Conceptualising and creating a global learning health system

International Journal of Medical Informatics

Volumn 82, Issue 4, 2013, Pages

  Friedman, Charles ^a   Rigby, Michael ^b  

^a UNIVERSITY OF MICHIGAN   (United States)

^b KEELE UNIVERSITY   (United Kingdom)

Author keywords

Co use of data; Ethics; Evidence based practice; Health informatics system; Health system; Learning organisation; Meaningful use

Indexed keywords

CO-USE OF DATA; ETHICS; EVIDENCE-BASED PRACTICES; HEALTH INFORMATICS; HEALTH SYSTEMS; LEARNING ORGANISATION; MEANINGFUL USE;

ECONOMICS; HEALTH CARE; OPTIMIZATION;

DIGITAL STORAGE;

ARTICLE; CONTINUING EDUCATION; ELECTRONIC MEDICAL RECORD; EUROPE; EVIDENCE BASED PRACTICE; HEALTH CARE; HEALTH CARE INDUSTRY; HEALTH CARE POLICY; HUMAN; MEDICAL INFORMATICS; NON PROFIT ORGANIZATION; PRIORITY JOURNAL; RECERTIFICATION; UNITED STATES; VOCATIONAL EDUCATION;

DELIVERY OF HEALTH CARE; EUROPE; INTERNATIONALITY; LEARNING; UNITED STATES;

EID: 84875373295     PISSN: 13865056     EISSN: 18728243     Source Type: Journal    
DOI: 10.1016/j.ijmedinf.2012.05.010     Document Type: Article

References (43)

