Effectiveness of educational and social worker interventions to activate patients' discussion and pursuit of preemptive living donor kidney transplantation: A randomized controlled trial

American Journal of Kidney Diseases

Volumn 61, Issue 3, 2013, Pages 476-486

  Boulware, L Ebony ^a,b,c,d   Hill Briggs, Felicia ^a,c,d   Kraus, Edward S ^a   Melancon, J Keith ^e   Falcone, Brenda ^f   Ephraim, Patti L ^b   Jaar, Bernard G ^a,b,c,g   Gimenez, Luis ^a,g   Choi, Michael ^a   Senga, Mikiko ^a   Kolotos, Maria ^a   Lewis Boyer, Lapricia ^a   Cook, Courtney ^a   Light, Laney ^a   Depasquale, Nicole ^a   Noletto, Todd ^a   Powe, Neil R ^h,i  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b JOHNS HOPKINS UNIVERSITY   (United States)

^c JOHNS HOPKINS UNIVERSITY   (United States)

^d JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^e GEORGETOWN UNIVERSITY   (United States)

^f National Kidney Foundation of Maryland   (United States)

^g NEPHROLOGY CENTER OF MARYLAND   (United States)

^h UNIVERSITY OF SAN FRANCISCO   (United States)

ⁱ SAN FRANCISCO GENERAL HOSPITAL   (United States)

Author keywords

chronic kidney disease; education; live kidney donation; Live kidney transplantation; social worker

Indexed keywords

ADULT; AGED; ARTICLE; BEHAVIOR; CHRONIC KIDNEY DISEASE; CLINICAL EFFECTIVENESS; CLINICAL EVALUATION; CLINICAL FEATURE; DEMOGRAPHY; DOCTOR PATIENT RELATION; EDUCATION; FAMILY; FEMALE; FOLLOW UP; HUMAN; KIDNEY TRANSPLANTATION; LIVING DONOR; MAJOR CLINICAL STUDY; MALE; NEPHROLOGIST; OUTCOME ASSESSMENT; PATIENT CARE; PATIENT PARTICIPATION; RANDOMIZED CONTROLLED TRIAL (TOPIC); SELF REPORT; SOCIAL STATUS; SOCIAL WORKER;

AGED; ATTITUDE TO HEALTH; FEMALE; HUMANS; KIDNEY TRANSPLANTATION; LIVING DONORS; MALE; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; RENAL INSUFFICIENCY, CHRONIC; SOCIAL WORK; TISSUE AND ORGAN PROCUREMENT;

EID: 84874057358     PISSN: 02726386     EISSN: 15236838     Source Type: Journal    
DOI: 10.1053/j.ajkd.2012.08.039     Document Type: Article

References (34)

