Differences in impact of long term caregiving for mentally ill older adults on the daily life of informal caregivers: A qualitative study

BMC Psychiatry

Volumn 13, Issue , 2013, Pages

  Zegwaard, Marian I ^a   Aartsen, Marja J ^b   Grypdonck, Mieke H F ^c   Cuijpers, Pim ^b  

^a Altrecht Mental Health Care ^*  (Netherlands)

^b VU UNIVERSITY AMSTERDAM   (Netherlands)

^c GHENT UNIVERSITY   (Belgium)

Author keywords

Gain; Informal caregiver; Loss; Mental illness; Older adults; Psychiatric nursing

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CAREGIVER BURDEN; FEMALE; FREEDOM; HUMAN; LONG TERM CARE; MALE; MENTAL DISEASE; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL WELL BEING; QUALITATIVE RESEARCH; QUALITY OF LIFE; SEMI STRUCTURED INTERVIEW;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CAREGIVERS; COST OF ILLNESS; FEMALE; HUMANS; MALE; MENTALLY ILL PERSONS; MIDDLE AGED; QUALITATIVE RESEARCH; QUALITY OF LIFE; SELF CONCEPT; STRESS, PSYCHOLOGICAL;

EID: 84875359619     PISSN: None     EISSN: 1471244X     Source Type: Journal    
DOI: 10.1186/1471-244X-13-103     Document Type: Article

References (35)

