Sensibility assessment of the HIV Disability Questionnaire

Disability and Rehabilitation

Volumn 35, Issue 7, 2013, Pages 566-577

  O'Brien, Kelly K ^a,b   Bayoumi, Ahmed M ^c,d,e   Bereket, Tarik ^a,b   Swinton, Marilyn ^a   Alexander, Rob ^f   King, Kenneth ^g   Solomon, Patricia ^a  

^a MCMASTER UNIVERSITY   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c ST MICHAEL'S HOSPITAL   (Canada)

^d UNIVERSITY OF TORONTO   (Canada)

^e UNIVERSITY OF TORONTO   (Canada)

^f HIVER Consulting   (Canada)

^g Canadian Working Group on HIV and Rehabilitation   (Canada)

Author keywords

Disability evaluation; HIV Disability Questionnaire; HIV AIDS; Reliability and validity; Sensibility

Indexed keywords

ADULT; ARTICLE; DISABILITY; DISABLED PERSON; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERVIEW; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUESTIONNAIRE; REPRODUCIBILITY; SEVERITY OF ILLNESS INDEX;

ADULT; DISABILITY EVALUATION; DISABLED PERSONS; FEMALE; HIV INFECTIONS; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SEVERITY OF ILLNESS INDEX;

EID: 84874643360     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2012.702848     Document Type: Article

References (45)

