To use or not to use: A literature review of factors that influence family caregivers' use of support services

Journal of Gerontological Nursing

Volumn 39, Issue 1, 2013, Pages 20-28

  Mast, Merle E ^a  

^a JAMES MADISON UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; CAREGIVER; FAMILY; HUMAN; NURSING EDUCATION; POPULATION DYNAMICS; REVIEW; SOCIAL SUPPORT; UNITED STATES;

AGED; CAREGIVERS; EDUCATION, NURSING, CONTINUING; FAMILY; HUMANS; POPULATION DYNAMICS; SOCIAL SUPPORT; UNITED STATES;

MLCS; MLOWN;

EID: 84874470343     PISSN: 00989134     EISSN: None     Source Type: Journal    
DOI: 10.3928/00989134-20121107-02     Document Type: Article

References (44)

1. Arksey, H., & Glendinning, C. (2007). Choice in the context of informal care-giving. Health & Social Care in the Community, 15, 165-175.
2. Ashworth, M., & Baker, A.H. (2000). 'Time and space': Carers' views about respite care. Health & Social Care in the Community, 8, 50-56.
3. Barbosa, A., Figueiredo, D., Sousa, L., & Demain, S. (2011). Coping with the caregiving role: Differences between primary and secondary caregivers of dependent elderly people. Aging & Mental Health, 15, 490-499. doi:10.1080/13607863.2010.543660
4. Boggatz, T., Dijkstra, A., Lohrmann, C., & Dassen, T. (2007). The meaning of care dependency as shared by care givers and care recipients: A concept analysis. Journal of Advanced Nursing, 60, 561-569.
5. Brannen, C., & Petite, K. (2008). An alternative framework for understanding women's caregiving stress: A qualitative application of the ways of coping model. Journal of Health Psychology, 13, 355-365.
6. Brodaty, H., Thomson, C., Thompson, C., & Fine, M. (2005). Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry, 20, 537-546. doi:10.1002/gps.1322
7. Brown, J., & Chen, S. (2008). Help-seeking patterns of older spousal caregivers of older adults with dementia. Issues in Mental Health Nursing, 29, 839-852.
8. Caron, C.D., & Bowers, B.J. (2003). Deciding whether to continue, share, or relinquish caregiving: Caregiver views. Qualitative Health Research, 13, 1252-1271.
9. Casado, B., Lee, S., & Davis, S.L. (2011). Unmet needs for home and community-based services among frail older Americans and their caregivers. Journal of Aging & Health, 23, 529-553. doi:10.1177/0898264310387132
10. Chen, Y.M., & Thompson, E.A. (2010). Understanding factors that influence success of home-and community-based services in keeping older adults in community settings. Journal of Aging and Health, 22, 267-291. doi:10.1177/0898264309356593
11. de la Cuesta-Benjumea, C. (2011). Strategies for the relief of burden in advanced dementia care-giving. Journal of Advanced Nursing, 67, 1790-1799. doi:10.1111/j.1365-2648.2010.05607.x
12. Del-Pino-Casado, R., Frias-Osuna, A., Palomino-Moral, P.A., & Pancorbo-Hidalgo, P.L. (2011). Coping and subjective burden in caregivers of older relatives: A quantitative systematic review. Journal of Advanced Nursing, 67, 2311-2322. doi:10.1111/j.1365-2648.2011.05725.x
13. Ekwall, A.K., & Hallberg, I.R. (2007). The association between caregiving satisfaction, difficulties and coping among older family caregivers. Journal of Clinical Nursing, 16, 832-844.
14. Etters, L., Goodall, D., & Harrison, B.E. (2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners, 20, 423-428.
15. Family Caregiver Alliance. (2011). Fact sheet: Selected caregiver statistics. Retrieved from http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=439
16. Feld, S. (2006). Expansion of elderly couples' IADL caregiver networks beyond the marital dyad. International Journal of Aging & Human Development, 63, 95-113.
17. Furlong, K.E., & Wuest, J. (2008). Self-care behaviors of spouses caring for significant others with Alzheimer's disease: The emergence of self-care worthiness as a salient condition. Qualitative Health Research. 18, 1662-1672.
18. Hilgeman, M.M. (2007). Positive aspects of caregiving as a moderator of treatment outcome over 12 months. Psychology and Aging, 22, 361-371.
19. Kim, H., Chang, M., Rose, K., & Kim, S. (2012). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68, 846-855. doi:10.1111/j.1365-2648.2011.05787.x
20. Kosloski, K., Schaefer, J.P., Allwardt, D., Montgomery, R.J.V., & Karner, T.X. (2002). The role of cultural factors on clients' attitudes toward caregiving, perceptions of service delivery, and service utilization. Home Health Care Services Quarterly, 22(3/4), 65-88.
21. Maiden, R.J., Horowitz, B.P., & Howe, J.L. (2010). Workforce training and education gaps in gerontology and geriatrics: What we found in New York State. Gerontology & Geriatrics Education, 31, 328-348.
