Years of Molecular Genetics Research in Shanghai. Embo Reports 10, no. 6: 545-550.
21. Hill, R. H. (2007). The Emergence of Laboratory Safety. Journal of Chemical Health and Safety 14, no. 3: 14-19.
22. Holden, K., and David Demeritt (2008). Democratising Science? The Politics of Promoting Biomedicine in Singapore's Developmental State. Environment and Planning D: Society and Space 26, no. 1: 68-86.
23. Jessop, Bob (1993). Towards a Schumpeterian Workfare State? Preliminary Remarks on Post-Fordist Political Economy. Studies in Political Economy 40: 7-39.
24. Jonsen, Albert R. (1998). The Birth of Bioethics. New York: Oxford University Press.
25. Kiatpongsan, S. and D. Sipp (2009). Monitoring and Regulating Offshore Stem Cell Treatments. Science 323: 1564-1565.
26. Kohrman, Matthew (2005). Bodies of Difference: Experiences of Disability and Institutional Advocacy in the Making of Modern China. Berkeley: University of California Press.
27. Lenk, Christian, Judith Sandor, and Bert Gordijn (2011). Biobanks and Tissue Research. The Public, the Patient, and the Regulation. Dordrecht: Springer.
28. Li, Shaolian (1990). Shilun Huxia sanbuzu zai Zhongguo wenming shi zhong de zuoyong (Discussing the Influence of the Three Tribes of Huaxia on the History of Chinese Civilization). Zhongzhou Xuekan 3: 106-110.
29. Liu, Jianming, ed. (1993). Xuanchuan yulun da cidian (Big Dictionary for the Study of Public Opinion and Propaganda). Beijing: Jingji Ribao Chubanshe.
30. Liu, Yuanli, and Keqin Rao (2006). Providing Health Insurance in Rural China: From Research to Policy. Journal of Health Politics, Policy and Law 31, no. 1: 71-92.
31. Mao Zedong, Mao Tse-tung (1967). Some Questions Concerning Methods of Leadership (June 1943). In Selected Works of Mao Tse-tung, vol. 3. Peking: Foreign Language Press.
32. Masui, Tohru (2009). Trust and the Creation of Biobanks: Biobanking in Japan and the UK. In Human Genetic Biobanking in Asia, edited by Margaret Sleeboom-Faulkner, 66-91. London: Routledge.
33. Morioka, Masahiro (2004). Cross-Cultural Approaches to the Philosophy of Life in the Contemporary World: From Bioethics to Life Studies. In Genomics in Asia: A Clash of Bioethical Interests. Edited by Margaret Sleeboom, 179-199. London: Kegan Paul.
34. Palmer, Lyle J. (2007). UK Biobank: Bank on It. Lancet 369, no. 9578: 1980-1982.
35. Placid Way (2012). Center Profile: Beike Biotech. Placid Way (http://www.placidway.com/profile/971/Beike-Biotech, accessed 3 January 2013).
36. Pomfret, John, and Deborah Nelson (2000). An Isolated Region's Genetic Mother Lode. Washington Post 20 December.
37. Pun, Ngai (2003). Subsumption or Consumption? The Phantom of Consumer Revolution in "Globalizing" China. Cultural Anthropology 18, no. 4: 469-492.
38. Pusey, J. R. (1983). China and Charles Darwin. Cambridge MA: Harvard University Press.
39. Reynolds, Lucy, and Martin McKee (2009). Matching Supply and Demand for Blood in Guizhou Province, China: An Unresolved Challenge. Journal of Public Health 32, no. 1: 103-109.
40. Robertson, Jennifer (2005). Dehistoricizing History: The Ethical Dilemma of "East Asian Bioethics." Critical Asian Studies 37, no. 2: 233-250.
41. Robinson, Thomas W., and David Shambaugh, eds. (1995). Chinese Foreign Policy: Theory and Practice. Oxford: Oxford University Press.
42. Rose, Nikolas (2007). The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-First Century. Princeton, NJ: Princeton University Press.
43. Rothman, David (1991). Strangers at the Bedside: A History of How Law and Bioethics Transformed Medical Decision Making. London: Basic Books.
44. Sakamoto, Hyakudai (2004). Genome, Artificial Evolution, and Global Community. In Genomics in Asia: A Clash of Bioethical Interests, edited by Margaret Sleeboom, 135-144. London: Kegan Paul.
45. Salter, B., and Ren-Zong Qiu (2009). Bioethical Governance and Basis Stem Cell Science: China and the Global Biomedicine Economy. Science and Public Policy 36, no. 1: 47-59.
46. Salter, B., and C. Salter (2007). Bioethics and the Global Moral Economy: The Cultural Politics of Human Embryonic Stem Cell Science. Science, Technology and Human Values 32, no. 5: 554-581.
47. Shambaugh, David (1991). Beautiful Imperialist: China Perceives America, 1992-1990. Princeton, NJ: Princeton University Press.
48. Sleeboom, Margaret (1989). Evolutie en Revolutie in China, over het samenspel van maatschappelijke en wetenschappelijke denkbeelden en strategieen (Evolution and Revolution in China: On the Interplay of Social and Scientific Images and Strategies). M.A. thesis, University of Amsterdam.