1. Rose LE, Mallison RK, Walton-Moss B. A grounded theory of families responding to mental illness. West J Nurs Res 2002, 24:516-536.
2. Muhlbauer SA. Navigating the storm of mental illness: phases in the family's journey. Qual Health Res 2002, 12:1076-1092. 10.1177/104973202129120458, 12365589.
3. Biegel DE, Schulz R. Caregiving and caregiver interventions in aging and mental illness. Fam Relat 1999, 48:345-354.
4. Montgomery RJV, Gonyea JG, Hooyman NR. Caregiving and the experience of subjective and objective burden. Fam Relat 1985, 34:19-26.
5. Magliano L, Tosini P, Guarneri M, Marasco C, Catapano F. Burden on the family of care-receivers with obsessive-compulsive disorder: a pilot study. Eur Psychiatry 1996, 11:192-197. 10.1016/0924-9338(96)88390-8, 19698449.
6. Sisk RJ. Caregiver burden and health promotion. Int J Nurs Stud 2000, 37:37-43. 10.1016/S0020-7489(99)00053-X, 10687808.
7. Ohaeri JU. The burden of caregiving in families with a mental illness: a review of 2002. Curr Opin Psychiatry 2003, 16:457-465.
8. Pearlin LI, Lieberman MA, Menaghan EG, Mullan JT. The stress process. J Health Soc Behav 1981, 22:337-356. 10.2307/2136676, 7320473.
9. Lazarus RS, Folkman S. Stress, Appraisal and Coping 1984, New York: Springer Publishing Company.
10. Chappell NL, Reid R. Burden and well-being among caregivers: examining the distinction. Gerontologist 2002, 42:772-780. 10.1093/geront/42.6.772, 12451158.
11. Zegwaard MI, Aartsen MJ, Grypdonck MHF, Cuijpers P. Perceived burden of informal caregivers of elderly persons with a severe functional psychiatric syndrome and concomitant problematic behaviour: A conceptual model. J Clin Nurs 2011, 20:2233-2258. 10.1111/j.1365-2702.2010.03524.x, 21332854.
12. Thompson EH, Doll W. The burden of families coping with the mentally Ill: an invisible crisis. Fam Relat 1982, 31:379-388.
13. Noh S, Turner RJ. Living with psychiatric patients: implications for the mental health of family members. Soc Sci Med 1987, 25:263-271. 10.1016/0277-9536(87)90229-2, 3629300.
14. Solomon P, Draine J. Examination of grief among family members of individuals with serious and persistent mental illness. Psychiatr Q 1996, 67:221-234. 10.1007/BF02238953, 8829245.
15. Mannion E. Resilience and burden in spouses of people with mental illness. Psychiatr Rehabil J 1996, 20:13-23.
16. Stroup TS, Morrissey JP, Ellis AR, Blank M. Correlates of family burden under medicaid managed mental health care. Adm Policy Ment Health 2002, 29:117-128.
17. Hunt CK. Concepts in care giving research. J Nurs Scholarsh 2003, 35:27-32. 10.1111/j.1547-5069.2003.00027.x, 12701523.
18. Pinquart M, Sörensen S. Associations off stressors and uplifts of care giving with caregiver burden and depressive mood: a meta-analysis. J Gerontol Psychol Sci 2003, 2:112-128.
19. Angermeyer MC, Matthias C, Reinhold K, Wilms HU, Wittmund B. Quality of life of spouses of mentally ill people. Int J Soc Psychiatry 2006, 52:278-285. 10.1177/0020764006067186, 16875199.
20. Rose LE, Mallinson R, Gerson LD. Mastery, Burden and Areas of Concern among Family Caregivers of Mentally Ill Care-receivers. Arch Psychiatr Nurs 2006, 20:41-51. 10.1016/j.apnu.2005.08.009, 16442473.
21. Jeon Y, Madjar I. Caring for a family member with chronic mental illness. Qual Health Res 1998, 8:694-706. 10.1177/104973239800800509, 10621569.
22. Marsh DT, Lefley HP, Evans-Rhodes D, Ansell VI, Doerzbacher B, LaBarbera L, Paluzzi JE. The family experience of mental illness: evidence for resilience. Psychiatr Rehabil J 1996, 20:3-12.
23. Karp D, Tanarugsachock V. Mental illness, caregiving and emotion management. Qual Health Res 2000, 10:6-25. 10.1177/104973200129118219, 10724753.
24. Jones SL, David W. Families and serious mental illness: working with loss and ambivalence. Br J Soc Work 2004, 34:961-979.
25. Morse JM, Barrett M, Mayan M, Olson K, Spiers J. Verification strategies for establishing reliability and validity in qualitative research. Int J Qual Meth 2002, 1(2).
26. Annells M. Triangulation of qualitative approaches: hermeneutical phenomenology and grounded theory. J Adv Nurs 2006, 56:55-61. 10.1111/j.1365-2648.2006.03979.x, 16972918.
27. Wester FPJ. Strategieën voor kwalitatief onderzoek. [Strategies for Qualitative Research] 1995, Bussum: Coutinho, 1.
28. Boeije H. Analysing qualitative research. Thinking and acting 2006, The Hague: Boom publishers.
29. Schötzel-Dorenbos CJM, Meeusen EJ, Olde Rikkert MGM. Integrating unmet needs into dementia health-related quality of life research and care: Introduction of the Hierarchy Model of Needs in Dementia. Aging Ment Health 2010, 14:113-119. 10.1080/13607860903046495, 20155528.
30. Vernooij-Dassen M, Leatherman S, Olde Rikkert MGM. Quality of care in frail older people: the fragile balance between receiving and giving. Br Med J 2011, 342:d403.
31. Wynaden D. The experience of caring for a person with a mental illness: a grounded theory study. Int J Ment Health Nurs 2007, 16:381-389. 10.1111/j.1447-0349.2007.00493.x, 17995509.
32. de Vugt M. Influence of caregiver management strategies on care-receiver behavior in dementia. Int J Geriatr Psychiatry 2004, 19:85-92. 10.1002/gps.1044, 14716704.
33. Kooiker S, de Boer A. Portraits of informal carers 2008, The Hague: The Netherlands Institute for Social Research.
34. Albee GW. A competency model must replace a defect model. Readings in primary prevention of psychopathology: Basic concepts 1984, 228-246. Hanover NH: University Press of New England, Joffe JM, Albee GW, Kelly LD.
35. Kanuha VK. 'Being native versus going native': conducting social work research as an Insider. Soc Work 2005, 5:439-447.