Development and evaluation of an internet and personal health record training program for low-income patients with HIV or hepatitis C

Medical Care

Volumn 51, Issue 3 SUPPL. 1, 2013, Pages

  McInnes, D Keith ^a,b   Solomon, Jeffrey L ^a   Shimada, Stephanie L ^a,b   Petrakis, Beth A ^a   Bokhour, Barbara G ^a,b   Asch, Steven M ^c,d   Nazi, Kim M ^a   Houston, Thomas K ^a,e   Gifford, Allen L ^a,b,f  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b BOSTON UNIVERSITY SCHOOL OF PUBLIC HEALTH   (United States)

^c VA PALO ALTO HEALTH CARE SYSTEM   (United States)

^d STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

^e UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL   (United States)

^f BOSTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

health informatics; hepatitis C; HIV; veterans; vulnerable populations

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; CLINICAL EVALUATION; ETHNOGRAPHIC RESEARCH; FEMALE; FOLLOW UP; HEALTH; HEALTH CARE COST; HEALTH PROGRAM; HEALTH SURVEY; HEPATITIS C; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTED PATIENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INFORMATION PROCESSING; INTERNET; LOWEST INCOME GROUP; MALE; MEDICAL INFORMATION; PATIENT COMPLIANCE; PERSONAL HEALTH RECORD TRAINING PROGRAM; PREDICTOR VARIABLE; PRIORITY JOURNAL; SELF CONCEPT; SEMI STRUCTURED INTERVIEW; SKILL; STRUCTURED QUESTIONNAIRE; TRAINING; VETERAN; VULNERABLE POPULATION;

FEMALE; FOCUS GROUPS; FOLLOW-UP STUDIES; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH RECORDS, PERSONAL; HEPATITIS C; HIV INFECTIONS; HOSPITALS, VETERANS; HUMANS; INTERNET; INTERVENTION STUDIES; INTERVIEWS AS TOPIC; MALE; MEDICATION ADHERENCE; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; POVERTY; PROGRAM DEVELOPMENT; PROGRAM EVALUATION; QUESTIONNAIRES; SELF EFFICACY; UNITED STATES; VETERANS; VULNERABLE POPULATIONS;

EID: 84874080916     PISSN: 00257079     EISSN: 15371948     Source Type: Journal    
DOI: 10.1097/MLR.0b013e31827808bf     Document Type: Article

References (41)

