Towards a more liveable life for close relatives of individuals diagnosed with bipolar disorder

International Journal of Mental Health Nursing

Volumn 22, Issue 2, 2013, Pages 162-169

  Rusner, Marie ^a,b   Carlsson, Gunilla ^a   Brunt, David ^b   Nyström, Maria ^a  

^a UNIVERSITY OF BORÅS   (Sweden)

^b LINNAEUS UNIVERSITY   (Sweden)

Author keywords

Bipolar disorder; Close relatives; Phenomenology

Indexed keywords

ADULT; AGED; ANXIETY DISORDER; ARTICLE; BIPOLAR DISORDER; CAREGIVER; COPING BEHAVIOR; COST OF ILLNESS; DAILY LIFE ACTIVITY; DEPRESSION; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; NURSING; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SOCIAL DISTANCE; SOCIAL SUPPORT; SWEDEN; YOUNG ADULT;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; ANXIETY DISORDERS; BIPOLAR DISORDER; CAREGIVERS; COMMUNICATION; COST OF ILLNESS; DEPRESSIVE DISORDER; FEMALE; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; RESILIENCE, PSYCHOLOGICAL; SOCIAL DISTANCE; SOCIAL SUPPORT; SWEDEN; YOUNG ADULT;

EID: 84875035366     PISSN: 14458330     EISSN: 14470349     Source Type: Journal    
DOI: 10.1111/j.1447-0349.2012.00852.x     Document Type: Article

References (36)