49. Sleeboom, Margaret (2002). The Coherent Force of Struggle and Diversity in Chinese Socialism. Studies in Ethnicity and Nationalism 2, no. 1: 299-314.
50. Sleeboom, Margaret (2004). Academic Nations in China and Japan: Framed by Concepts of Nature, Culture and the Universal. London: RoutledgeCurzon.
51. Sleeboom-Faulkner, Margaret (2005). The Harvard Case of Xu Xiping: Exploitation of the People, Scientific Advance, or Genetic Theft? New Genetics and Society 20, no. 1: 57-87.
52. Sleeboom-Faulkner, Margaret (2006). How to Define a Population: Cultural Politics of Genetic Sampling in the People's Republic of China (PRC) and the Republic of China (ROC). Biosocieties 1, no. 4: 399-420.
53. Sleeboom-Faulkner, Margaret (2009). Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. London and New York: Routledge.
54. Sleeboom-Faulkner, Margaret (2010a). Eugenic Birth and Foetal Education: How Instructions for Premarital Testing in Mainland China Miss Their Target among Rural Households. China Journal 64: 121-141.
55. Sleeboom-Faulkner, Margaret (2010b). National Risk Signatures and Human Embryonic Stem Cell Research in Mainland China. Health, Risk and Society 12, no. 5: 491-511.
56. Sleeboom-Faulkner, Margaret, and P. K. Patra (2008). The Bioethical Vacuum: National Policies on Human Embryonic Stem Cell Research in India and China. Journal of International Biotechnology Law 5, no. 6: 221-234.
57. Tai, T. H., and W.-T. Chiou (2008). Equality and Community in Public Deliberation: Genetic Democracy in Taiwan. In Genetic Democracy, edited by Veikko Launis and Juha Räikkä, 105-120. Dordrecht: Springer.
58. Tao, Julia, ed. (2002). Cross-Cultural Perspectives on the (Im)Possibility of Global Bioethics. Dordrecht: Kluwer.
59. Toland, Poppy (2007). China Plans "Largest Gene Bank." BBC News 18 October (http://news.bbc.co.uk/1/hi/sci/tech/7046586.stm).
60. Wang, Jisi (1995). International Relations Theory and the Study of Chinese Foreign Policy: A Chinese Perspective. In Chinese Foreign Policy: Theory and Practice, edited by Thomas W. Robinson and David Shambaugh, 187-204. Oxford: Oxford University Press.
61. Wang, Mei-ling, Shuo Zhang, and Xiaowan Wang (2007). WTO, Globalization, and China's Health Care System. Houndmills, Basingstoke, UK: Palgrave Macmillan.
62. Wang, Xiaofeng, and Li Jin (2009). Cohort Profile: Taizhou Longitudinal Study-a Prospective Study of Non-communicable Diseases. In Ethical Governance of Biological and Biomedical Research: Chinese-European Co-operation, edited by Ole Doering, 39-48. London: Bionet (http://www3.lse.ac.uk/researchAndExpertise/units/BIONET/pdfs/BIONET_4th_Workshop_Report.pdf).
63. Wang, Xiaofeng, Ming Lu, Ji Qian, Yajun Yang, Shilin Li, Daru Lu, Shunzhang Yu, Wei Meng, Weimin Ye, and Li Jin (2009). Rationales, Design, and Recruitment of the Taizhou Longitudinal Study. BMCPublic Health 9: 233.
64. Winickoff, David E. (2008). From Benefit Sharing to Power Sharing. JSP/CSLS Working Paper, University of California, Berkeley (http://escholarship.org/uc/item/845393hh).
65. Wong, Joseph (2005). Re-making the Developmental State in Taiwan: The Challenges of Biotechnology. International Political Science Review 26, no. 2: 169-191.
66. Xiong, Lei, and Wang Yan (2001). Ling rensheng yi de guoji jiyin hezuo yanjiu xiangmu (Suspicious International Collaboration in Joint Genetic Research Projects). Liaowang (Outlook) 26 March.
67. Yan, Hairong (2003). Neoliberal Governmentality and Neohumanism: Organizing Suzhi/Value Flow through Labor Recruitment Networks. Cultural Anthropology 18, no. 4: 493-523.
68. Yang, Hsiu-I. (2007). The Use and Misuse of Informed Consent in Taiwan Biobank Debate. Paper presented at the annual meeting of the Law and Society Association, TBA, Berlin, 25 July (http://www.allacademic.com/meta/p181802_index.html).
69. Yang, Huanming (2003). Advances in Science and Progress of Humanity: A Global Perspective on DNA Sampling. In Population and Genetics: Legal and Socio-ethical Perspectives, edited by Bartha Maria Knoppers, 395-404. Leiden and Boston: Brill.
70. Yang, J. (2008). The Power Relationship between Doctors, Patients, and the Party-State under the Impact of Red Packets in the Chinese Health-Care System. PhD diss., University of New South Wales, Sydney.