Changes in quality of life into adulthood after very preterm birth and/or very low birth weight in the Netherlands

Health and Quality of Life Outcomes

Volumn 11, Issue 1, 2013, Pages

  van Lunenburg, Afra ^a   van der Pal, Sylvia M ^a   van Dommelen, Paula ^a   van der Pal de Bruin, Karin M ^a   Bennebroek Gravenhorst, Jack ^a   Verrips, Gijsbert H W ^a  

^a TNO   (Netherlands)

Author keywords

Adulthood; Health Related Quality of Life; Very low birth weight; Very preterm birth

Indexed keywords

ADULT; ADULTHOOD; ARTICLE; COHORT ANALYSIS; FEMALE; GESTATIONAL AGE; HEALTH UTILITIES INDEX; HUMAN; INFANT; LONDON HANDICAP SCALE; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; NETHERLANDS; PREMATURITY; QUALITY OF LIFE; SCORING SYSTEM; SMALL FOR DATE INFANT; VERY LOW BIRTH WEIGHT;

ADULT; AGE FACTORS; FEMALE; HUMANS; INFANT, EXTREMELY PREMATURE; INFANT, NEWBORN; INFANT, VERY LOW BIRTH WEIGHT; MALE; NETHERLANDS; QUALITY OF LIFE; QUESTIONNAIRES; YOUNG ADULT;

EID: 84875284374     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-11-51     Document Type: Article

References (25)

