Caring for caregivers: Designing for integrality

Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW

Volumn , Issue , 2013, Pages 91-102

  Chen, Yunan ^a,b   Ngo, Victor ^a   Park, Sun Young ^a  

^a 5226 Donald Bren Hall   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Caregiver; Caregiving; Health and wellness; Healthcare technology; Integrality; Invisibility

Indexed keywords

CAREGIVER; CAREGIVING; HEALTH AND WELLNESS; HEALTHCARE TECHNOLOGY; INTEGRALITY; INVISIBILITY;

HEALTH; HEALTH CARE; INTERACTIVE COMPUTER SYSTEMS;

COMPUTER SUPPORTED COOPERATIVE WORK;

EID: 84874898025     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: 10.1145/2441776.2441789     Document Type: Conference Paper

References (31)

1. Chiu, T. and Massimi, M. A Digital Support Device Designed to Help Family Caregivers Coordinate, Communicate and Plan the Care of People with Brain Injury. AMIA Annual Symposium, (2006), 884.
2. Cohen, C.A., Colantonio, A., and Vernich, L. Positive aspects of caregiving: rounding out the caregiver experience. International journal of geriatric psychiatry. 17, 2 (2002), 184-188.
3. Consolvo, S., Roessler, P., Shelton, B.E., LaMarca, A., Schilit, B., and Bly, S. Technology for care networks of elders. Pervasive Computing, IEEE 3, 2 (2004), 22 -29.
4. Corbin, J.M. and Strauss, A.C. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Sage Publications, Inc, 1998.
5. Czaja, S.J. and Rubert, M.P. Telecommunications technology as an aid to family caregivers of persons with dementia. Psychosomatic medicine 64, 3 (2002), 469-476.
6. Dawe, M. Understanding mobile phone requirements for young adults with cognitive disabilities. ACM ACCESS conference on Computers and accessibility. (2007), 179-186.
7. Duncan, J., Camp, L.J., and Hazelwood, W.R. The portal monitor: a privacy-enhanced event-driven system for elder care. International Conference on Persuasive Technology. (2009), 36:1-9.
8. Gallienne, R.L., Moore, S.M., and Brennan, P.F. Alzheimer's caregivers. Psychosocial support via computer networks. Journal of gerontological nursing. 19, 12 (1993), 15-22.
9. George, L.K. and Gwyther, L.P. Caregiver Weil-Being: A Multidimensional Examination of Family Caregivers of Demented Adults. The Gerontologist 26, 3 (1986), 253-259.
10. Glaser, B.G. and Strauss, A.L. The discovery of grounded theory: Strategies for qualitative research. Aldine de Gruyter, Hawthorne, NY, 1967.
11. Greenwood, N., Mackenzie, A., Cloud, G.C., and Wilson, N. Informal carers of stroke survivors-factors influencing carers: a systematic review of quantitative studies. Disability and rehabilitation 30, 18 (2008), 1329-1349.
12. Grunfeld, E., Coyle, D., Whelan, T., et al. Family Caregiver Burden: Results of a Longitudinal Study of Breast Cancer Patients and Their Principal Caregivers. Canadian Medical Association Journal 170, 12 (2004), 1795-1801.
13. Hudson, P. Positive aspects and challenges associated with caring for a dying relative at home. International journal of palliative nursing 10, 2 (2004), 58-65.
14. Huh, J., Patel, R., and Pratt, W. Tackling dilemmas in supporting 'the whole person' in online patient communities. CHI conference on Human factors in computing systems. (2012), 923-926.
15. Kobayashi, Y., Kinpara, Y., Takano, E., Kuno, Y., Yamazaki, K., and Yamazaki, A. Robotic wheelchair moving with caregiver collaboratively depending on circumstances. CHI '04 extended abstracts on Human factors in computing systems, (2011), 2239-2244.
16. Ling, R. The Mobile Connection: The Cell Phone's Impact on Society. Morgan Kaufmann, 2004.
17. Liu, L.S., Hirano, S.H., Tentori, M., et al. Improving communication and social support for caregivers of high-risk infants through mobile technologies. Conference on Computer supported cooperative work. (2011), 475-484.
18. Loh, J., Schietecat, T., Kwok, T.F., Lindeboom, L., and Joore, P. Technology applied to address difficulties of Alzheimer patients and their partners. Proceedings of the conference on Dutch directions in HCI. (2004), 18- 22.
19. Mamykina, L., Mynatt, E., Davidson, P., and Greenblatt, D. MAHI: investigation of social scaffolding for reflective thinking in diabetes management. CHI conference on Human factors in computing systems. (2008). 477-486.
20. Montgomery, R.J.V., Gonyea, J.G., and Hooyman, N.R. Caregiving and the Experience of Subjective and Objective Burden. Family Relations 34, 1 (1985), 19- 26.
21. Morris, M., Lundell, J., and Dishman, E. Catalyzing social interaction with ubiquitous computing: a needs assessment of elders coping with cognitive decline. CHI extended abstracts on Human factors in computing systems, (2004), 1151-1154.
22. Mynatt, E.D., Rowan, J., Craighill, S., and Jacobs, A. Digital family portraits: supporting peace of mind for extended family members. CHI conference on Human factors in computing systems, (2001), 333-340.
23. Nardi, B.A., Schiano, D.J., Gumbrecht, M., and Swartz, L. Why we blog. Commun. ACM 47, 12 (2004), 41-46.
24. Pratt, W., Unruh, K., Civan, A., and Skeels, M.M. Personal health information management. Commun. ACM 49, 1 (2006), 51-55.
25. Peacock, S., Forbes, D., Markle-Reid, M., et al. The Positive Aspects of the Caregiving Journey With Dementia: Using a Strengths-Based Perspective to Reveal Opportunities. Journal of Applied Gerontology, 29, 5, (2010). 640-659.
26. Schulz, R. and Beach, S.R. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA: the journal of the American Medical Association 282, 23 (1999), 2215-2219.
27. Schulz, R., O'Brien, A.T., Bookwala, J., and Fleissner, K. Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. The Gerontologist 35, 6 (1995), 771-791.
28. Siek, K.A., Khan, D.U., Ross, S.E., Haverhals, L.M., Meyers, J., and Cali, S.R. Designing a personal health application for older adults to manage medications: a comprehensive case study. Journal of medical systems 35, 5 (2011), 1099-1121.
29. Star, S.L. and Strauss, A. Layers of Silence, Arenas of Voice: The Ecology of Visible and Invisible Work. Comput. Supported Coop. Work 8, 1-2 (1999), 9-30.
30. Strauss, A., Fagerhaugh, S., Suczek, B., and Wiener, C. Social Organization of Medical Work. University of Chicago, Chicago, 1985.
31. Suchman, L. Making work visible. Commun. ACM 38, 9 (1995), 56-64.