1. OECD OECD Health Data 2011 2011, OECD, Paris, (available from: ; accessed 16.11.11).
2. Sackett D.L., William M.C., Rosenberg W.M.C., Muir Gray J.A., Haynes R.B., Richardson W.S. Evidence based medicine: what it is and what it isn't. BMJ 1996, 312:71.
3. Gorman P.J., Meier A.H., Rawn C., Krummel T.M. The future of medical education is no longer blood and guts, it is bits and bytes. Am. J. Surg. 2000, 180(November (5)):353-356.
4. Marinopoulos S.S., Dorman T., Ratanawongsa N., Wilson L.M., Ashar B.H., Magaziner J.L., Miller R.G., Thomas P.A., Prokopowicz G.P., Qayyum R., Bass E.B. Effectiveness of continuing medical education. Evid. Rep. Technol. Assess. (Full Rep.) 2007, (January (149)):1-69.
5. Abraham J., Lewis G. Harmonising and competing for medicines regulation: how healthy are the European Union's systems of drug approval?. Soc. Sci. Med. 1999, 48:1655-1667.
6. Abraham J. The pharmaceutical industry as a political player. Lancet 2002, 360(9344):1498-1502.
7. Ammenwerth E., Brender J., Nykänen P., Prokosch H.U., Rigby M., Talmon J. Visions and strategies to improve evaluation of health information systems. Reflections and lessons based on the HIS-EVAL workshop in Innsbruck. Int. J. Med. Inf. 2004, 73(June (6)):479-491. HIS-EVAL Workshop Participants.
8. Rigby M., Ammenwerth E., Talmon J., Nykänen P., Brender J., de Keizer N. Health Informatics 3.0 and other increasingly dispersed technologies require even greater trust: promoting safe evidence-based health informatics. IMIA Yearbook of Medical Informatics 2011 2011, 105-111. Schattauer, Stuttgart. A. Geissbuhler, C.A. Kulikowski (Eds.).
9. Institute of Medicine Health IT and Patient Safety: Building Safer Systems for Better Care 2011, National Academies Press, Washington, DC.
10. Balas E.A., Boren S.A. Managing clinical knowledge for health care improvement. Yearbook of Medical Informatics 2000: Patient-Centered Systems 2000, 65-70. Schattauer, Stuttgart. J. Bemmel, A.T. McCray (Eds.).
11. Argyris C. On Organizational Learning 1999, Blackwell Publishers Inc., Massachusetts.
12. O'Keeffe T. Organizational learning: a new perspective. J. Eur. Ind. Train. 2002, 26(2):130-141.
13. Wagner M.M., Robinson J.M., Tsui F.-C., Espino J.U., Hogan W.R. Design of a national retail data monitor for public health surveillance. J. Am. Med. Inform. Assoc. 2003, 10(5):409-418.
14. Hogan W.R., Tsui F.-C., Ivanov O., Gesteland P.H., Grannis S., Overhage J.M., Robinson J.M., Wagner M.M. Detection of pediatric respiratory and diarrheal outbreaks from sales of over-the-counter electrolyte products. J. Am. Med. Inform. Assoc. 2003, 10(6):555-562.
15. Digital Infrastructure for the Learning Health System-The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary 2011, National Academies Press, Washington, DC. C. Grossmann, B. Powers, McGinnis JM (Eds.).
16. Friedman C.P., Wong A., Blumenthal D. Achieving a nationwide learning health system. Sci. Transl. Med. 2010, 2(57):cm29.
17. HHS.gov. HHS Enterprise Information Technology Strategic Plan (Draft) 2011, United States Department of Health and Human Services, (Web ; accessed 07.12.11).
18. Public Law 111-5-American Recovery and Reinvestment Act of 2009, 111th Congress, Sec. 4101.
19. (accessed 07.12.11). http://www.cms.gov/EHRIncentivePrograms/30_Meaningful_Use.asp.
20. QueryHealth. Project Charter, 2011. Web (accessed 07.12.11). http://wiki.siframework.org/Query+Health+-+Project+Charter.
21. Platt R., Ross L., Yih K. Distributed data processing for public health surveillance. BMC Public Health 2006, 6:235.
22. Etheredge L.M. A rapid-learning health system. Health Aff. (Millwood) 2007, 26(2):w107-w118.
23. Budgen D., Rigby M., Brereton P., Turner M. A data integration broker for healthcare systems. IEEE Computer 2007, 40(April (4)):34-41.
24. Benitez K., Malin B. Evaluating re-identification risks with respect to the HIPAA privacy rule. J. Am. Med. Inform. Assoc. 2010, 17:169-177.
25. Northrop L., et al. Ultra-Large-Scale Systems: The Software Challenge of the Future 2006, Carnegie Mellon Software Engineering Institute, Carnegie Mellon University, Pittsburgh, PA.
26. Sullivan K. A Cyber-Social Systems Approach to the Engineering of Ultra-Large-Scale National Health Information Systems 2011, National Institute of Medicine, Washington, DC.
27. High-Value Health Care Project How Registries Can Help Performance Measurement Improve Care 2010, Engelberg Centre for Health Care Reform, The Brookings Institution, Washington, DC, (available from: ; accessed 25.11.11).
28. Backus L., Gavrilov S., Loomis T.P., Halloran J.P., Phillips B.R., Belperio P.S., Mole L.A. Clinical Case Registries: simultaneous local and national disease registries for population quality management. J. Am. Med. Inform. Assoc. 2009, 16:775-776.
29. Abernethy A.P., Etheredge L.M., Ganz P.A., Wallace P., German R.R., Neti C., Bach P.B., Murphy S.B. Rapid learning system for cancer care. J. Clin. Oncol. 2010, 28:4268-4274.
30. (accessed 25.11.11). http://ec.europa.eu/pharmaforum/index_en.htm.
31. (accessed 25.11.11). http://www.eunethta.eu/Public/Home/.
32. Fleming D.M., Schellevis F.G., Paget W.J. Health monitoring in sentinel practice networks-the contribution of primary care. Eur. J. Public Health 2003, 13(1):80-84.
33. De Lusignan S., Liaw S.-T., Krause P., Curcin V., Tristan Vicente M., Michalakidis g., Agreus L., Leysen P., Shaw N., Mendis K. Key concepts to assess the readiness of data for international research: data quality, lineage and provenance, extraction and processing errors, tracability and curation. IMIA Yearbook of Medical Informatics 2011 2011, 112-120. Schattauer, Stuttgart. A. Geissbuhler, C.A. Kulikowski (Eds.).
34. (accessed 16.11.11). http://137.73.82.45/Home.html.
35. (accessed 16.11.11). http://www.echo-health.eu/.
36. (accessed 25.11.11). http://www.atlasvpm.org/avpm/.
37. (accessed 25.11.11). http://www.epractice.eu/cases/healthatlas.
38. (accessed 16.11.11). http://www.hrb.ie/uploads/media/Health_Atlas_Ireland_part_I.pdf.
39. (accessed 16.11.11). http://hse.ie/eng/staff/Healthstat/about/.
40. (accessed 16.11.11). http://www.isdscotland.org/Products-and-Services/Data-Protection-and-Confidentiality/%23secondaryUse.
41. (accessed 16.11.11). http://www.isdscotland.org/About-ISD/Confidentiality/Research%20Using%20Personal%20Data_report.pdf.
42. (accessed 16.11.11). http://www.scot-ship.ac.uk/conference-2011.
43. Blumenthal D., Tavenner M. The 'Meaningful Use' regulation for electronic health records. N. Engl. J. Med. 2010, 363:501-504.