1. Stoelhorst GMSJ, Rijken M, Martens SE, Brand R, den Ouden AL, Wit JM, Veen S. Changes in neonatology: Comparison of two cohorts of very preterm infants (gestational age <32 weeks): The project on preterm and small for gestational age infants 1983 and the Leiden follow-up project on prematurity 1996-1997. Pediatr 2005, 115:396-405.
2. Tyson JE, Saigal S. Outcomes for extremely low-birth-weight infants: disappointing news. JAMA 2005, 294(3):371-373. 10.1001/jama.294.3.371, 16030284.
3. Stichting Perinatale Registratie Nederland Perinatale Zorg in Nederland 2008 2011, Utrecht: Stichting Perinatale Registratie Nederland, Stichting Perinatale Registratie Nederland.
4. Hille ET, Weisglas-Kuperus N, van Goudoever JB, Jacobusse GW, Ens-Dokkum MH, de Groot L, Wit JM, Geven WB, Kok JH, de Kleine MJ, Kollée LA, Mulder AL, van Straaten HL, de Vries LS, van Weissenbruch MM, Verloove-Vanhorick SP. Functional outcomes and participation in young adulthood for very preterm and very low birth weight infants: The Dutch project on preterm and small for gestational age infants at 19 years of age. Pediatr 2007, 120(3):e587-e595.
5. Lorenz JM. Management decisions in extremely premature infants. Semin Neonatol 2003, 8(6):475-482. 10.1016/S1084-2756(03)00118-0, 15001120.
6. Verrips E, Vogels T, Saigal S, Wolke D, Meyer R, Hoult L, Verloove-Vanhorick SP. Health-related quality of life for extremely low birth weight adolescents in Canada, Germany, and the Netherlands. Pediatr 2008, 122(3):556-561.
7. van Dommelen P, van Straaten HLM, Verkerk PH. Ten-year quality assurance of the nationwide hearing screening programma in Dutch neonatal intensive care units. Acta Paediatricia 2011, 100(8):1097-1103.
8. Bocca-Tjeertes IFA, van Buuren S, Bos AF, Kerstjens JM, ten Vergert EM, Reijneveld SA. Growth of preterm and full-term children aged 0-4 years: Integrating median growth and variability in growth charts. J Pediatr 2012, 161(3):460-465. 10.1016/j.jpeds.2012.03.016, 22513269.
9. Zwicker JG, Harris SR. Quality of life of formerly preterm and very low birth weight infants from preschool age to adulthood: A systematic review. Pediatr 2008, 121(2):e366-376.
10. World Health Organization Constitution of the World Health Organization 1948, Geneva, Switzerland: World Health Organization, World Health Organization.
11. Saigal S, Feeny D, Furlong W, Rosenbaum P, Burrows E, Torrance G. Comparison of the health-related quality of life of extremely low birth weight children and a reference group of children at age eight years. J Pedr 1994, 125(3):418-425.
12. Verloove-Vanhorick SP, Verwey RA, Brand R, Bennebroek Gravenhorst J, Keirse MJNC, Ruys JH. Neonatal mortality in relation to gestational age and birth weight. Results of a national survey of preterm and very-low-birth weight infants in the Netherlands. Lancet 1986, 1(8472):55-57.
13. Carbone JF, Tuuli MG, Bradshaw R, Liebsch J, Odibo AO. Efficiency of first-trimester growth restriction and low pregnancy-associated plasma protein-A in predicting small for gestational age at delivery. Prenat Diagn 2012, 32(8):724-729. 10.1002/pd.3891, 22553082.
14. Verrips GHW, Brouwer L, Vogels T, Taal E, Drossaert CHC, Feeny D, Verheijden M, Verloove-Vanhorick PS. Long term follow-up of health-related quality of life in young adults born very preterm or with a very low birth weight. Health Qual Life Outcomes 2012, 10(1):49. 10.1186/1477-7525-10-49, 3439348, 22587364.
15. Horsman J, Furlong W, Feeny D, Torrance G. The Health Utilities Index (HUI(R)): concepts, measurement properties and applications. Health Qual Life Outcomes 2003, 1:54. 10.1186/1477-7525-1-54, 293474, 14613568.
16. Feeny D, Furlong W, Torrance GW, Goldsmith CH, Zhu Z, de Pauw S, Denton M, Boyle M. Multiattribute and single-attribute utility functions for the health utilities index mark 3 system. Med Care 2002, 40(2):113-128. 10.1097/00005650-200202000-00006, 11802084.
17. Harwood RH, Rogers A, Dickinson E, Ebrahim S. Measuring handicap: the London handicap scale, a new outcome measure for chronic disease. Qual Health Care 1994, 3(1):11-16. 10.1136/qshc.3.1.11, 1055176, 10171955.
18. Groothuis-Oudshoorn CGM, Chorus AMJ, Taeke van Beekum W, Detmar SB, van den Hout WB. Modelling and estimation of valuations for the Dutch London Handicap Scale. J Heal Econ 2006, 25:1119-1138.
19. World Health Organization WHOQOL-BREF: Introduction, administration, scoring and generic version of the assessment 1996, Geneva, Switzerland: World Health Organization, World Health Organization.
20. van Buuren S. Flexible imputation of missing data 2012, Boca Raton: Chapman & Hall/CRC Press.
21. Feng Y, Bernier J, McIntosh C, Orpana H. Validation of disability categories derived from health utilities index mark 3 scores. Health Rep 2009, 20(2):1-8.
22. Saigal S, Stoskopf B, Pinelli J, Streiner D, Hoult L, Paneth N, Goddeeris J. Self- perceived health-related quality of life of former extremely low birth weight infants at young adulthood. Pediatr 2006, 118:1140-1148.
23. Pogany L, Barr RD, Shaw A, Speechley KN, Barrera M, Maunsell E. Health status in survivors of cancer in childhood and adolescence. Qual Life Res 2006, 15(1):143-157. 10.1007/s11136-005-0198-7, 16411038.
24. Aigner M, Förster-Streffleur S, Prause W, Freidl M, Weiss M, Bach M. What does the WHOQOL-Bref measure? Measurement overlap between quality of life and depressive symptomatology in chronic somatoform pain disorder. Soc Psychiatry Psychiatr Epidemiol 2006, 41:81-86. 10.1007/s00127-005-0997-8, 16341612.
25. Hille ETM, Elbertse MD, Bennebroek Gravenhorst J, Brand R, Verloove-Vanhorick SP. Nonresponse bias in a follow-up study of 19-year-old adolescents born as preterm infants. Pediatr 2005, 116(5):662-666.