1. Berland GK, Elliott MN, Morales LS, et al. Health information on the Internet: accessibility, quality, and readability in English and Spanish. JAMA. 2001;285:2612-2621.
2. Halamka JD, Mandl KD, Tang PC. Early experiences with personal health records. J Am Med Inform Assoc. 2008;15:1-7.
3. Ralston JD, Carrell D, Reid R, et al. Patient web services integrated with a shared medical record: patient use and satisfaction. J Am Med Inform Assoc. 2007;14:798-806.
4. Chen C, Garrido T, Chock D, et al. The Kaiser Permanente Electronic Health Record: transforming and streamlining modalities of care. Health Aff (Millwood). 2009;28:323-333.
5. Simon GE, Ralston JD, Savarino J, et al. Randomized trial of depression follow-up care by online messaging. J Gen Intern Med. 2011;26: 698-704.
6. Rainie L. The Internet as a Diversion and Destination. Washington, DC: Pew Research Center; 2011.
7. Zickuhr K, Smith A. Digital Differences. Washington, DC: Pew Research Center; 2012.
8. Smith A. Home Broadband 2010. Washington, DC: Pew Research Center; 2010.
9. Barton MB, Moore S, Shtatland E, et al. The relation of household income to mammography utilization in a prepaid health care system. J Gen Intern Med. 2001;16:200-203.
10. Simmons LA, Anderson EA, Braun B. Health needs and health care utilization among rural, low-income women. Women Health. 2008;47:53-69.
11. Raphael JL, Dietrich CL, Whitmire D, et al. Healthcare utilization and expenditures for low income children with sickle cell disease. Pediatr Blood Cancer. 2009;52:263-267.
12. Redelings MD, Piron J, Smith LV, et al. Knowledge, attitudes, and beliefs about seasonal influenza and H1N1 vaccinations in a lowincome, public health clinic population. Vaccine. 2012;30:454-458.
13. Deibert CM, Maliski S, Kwan L, et al. Prostate cancer knowledge among low income minority men. J Urol. 2007;177:1851-1855.
14. Wang C, Guttmann A, To T, et al. Neighborhood income and health outcomes in infants: how do those with complex chronic conditions fare? Arch Pediatr Adolesc Med. 2009;163:608-615.
15. Marra CA, Lynd LD, Esdaile JM, et al. The impact of low family income on self-reported health outcomes in patients with rheumatoid arthritis within a publicly funded health-care environment. Rheumatology (Oxford). 2004;43:1390-1397.
16. Kim EH, Kim Y. Digital divide: use of electronic personal health record by different population groups. Conf Proc IEEE Eng Med Biol Soc. 2010;2010:1759-1762.
17. Cresci MK, Yarandi HN, Morrell RW. The digital divide and urban older adults. Comput Inform Nurs. 2010;28:88-94.
18. Kalichman SC, Cherry C, Cain D, et al. Internet-based health information consumer skills intervention for people living with HIV/AIDS. J Consult Clin Psychol. 2006;74:545-554.
19. Berger M, Wagner TH, Baker LC. Internet use and stigmatized illness. Soc Sci Med. 2005;61:1821-1827.
20. Amico KR, Toro-Alfonso J, Fisher JD. An empirical test of the information, motivation and behavioral skills model of antiretroviral therapy adherence. AIDS Care. 2005;17:661-673.
21. Fisher JD, Fisher WA, Amico KR, et al. An information- motivationbehavioral skills model of adherence to antiretroviral therapy. Health Psychol. 2006;25:462-473.
22. McInnes DK, Gifford AL, Kazis LE, et al. Disparities in health-related internet use by US veterans: results from a national survey. Inform Prim Care. 2010;18:59-68.
23. Tsai J, Rosenheck RA. Use of the internet and an online personal health record system by US veterans: comparison of Veterans Affairs mental health service users and other veterans nationally. J Am Med Inform Assoc. 2012;19:1089-1094.
24. Nazi KM, Hogan TP, Wagner TH, et al. Embracing a health services research perspective on personal health records: lessons learned from the VA My HealtheVet system. J Gen Intern Med. 2010;25(suppl 1):62-67.
25. Price J, Entin S. The Complete Idiot's Guide to Online Health and Fitness. New York: Alpha Books; 1999.
26. Nelson DE, Kreps GL, Hesse BW, et al. The Health Information National Trends Survey (HINTS): development, design, and dissemination. J Health Commun. 2004;9:443-460; discussion 481-444.
27. Arora NK, Hesse BW, Rimer BK, et al. Frustrated and confused: the American public rates its cancer-related information-seeking experiences. J Gen Intern Med. 2008;23:223-228.
28. Amico KR, Barta W, Konkle-Parker DJ, et al. The informationmotivation- behavioral skills model of ART adherence in a Deep South HIV+ clinic sample. AIDS Behav. 2009;13:66-75.
29. Amico KR, Konkle-Parker DJ, Cornman DH, et al. Reasons for ART non-adherence in the Deep South: adherence needs of a sample of HIVpositive patients in Mississippi. AIDS Care. 2007;19:1210-1218.
30. Hibbard JH, Greene J, Becker ER, et al. Racial/ethnic disparities and consumer activation in health. Health Aff (Millwood). 2008;27: 1442-1453.
31. Hibbard JH, Stockard J, Mahoney ER, et al. Development of the patient activation measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004;39:1005-1026.
32. Groessl EJ, Weingart KR, Gifford AL, et al. Development of the hepatitis C self-management program. Patient Educ Couns. 2011;83: 252-255.
33. Fisher JD, Cornman DH, Osborn CY, et al. Clinician-initiated HIV risk reduction intervention for HIV-positive persons: Formative Research, Acceptability, and Fidelity of the Options Project. J Acquir Immune Defic Syndr. 2004;37(suppl 2):S78-S87.
34. NVIVO. Qualitative data software program, version 7.0. Doncaster, VIC, Australia: Qualitative Solutions and Research, International; 2007.
35. Hammersley M, Atkinson P. Ethnography: Principles in Practice. 3rd ed. New York: Routledge; 2007.
36. Forman J, Creswell JW, Damschroder L, et al. Qualitative research methods: key features and insights gained from use in infection prevention research. Am J Infect Control. 2008;36:764-771.
37. Maxwell JA. Qualitative Research Design: An Interactive Approach. Thousand Oaks, CA: Sage Publications; 2004.
38. Drummond MF, O'Brien B, Stoddart GL, et al. Methods for the Economic Evaluation of Health care Programmes. New York: Oxford University Press; 1999.
39. US Office of Personnel Management. Salary Table 2011-BOS. 2011. Available at: http://www.opm.gov/oca/11tables/html/bos.asp. Accessed Dec 7, 2011.
40. Hibbard JH, Mahoney ER, Stock R, et al. Do increases in patient activation result in improved self-management behaviors? Health Serv Res. 2007;42:1443-1463.
41. Rost KM, Flavin KS, Cole K, et al. Change in metabolic control and functional status after hospitalization. Impact of patient activation intervention in diabetic patients. Diabetes Care. 1991;14:881-889.