Population studies: Return of research results and incidental findings Policy Statement

European Journal of Human Genetics

Volumn 21, Issue 3, 2013, Pages 245-247

  Knoppers, Bartha Maria ^a,b   Deschênes, Mylène ^c   Zawati, Ma'N H ^b   Tassé, Anne Marie ^a  

^a Public Population Project in Genomics P3G   (Canada)

^b MCGILL UNIVERSITY   (Canada)

^c Office of the Chief Scientist of Quebec   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BENEFICENCE; CLINICAL RESEARCH; CONCEPTUAL FRAMEWORK; DECISION MAKING; GENOMICS; HUMAN; INCIDENTAL FINDING; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; MEDICAL ETHICS; NON MALEFICENCE; POPULATION RESEARCH; PRIORITY JOURNAL; RECIPROCITY; SOCIAL BEHAVIOR; TRUST;

BIOMEDICAL RESEARCH; HUMAN GENOME PROJECT; HUMANS; INCIDENTAL FINDINGS; INTERNATIONAL COOPERATION; POLICY;

EID: 84874116144     PISSN: 10184813     EISSN: 14765438     Source Type: Journal    
DOI: 10.1038/ejhg.2012.152     Document Type: Article

References (6)

1. Knoppers BM, Hudson TJ (eds): Special issue on the art and science of biobanking. Hum Genet 2011; 130: 329-332.
2. Knoppers BM, Lévesque E (eds): Special issue on 'Return of Research Results: How Should Research Results Be Handled?'. J Law Med Ethics 2011; 39: 574-576.
3. Bledsoe MJ, Grizzle WE, Clark BJ et al: Practical implementation issues and challenges for biobanks in the return of individual research results. Genet Med 2012; 14: 478-483.
4. Wallace SE: The needle in the haystack: international consortia and the return of individual research results. J Law Med Ethics 2011; 39: 631-639.
5. Wallace SE, Kent A: Population biobanks and returning individual research results: mission impossible or new directions? Hum Genet 2011; 130: 393-401.
6. Zawati MH, Knoppers BM: International normative perspectives on the return of individual research results and incidental findings in genomic biobanks. Genet Med 2012; 14: 484-489.