22. McConaghy, R., & Caltabiano, M.L. (2005). Caring for a person with dementia: Exploring relationships between perceived burden, depression, coping, and well-being. Nursing and Health Sciences, 7, 81-91.
23. National Alliance for Caregiving, & AARP. (2009). Caregiving in the U.S.: A focused look at those caring for someone age 50 or older. Retrieved from http://www.caregiving.org/data/FINALRegularExSum50plus.pdf
24. Navaie-Waliser, M., Spriggs, A., & Feldman, P.H. (2002). Informal caregiving: Differential experiences by gender. Medical Care, 40, 1249-1259.
25. Nichols, L.O., Martindale-Adams, J., Greene, W.A., Burns, R., Graney, M.J., & Lummus, A. (2009). Dementia caregivers' most pressing concerns. Clinical Gerontologist, 32(1), 1-14.
26. Papastavrou, E., Kalokerinou, A., Papacostas, S.S., Tsangari, H., & Sourtzi, P. (2007). Caring for a relative with dementia: Family caregiver burden. Journal of Advanced Nursing, 58, 446-457. doi:10.1111/j.1365-2648.2007.04250.x
27. Pinquart, M., & Sörensen, S. (2007). Correlates of physical health of informal caregivers: A meta-analysis. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 62, P126-P137.
28. Qiu, W.Q., Dean, M., Liu, T., George, L., Gann, M., Cohen, J., & Bruce, M.L. (2010). Physical and mental health of homebound older adults: An overlooked population. Journal of the American Geriatrics Society, 58, 2423-2428. doi:10.1111/j.1532-5415.2010.03161.x
29. Robinson, K.M., Buckwalter, K.C., & Reed, D. (2005). Predictors of use of services among dementia caregivers. Western Journal of Nursing Research, 27, 126-140.
30. Salfi, J., Ploeg, J., & Black, M.E. (2005). Seeking to understand telephone support for dementia caregivers. Western Journal of Nursing Research, 27, 701-721.
31. Salin, S., & Astedt-Kurki, P. (2007). Women's views of caring for family members: Use of respite care. Journal of Gerontological Nursing, 33(9), 37-45.
32. Salin, S., Kaunonen, M., & Astedt-Kurki, P. (2009). Informal carers of older family members: How they manage and what support they receive from respite care. Journal of Clinical Nursing, 18, 492-501. doi:10.1111/j.1365-2702.2008.02550.x
33. Schoenmakers, B., Buntinx, F., & Delepeleire, J. (2010). Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas, 66, 191-200.
34. Shaw, C., McNamara, R., Abrams, K., Cannings-John, R., Hood, K., Longo, M.,...Williams, K. (2009). Systematic review of respite care in the frail elderly. Health Technology Assessment, 13(20), 1-246. doi:10.3310/hta13200
35. Stirling, C., Andrews, S., Croft, T., Vickers, J., Turner, P., & Robinson, A. (2010). Measuring dementia carers' unmet need for services-An exploratory mixed method study. BMC Health Services Research, 10. Retrieved from http://www.biomedcentral. com/1472-6963/10/122.
36. Sun, F., Kosberg, J.I., Kaufman, A.V., & Leeper, J.D. (2010). Coping strategies and caregiving outcomes among rural dementia caregivers. Journal of Gerontological Social Work, 53, 547-567. doi:10.1080/01634372.2 010.496823
37. Sussman, T., & Regehr, C. (2009). The influence of community-based services on the burden of spouses caring for their partners with dementia. Health & Social Work, 34(1), 29-39.
38. Toseland, R.W., McCallion, P., Gerber, T., & Banks, S. (2002). Predictors of health and human services use by persons with dementia and their family caregivers. Social Science & Medicine, 55, 1255-1266. doi:10.1016/S0277-9536(01)00240-4
39. Watkins, L., Hall, C., & Kring, D. (2012). Hospital to home: A transition program for frail older adults. Professional Case Management, 17, 117-123. doi:10.1097/NCM.0b013e318243d6a7
40. Werner, P., Goldstein, D., & Buchbinder, E. (2010). Subjective experience of family stigma as reported by children of Alzheimer's disease patients. Qualitative Health Research, 20, 159-169. doi:10.1177/1049732309358330
41. Whitlatch, C. (2008). Informal caregivers: Communication and decision making. American Journal of Nursing, 108(9), 73-77.
42. Winter, K.H., Bouldin, E.D., & Andresen, E.M. (2010). Lack of choice in caregiving decision and caregiver risk of stress, North Carolina, 2005. Preventing Chronic Disease, 7(2), A41.
43. Zodikoff, B.D. (2002). Understanding older spousal dyads' attitudes toward community service use: An analysis of applied theoretical models. Journal of Gerontological Social Work, 39(3), 3-21.
44. Zucchella, C., Bartolo, M., Pasotti, C., Chiapella, L., & Sinforiani, E. (2012). Caregiver burden and coping in early-stage Alzheimer disease. Alzheimer Disease and Associated Disorders, 26, 55-60. doi:10.1097/WAD.0b013e31821aa6de