Fatigue in Ankylosing Spondylitis: Causes, Consequences and Self-Management

Musculoskeletal Care

Volumn 11, Issue 1, 2013, Pages 39-50

  Farren, Wendy ^a   Goodacre, Lynne ^b   Stigant, Mark ^c  

^a Carleton Clinic   (United Kingdom)

^b LANCASTER UNIVERSITY   (United Kingdom)

^c UNIVERSITY OF CUMBRIA   (United Kingdom)

Author keywords

Ankylosing spondylitis; Causes; Consequences; Fatigue; Management

Indexed keywords

ADULT; AGED; ANKYLOSING SPONDYLITIS; ARTICLE; FATIGUE; FEMALE; HUMAN; INTERVIEW; MALE; MIDDLE AGED; PATHOPHYSIOLOGY; QUALITY OF LIFE; SELF CARE; SEVERITY OF ILLNESS INDEX;

ADULT; AGED; FATIGUE; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; QUALITY OF LIFE; SELF CARE; SEVERITY OF ILLNESS INDEX; SPONDYLITIS, ANKYLOSING;

EID: 84874532627     PISSN: 14782189     EISSN: 15570681     Source Type: Journal    
DOI: 10.1002/msc.1029     Document Type: Article

References (47)

1. Aaronson LS, Pallikkathayil L, Crighton F (2003). A qualitative investigation of fatigue among healthy working adults. Western Journal of Nursing Research 25: 419-33.
2. Barlow JH, Wright CC, Williams B, Keat A (2001). Work disability among people with ankylosing spondylitis. Arthritis Care and Research 45: 424-9.
3. Boonen A, Chorus A, Miedema H, van der Heijde D, van der Tempel H, van der Linden S (2001). Employment, work disability, and work days lost in patients with ankylosing spondylitis: A cross sectional study of Dutch patients. Annals of the Rheumatic Diseases 60: 353-8.
4. Bradt J, Haibel H, Cornely D, Golder W, Gonzalez J, Reddig J, Thriene W, Sieper J, Braun J (2001). Successful treatment of active ankylosing spondylitis with the anti-tumor necrosis factor alpha monoclonal antibody infliximab. Arthritis and Rheumatism 43: 1346-52.
5. Braun J, Brandt J, Listing A, Zink R, Alten W, Golder E, Gromnica H, Kellner A, Krause M, Schneider M, Sorenson H, Zeilder H, Threie W, Sieper J (2002). Treatment of active ankylosing spondylitis with infliximab: A randomised controlled multicentre trial. Lancet 359: 1187-93.
6. Brophy S, Calin A (2002). Definition of disease flare in ankylosing spondylitis: The patients' perspective. Journal of Rheumatology 29: 954-8.
7. Calin A, Dijkmans BA, Emery P, Hakala M, Kalden J, Leirisalo-Repo M, Mola EM, Salvarini C, Sanmarti R, Sany J, Sibilia J, Sieper J, van der Linden S, Veys E, Apel AM, Fatenejad S (2004). Outcomes of a multicentre randomised clinical trial of etanercept to treat ankylosing spondylitis. Annals of the Rheumatic Diseases 63: 1594-600.
8. Calin A, Edmunds L, Kennedy L (1993). Fatigue in ankylosing spondylitis: Why is it ignored? Journal of Rheumatology 20: 991-5.
9. Calin A, Nakache JP, Gueguen A, Zeidler H, Mielants H, Dougados M (1999). Defining disease activity in ankylosing spondylitis: Is a combination of variables (Bath Ankylosing Spondylitis Index) an appropriate instrument?' Rheumatology 38: 878-82.
10. Clarke N, Becker M, Janz N, Lorig N, Rakowski W, Aaronson L (1991). Self-management of chronic disease by older adults. Journal of Aging and Health 3: 3-27.
11. Cooper K, Smith BH, Hancock E (2008). Patient-centeredness in physiotherapy from the perspective of the chronic low back pain patient. Physiotherapy 94: 244-52.
12. Cooper K, Smith BH, Hancock E (2009). Patients' perceptions of self-management of chronic low back pain: Evidence for enhancing patient education and support. Physiotherapy 95: 43-50.
13. Da Costa D, Drista M, Ring A, Fitzcharles M-A (2004). Mental health status and leisure-time physical activity contribute to fatigue intensity in patients with spondyloarthropathy. Arthritis and Rheumatism 51: 1004-8.
14. Dagfinrud H, Vollestad NK, Loge JH, Kvien TK, Mengshoel M (2005). Fatigue in patients with ankylosing spondylitis: A comparison with the general population and associations with clinical and self-reported measures. Arthritis and Rheumatism 53: 5-11.
15. Dernis-Labous E, Messow M, Dougados M (2003). Assessment of fatigue in the management of patients with ankylosing spondylitis. Rheumatology 42: 1523-8.
16. Felix L, Montgomery P (2009). Self-management programme for ankylosing spondylitis(protocol). Cochrane Library [online], Issue 2. Available at http://www.thecochranelibrary.com [Accessed 3 May 2010].
17. Fossey E, Harvey C, McDermott F, Davidson L (2002). Understanding and evaluating qualitative research. The Australian and New Zealand Journal of Psychiatry 36: 717-32.
18. Garrett S, Jenkinson T, Kennedy G, Whitelock H, Gaisford P, Calin A (1994). A new approach to defining disease status in ankylosing spondylitis: The Bath Ankylosing Spondylitis Disease Activity Index. Journal of Rheumatology 21: 2286-91.