1. Baker, J. A. (2001). Bipolar disorders: An overview of current literature. Journal of Psychiatric and Mental Health Nursing, 8, 437-441.
2. Baker, J. A. (2002). The service and illness experiences described by users of the mood swings network. Journal of Mental Health, 11, 453-463.
3. Baronet, A.-M. (1999). Factors associated with caregiver burden in mental illness: A critical review of the research literature. Clinical Psychology Review, 19, 819-841.
4. Dahlberg, K., Segesten, K., Nyström, M., Suserud, B.-O.& Fagerberg, I. (2003). Att förstå vårdvetenskap. Lund: Studentlitteratur.
5. Dahlberg, K., Dahlberg, H.& Nyström, M. (2008). Reflective Lifeworld Research. Lund: Studentlitteratur.
6. Dore, G.& Romans, S. E. (2001). Impact of bipolar affective disorder on family and partners. Journal of Affective Disorders, 67, 147-158.
7. Elgie, R.& Morselli, P. L. (2007). Social functioning in bipolar patients: The perception and perspective of patients, relatives and advocacy organizations - a review. Bipolar Disorders, 9, 144-157.
8. Ewertzon, M., Andershed, B., Svensson, E.& Lützén, K. (2011). Family member's expectation of the psychiatric healthcare professionals' approach towards them. Journal of Psychiatric and Mental Health Nursing, 18, 146-157.
9. Goossens, P. J. J., Van Wijngaarden, B., Knoppert-Van Der Klein, E. A. M.& Van Achterberg, T. (2008b). Family caregiving in bipolar disorder: Caregiver consequences, caregiver coping styles, and caregiver distress. International Journal of Social Psychiatry, 54, 303-316.
10. Hill, R. G., Shepherd, G.& Hardy, P. (1998). In sickness and in health: The experiences of friends and relatives caring for people with manic depression. Journal of Mental Health, 7, 611-620.
11. Jönsson, P. D., Skärsäter, I., Wijk, H.& Danielson, E. (2011a). Experience of living with a family member with bipolar disorder. International Journal of Mental Health Nursing, 20, 29-37.
12. Jönsson, P. D., Wijk, H., Danielson, E.& Skärsäter, I. (2011b). Outcomes of an educational intervention for the family of a person with bipolar disorder: A 2-year follow-up study. Journal of Psychiatric and Mental Health Nursing, 18, 333-341.
13. Jubb, M.& Shanley, E. (2002). Family involvement: The key to opening locked wards and closed minds. International Journal of Mental Health Nursing, 11, 47-53.
14. Karlsson, B. (2006). Jeg kjenner det bruser i meg - pasientkunnskap om mani som fenomen og lidelse. Vård I Norden, 3, 39-43.
15. Miklowitz, D. J., George, E. L., Richards, J. A., Simoneau, T. L.& Suddath, R. L. (2003). A randomized study of familyfocused psychoeducation and pharmacotherapy in the outpatient management of bipolar disorder. Archives of General Psychiatry, 60, 904-912.
16. Ogilvie, A. D., Morant, N.& Goodwin, G. M. (2005). The burden on informal caregivers of people with bipolar disorder. Bipolar Disorders, 7, 25-32.
17. Perlick, D. A., Hohenstein, J. M., Clarkin, J. F., Kaczynski, R.& Rosenheck, R. A. (2005). Use of mental health and primary care services by caregivers of patients with bipolar disorder: A preliminary study. Bipolar Disorders, 7, 126-135.
18. Perlick, D. A., Rosenheck, R. A., Miklowitz, D. J. et al.& the STEP-BD Family Experience Collaborative Study Group (2007). Prevalence and correlates of burden among caregivers of patients with bipolar disorder enrolled in the systematic treatment enhancement program for bipolar disorder. Bipolar Disorders, 9, 262-273.
19. Post, R. (2005). The impact of bipolar depression. Journal of Clinical Psychiatry, 66, 5-10.
20. Rea, M. M., Tompson, M. C., Miklowitz, D. J., Goldstein, M. J., Hwang, S.& Mintz, J. (2003). Family-focused treatment versus individual treatment for bipolar disorder: Results of a randomized clinical trial. Journal of Consulting and Clinical Psychology, 71, 482-492.
21. Reinares, M., Vieta, E.& Colom, F. (2004). Impact of a psychoeducational family intervention on caregivers of stabilized bipolar patients. Psychotherapy and Psychosomatics, 73, 312-319.
22. Reinares, M., Vieta, E., Colom, F. et al. (2006). What really matters to bipolar patients' caregivers: Sources of family burden. Journal of Affective Disorders, 94, 157-163.
23. Reinares, M., Colom, F., Sánchez-Moreno, J. et al. (2008). Impact of caregiver group psychoeducation on the course and outcome of bipolar patients in remission: A randomized controlled trial. Bipolar Disorders, 10, 511-519.
24. Rose, L. E., Mallinson, R. K.& Gerson, L. D. (2006). Mastery, burden, and areas of concern among family caregivers of mentally ill persons. Archives of Psychiatric Nursing, 20, 41-51.
25. Rusner, M., Carlsson, G., Brunt, D.& Nyström, M. (2009). Extra dimensions in all aspects of life-the meaning of life with bipolar disorder. International Journal of Qualitative Studies on Health and Well-Being, 4, 159-169.
26. Rusner, M., Carlsson, G., Brunt, D.& Nyström, M. (2010). A dependence that empowers - the meaning of the conditions that enable a good life with bipolar disorder. International Journal of Qualitative Studies on Health and Well-Being, 5, 10.3402/qhw.v5i1.4653.
27. Rusner, M., Carlsson, G., Brunt, D.& Nyström, M. (2012). The paradox of being both needed and rejected: The existential meaning of being closely related to a person with bipolar disorder. Issues in Mental Health Nursing, 33, 200-208.
28. Shanley, E.& Jubb-Shanley, M. (2007). The recovery alliance theory of mental health nursing. Journal of Psychiatric and Mental Health Nursing, 14, 734-743.
29. Shanley, E., Jubb, M.& Latter, P. (2003). Partnership in coping: An Australian system of mental health nursing. Journal of Psychiatric and Mental Health Nursing, 10, 431-441.
30. Steele, A., Maruyama, N.& Galynker, I. (2010). Psychiatric symptoms in caregivers of patients with bipolar disorder: A review. Journal of Affective Disorders, 121, 10-21.
31. Tranvåg, O.& Kristoffersen, K. (2008). Experience of being the spouse/cohabitant of a person with bipolar affective disorder: A cumulative process over time. Scandinavian Journal of Caring Sciences, 22, 5-18.
32. Tsang, H. W. H., Tam, P. K. C., Chan, F.& Chang, W. M. (2003). Sources of burdens on families of individuals with mental illness. International Journal of Rehabilitation Research, 26, 123-130.
33. Van Der Voort, T. Y. G., Goossens, P. J. J.& Van Der Bijl, J. J. (2007). Burden, coping and needs for support of caregivers for patients with a bipolar disorder: A systematic review. Journal of Psychiatric and Mental Health Nursing, 14, 679-687.
34. Veltman, A., Cameron, J. I.& Stewart, D. E. (2002). The experience of providing care to relatives with chronic mental illness. The Journal of Nervous and Mental Disease, 190, 108-114.
35. van der Voort, T. Y. G., Goossens, P. J. J.& van der Bijl, J. J. (2009). Alone together: A grounded theory study of experienced burden, coping, and support needs of spouses of persons with a bipolar disorder. International Journal of Mental Health Nursing, 18, 434-443.
36. WMA (2009). World Medical Association declaration of Helsinki. Ethical principles for medical research involving human subjects. Revised version 2009. [Cited Oct 2011]. Available from: URL: http://www.wma.net.