1. Weiss JJ, Osorio G, Ryan E, Marcus SM, Fishbein DA. Prevalence and patient awareness of medical comorbidities in an urban AIDS clinic. AIDS Patient Care STDS 2010;24:39-48.
2. Willard S, Holzemer WL, Wantland DJ, Cuca Y P, Kirksey KM, Portillo CJ, Corless IB, et al. Does "asymptomatic" mean without symptoms for those living with HIV infection? AIDS Care 2009;21:322-328.
3. Rusch M, Nixon S, Schilder A, Braitstein P, Chan K, Hogg RS. Impairments, activity limitations and participation restrictions: prevalence and associations among persons living with HIV/AIDS in British Columbia. Health Qual Life Outcomes 2004;2:46.
4. Stanton DL, Wu AW, Moore RD, Rucker SC, Piazza MP, Abrams JE, Chaisson RE. Functional status of persons with HIV infection in an ambulatory setting. J Acquir Immune Defc Syndr 1994; 7:1050-1056.
5. Gaidhane A, Zahiruddin QS, Waghmare L, Zodpey S, Goyal RC, Johrapurkar SR. Assessing self-care component of activities and participation domain of the international classifcation of functioning, disability and health (ICF) among people living with HIV/AIDS. AIDS Care 2008;20:1098-1104.
6. Justice AC. HIV and aging: time for a new paradigm. Curr HIV/AIDS Rep 2010;7:69-76.
7. Goodroad BK. HIV and AIDS in people older than 50. A continuing concern. J Gerontol Nurs 2003;29:18-24.
8. Hasse B, Ledergerber B, Furrer H, Battegay M, Hirschel B, Cavassini M, Bertisch B, et al.; Swiss HIV Cohort Study. Morbidity and aging in HIV-infected persons: the Swiss HIV cohort study. Clin Infect Dis 2011;53:1130-1139.
9. Guaraldi G, Orlando G, Zona S, Menozzi M, Carli F, Garlassi E, Berti A, et al. Premature age-related comorbidities among HIV-infected persons compared with the general population. Clin Infect Dis 2011;53:1120-1126.
10. Blanch J, Rousaud A, Martinez E, De Lazzari E, Milinkovic A, Peri JM, Blanco JL, et al. Factors associated with severe impact of lipodystrophy on the quality of life of patients infected with HIV-1. Clin Infect Dis 2004;38:1464-1470.
11. Brooks RA, Martin DJ, Ortiz DJ, Veniegas RC. Perceived barriers to employment among persons living with HIV/AIDS. AIDS Care 2004;16:756-766.
12. O'Brien KK, Bayoumi AM, Strike C, Young NL, Davis AM. Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual framework. Health Qual Life Outcomes 2008;6:76.
13. O'Brien KK, Davis AM, Strike C, Young NL, Bayoumi AM. Putting episodic disability into context: a qualitative study exploring factors that infuence disability experienced by adults living with HIV/AIDS. J Int AIDS Soc 2009;12:5.
14. World Health Organization. International classifcation of functioning, disability and health (ICF). Geneva: Te World Health Organization; 2001.
15. O'Brien KK, Bayoumi AM, King K, Alexander R, Solomon P. Development of a new HIV Disability Questionnaire: A community integrated approach. Submitted to: Health Qual Life Outcomes.
16. Feinstein AR. Te theory and evaluation of sensibility. In: Feinstein AR, editor. Clinimetrics. Westford, MS: Murray Printing Company; 1987. pp 141-166.
17. Rowe BH, Oxman AD. An assessment of the sensibility of a quality-of-life instrument. Am J Emerg Med 1993;11:374-380.
18. Justice AC, Holmes W, Giford AL, Rabeneck L, Zackin R, Sinclair G, Weissman S, et al.; Adult AIDS Clinical Trials Unit Outcomes Committee. Development and validation of a self-completed HIV symptom index. J Clin Epidemiol 2001;54 Suppl 1:S77-S90.
19. Hsieh HF, Shannon SE. Tree approaches to qualitative content analysis. Qual Health Res 2005;15:1277-1288.
20. NVivo qualitative data analysis sofware. Version 7, 2006, QSR International Pty. Ltd.
21. Patton MQ. Qualitative research and evaluation methods. Tousand Oaks, California: Sage Publications, Inc; 2002.
22. Eakin JM, Mykhalovskiy E. Reframing the evaluation of qualitative health research: refections on a review of appraisal guidelines in the health sciences. J Eval Clin Pract 2003;9:187-194.
23. Hewitt-Taylor J. Use of constant comparative analysis in qualitative research. Nurs Stand 2001;15:39-42.
24. Barbour RS. Checklists for improving rigour in qualitative research: a case of the tail wagging the dog? BMJ 2001;322:1115-1117.
25. Mays N, Pope C. Qualitative research in health care. Assessing quality in qualitative research. BMJ 2000;320:50-52.
26. O'Brien KK, et al. Using qualitative methods to assess the sensibility of a new HIV disability questionnaire. Submitted to: Health Qual Life Outcomes.
27. Lenderking WR, Testa MA, Katzenstein D, Hammer S. Measuring quality of life in early HIV disease: the modular approach. Qual Life Res 1997;6:515-530.
28. Shumaker SA, Ellis S, Naughton M. Assessing health-related quality of life in HIV disease: key measurement issues. Qual Life Res 1997;6:475-480.
29. Hays RD, Shapiro MF. An overview of generic health-related quality of life measures for HIV research. Qual Life Res 1992;1:91-97.
30. Clayson DJ, Wild DJ, Quarterman P, Duprat-Lomon I, Kubin M, Coons SJ. A comparative review of health-related quality-of-life measures for use in HIV/AIDS clinical trials. Pharmacoeconomics 2006;24:751-765.
31. Carabin H, Sonleitner NK, Keesee M, Shinault K. Quality of life measurement tools for people living with HIV/AIDS. J HIV/AIDS Social Services 2008;7: 71-82.
32. Vance DE, Mugavero M, Willig J, Raper JL, Saag MS. Aging with HIV: a cross-sectional study of comorbidity prevalence and clinical characteristics across decades of life. J Assoc Nurses AIDS Care 2011;22:17-25.
33. Brashers DE, Neidig JL, Reynolds NR, Haas SM. Uncertainty in illness across the HIV/AIDS trajectory. J Assoc Nurses AIDS Care 1998;9:66-77.
34. Katz A. Gaining a new perspective on life as a consequence of uncertainty in HIV infection. J Assoc Nurses AIDS Care 1996;7:51-60.
35. Voelker R. Protease inhibitors bring new social, clinical uncertainties to HIV care. JAMA 1997;277:1182, 1184.
36. O'Brien KK, Bayoumi AM, Strike C, Young NL, King K, Davis AM. How do existing HIV-specifc instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV. Health Qual Life Outcomes 2010;8:88.
37. Mishel MH. Te measurement of uncertainty in illness. Nurs Res 1981;30:258-263.
38. Juniper EF, Guyatt GH, Streiner DL, King DR. Clinical impact versus factor analysis for quality of life questionnaire construction. J Clin Epidemiol 1997;50:233-238.
39. Streiner DL, Norman GR. Health measurement scales: a practical guide to their development and use. 4th ed. Oxford, New York: Oxford University Press; 2008
40. de Vet HC, Terwee CB, Bouter LM. Current challenges in clinimetrics. J Clin Epidemiol 2003;56:1137-1141.
41. Canadian Working Group on HIV and Rehabilitation. HIV, disability and rehabilitation: Promoting quality of life through research, education and cross-sector partnerships. Strategic Plan 2010-2013. 2010.
42. Oxman AD, Guyatt GH. Validation of an index of the quality of review articles. J Clin Epidemiol 1991;44:1271-1278.
43. Timmer A, Sutherland LR, Hilsden RJ. Development and evaluation of a quality score for abstracts. BMC Med Res Methodol 2003;3:2.
44. Oxman AD, Guyatt GH, Cook DJ, Jaeschke R, Heddle N, Keller J. An index of scientifc quality for health reports in the lay press. J Clin Epidemiol 1993;46:987-1001.
45. Farrell B, Pottie K, Woodend K, Yao VH, Kennie N, Sellors C, Martin C, Dolovich L. Developing a tool to measure contributions to medication-related processes in family practice. J Interprof Care 2008;22:17-29.