19. Godaert GL, Hartkamp A, Geenen R (2002). Fatigue in daily life in patients with primary Sjögren's syndrome and systemic lupus erythematosus. Annals of the New York Academy of Science 966: 320-6.
20. Gorman JD, Sack K, Davis J (2002). Treatment of ankylosing spondylitis by inhibition of tumor necrosis factor. The New England Journal of Medicine 346: 1349-56.
21. Günaydin R, Karatepe AG, Cesmeli N, Kaya T (2009). Fatigue in patients with ankylosing spondylitis: Relationships with disease-specific variables, depression and sleep disturbance. Clinical Rheumatology 28: 1045-51.
22. Hammersley M (1992). What's Wrong with Ethnography?, London: Routledge.
23. van der Heijde D, Dijkmans D, Geusens P, Sieper J, DeWoody K, Williamson P, Braun J (2005). Efficacy and safety of inflixamab in patients with ankylosing spondylitis: Results of a randomised, placebo-controlled trial. Arthritis and Rheumatism 52: 582-672.
24. Hewlett S, Cockshott Z, Byron M, Kitchen K, Tipler S, Pope D, Hehir M (2005). Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored. Arthritis and Rheumatism 53: 697-702.
25. Jones SD, Koh WH, Steiner A, Garrett SL, Calin A (1996). Fatigue in ankylosing spondylitis: Its prevalence and relationships to disease activity, sleep and other factors. Journal of Rheumatology 23: 487-90.
26. Khan MA (1998). Ankylosing spondylitis: Clinical features. In Klippel JH, Dieppe PA (eds). Rheumatology (2nd edn). St. Louis, MO: Mosby.
27. van der Linden S, Valkenburg HA, Cats A (1984). Evaluation of diagnostic criteria for ankylosing spondylitis: A proposal for modification of the New York criteria. Arthritis and Rheumatism 27: 361-8.
28. Lyons R, Sullivan MJL, Ritvo PG, Coyne J (1995). Relationships in Chronic Illness and Disability. Thousand Oaks, CA: Sage Publications.
29. Marzo-Ortego H, McGonagle D, O'Connor P, Emery P (2001). Efficacy of etanercept in the treatment of the entheseal pathology in resistant spondylarthropathy: A clinical and magnetic resonance imaging study. Arthritis and Rheumatism 44: 2112-17.
30. Mason J (2002). Qualitative Researching (2ndedn). London: Sage Publications.
31. Mays N, Pope C (2000). Qualitative research in health care. Assessing quality in qualitative research. British Medical Journal 320: 50-2.
32. Mengshoel AM (2008). Living with a fluctuating illness of ankylosing spondylitis: A qualitative study. Arthritis and Rheumatism 59: 1439-44.
33. Mengshoel AM, Forre O (1993). Pain and fatigue in patients with rheumatic disorders. Clinical Rheumatology 12: 515-22.
34. National Institute for Health and Clinical Excellence (2007). Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy). Clinical Guideline 53.
35. Patton MQ (2002). Qualitative Research and Evaluation Methods (3rdedn). Thousand Oaks, CA: Sage Publications.
36. Punch K (2005). Developing Effective Research Proposals. London: Sage Publications.
37. Repping-Wuts H, Uitterhoeve R, van Riel P, van Acherterberg T (2008). Fatigue as experienced by patients with rheumatoid arthritis (RA): A qualitative study. International Journal of Nursing Studies 45: 995-1002.
38. Ritchie J, Lewis J (2003). Qualitative Research Practice. A Guide for Social Science Students and Researchers. London: Sage Publications.
39. Ritchie J, Spencer L (1994). Qualitative data analysis for applied policy research. In Bryman A, Burgess RG (eds). Analysing Qualitative Data. London: Routledge.
40. Stockdale J, Goodacre L (2009). 'It's magic stuff': The experiences of patients with ankylosing spondylitis taking anti-TNF-alpha medication. Musculoskeletal Care 7: 162-77.
41. Stone AA, Broderick JE, Porter L, Kaell AT (1997). The experience of rheumatoid arthritis pain and fatigue: Examining momentary reports and correlates over one week. Arthritis Care and Research 10: 185-93.
42. Sundström B, Ekergard H, Sundelin G (2002). Exercise habits among patients with ankylosing spondylitis. Scandinavian Journal of Rheumatology 31: 163-7.
43. Tack BB (1990). Fatigue in rheumatoid arthritis. Arthritis Care and Research 3: 65-70.
44. van Tubergen A, Coenen J, Landewe R, Spoorenberg A, Chorus A, Boonen A, van der Linden S, van der Heijde D (2002). Assessment of fatigue in patients with ankylosing spondylitis: A psychometric analysis. Arthritis Care and Research 47: 8-16.
45. Ward M (1998). Quality of life in patients with ankylosing spondylitis. Rheumatic Disease Clinics of North America 24: 815-27.
46. Ward MM (1999). Health-related quality of life in ankylosing spondylitis. Arthritis Care and Research 12: 247-55.
47. Wu H-S, McSweeney M (2007). Cancer-related fatigue: 'It's so much more than just being tired'. European Journal of Oncology Nursing 11: 117-25.