1. P.I. Terasaki, J.M. Cecka, D.W. Gjertson, S. Takemoto High survival rates of kidney transplants from spousal and living unrelated donors N Engl J Med 333 6 1995 333 336
2. K.C. Mange, M.M. Joffe, H.I. Feldman Effect of the use or nonuse of long-term dialysis on the subsequent survival of renal transplants from living donors N Engl J Med 344 10 2001 726 731
3. J.L. Gore, G.M. Danovitch, M.S. Litwin, P.T.T. Pham, J.S. Singer Disparities in the utilization of live donor renal transplantation Am J Transplant 9 5 2009 1124 1133
4. B.L. Kasiske, J.J. Snyder, A.J. Matas, M.D. Ellison, J.S. Gill, A.T. Kausz Preemptive kidney transplantation: the advantage and the advantaged J Am Soc Nephrol 13 5 2002 1358 1364
5. F.O. Finkelstein, K. Story, C. Firanek Perceived knowledge among patients cared for by nephrologists about chronic kidney disease and end-stage renal disease therapies Kidney Int 74 9 2008 1178 1184
6. T.E. Burroughs, A.D. Waterman, B.A. Hong One organ donation, three perspectives: experiences of donors, recipients, and third parties with living kidney donation Prog Transplant 13 2 2003 142 150
7. A.D. Waterman, T. Covelli, L. Caisley et al. Potential living kidney donors' health education use and comfort with donation Prog Transplant 14 3 2004 233 240
8. L.W. Kranenburg, W.C. Zuidema, W. Weimar et al. Psychological barriers for living kidney donation: how to inform the potential donors? Transplantation 84 8 2007 965 971
9. L.B. Bratton, L.W. Griffin A kidney donor's dilemma: the sibling who can donate - but doesn't Soc Work Health Care 20 2 1994 75 96
10. S.L. Lunsford, K.S. Simpson, K.D. Chavin Racial disparities in living kidney donation: is there a lack of willing donors or an excess of medically unsuitable candidates? Transplantation 82 7 2006 876 881
11. J.Z. Ayanian, P.D. Cleary, J.S. Weissman, A.M. Epstein The effect of patients' preferences on racial differences in access to renal transplantation N Engl J Med 341 22 1999 1661 1669
12. L.E. Boulware, L.A. Meoni, N.E. Fink Preferences, knowledge, communication and patient-physician discussion of living kidney transplantation in African American families Am J Transplant 5 6 2005 1503 1512
13. L.E. Boulware, F. Hill-Briggs, E.S. Kraus Identifying and addressing barriers to African American and non-African American families' discussions about preemptive living related kidney transplantation Prog Transplant 21 2 2011 97 104 quiz 105
14. S.L. Lunsford, K.S. Simpson, K.D. Chavin Racial differences in coping with the need for kidney transplantation and willingness to ask for live organ donation Am J Kidney Dis 47 2 2006 324 331
15. L.E. Boulware, F. Hill-Briggs, E.S. Kraus Protocol of a randomized controlled trial of culturally sensitive interventions to improve African Americans' and non-African Americans' early, shared, and informed consideration of live kidney transplantation: the Talking About Live Kidney Donation (TALK) Study BMC Nephrol 12 2011 34
16. T.C. Davis, S.W. Long, R.H. Jackson Rapid Estimate of Adult Literacy in Medicine: a shortened screening instrument Fam Med 25 6 1993 391 395
17. J.N. Katz, L.C. Chang, O. Sangha, A.H. Fossel, D.W. Bates Can comorbidity be measured by questionnaire rather than medical record review? Med Care 34 1 1996 73 84
18. R.L. Spitzer, K. Kroenke, J.B. Williams Validation and utility of a self-report version of PRIME-MD: the PHQ primary care study Primary Care Evaluation of Mental Disorders. Patient Health Questionnaire JAMA 282 18 1999 1737 1744
19. I.W. Miller, N.B. Epstein, D.S. Bishop, G.I. Keitner The McMaster family assessment device: reliability and validity J Marital Fam Ther 11 1985 345 356
20. J.R. Rodrigue, D.L. Cornell, J.K. Lin, B. Kaplan, R.J. Howard Increasing live donor kidney transplantation: a randomized controlled trial of a home-based educational intervention Am J Transplant 7 2 2007 394 401
21. A.S. Narva Optimal preparation for ESRD Clin J Am Soc Nephrol 4 suppl 1 2009 S110 S113
22. C. Jones, P. Roderick, S. Harris, M. Rogerson An evaluation of a shared primary and secondary care nephrology service for managing patients with moderate to advanced CKD Am J Kidney Dis 47 1 2006 103 114
23. G.M. Devins, D.C. Mendelssohn, P.E. Barre, Y.M. Binik Predialysis psychoeducational intervention and coping styles influence time to dialysis in chronic kidney disease Am J Kidney Dis 42 4 2003 693 703
24. G.M. Devins, D.C. Mendelssohn, P.E. Barre, K. Taub, Y.M. Binik Predialysis psychoeducational intervention extends survival in CKD: a 20-year follow-up Am J Kidney Dis 46 6 2005 1088 1098
25. V. Grubbs, S.E. Gregorich, E.J. Perez-Stable, C.Y. Hsu Health literacy and access to kidney transplantation Clin J Am Soc Nephrol 4 1 2009 195 200
26. J.S. Lindberg, F.E. Husserl, J.L. Ross Impact of multidisciplinary, early renal education on vascular access placement Nephrol News Issues 19 3 2005 35 36 41-43
27. E.A. Bayliss, B. Bhardwaja, C. Ross, A. Beck, D.M. Lanese Multidisciplinary team care may slow the rate of decline in renal function Clin J Am Soc Nephrol 6 4 2011 704 710
28. D.C. Mendelssohn Coping with the CKD epidemic: the promise of multidisciplinary team-based care Nephrol Dial Transplant 20 1 2005 10 12
29. D.H. Smith, M.L. Thorp Nurse-coordinated care in CKD: time for translation into practice? Clin J Am Soc Nephrol 6 6 2011 1229 1231
30. S. Menon, R.P. Valentini, G. Kapur, S. Layfield, T.K. Mattoo Effectiveness of a multidisciplinary clinic in managing children with chronic kidney disease Clin J Am Soc Nephrol 4 7 2009 1170 1175
31. M.S. Joy, R.M. DeHart, C. Gilmartin Clinical pharmacists as multidisciplinary health care providers in the management of CKD: a joint opinion by the Nephrology and Ambulatory Care Practice and Research Networks of the American College of Clinical Pharmacy Am J Kidney Dis 45 6 2005 1105 1118
32. C. Shanley Supporting family carers through telephone-mediated group programs: opportunities for gerontological social workers J Gerontol Soc Work 51 3/4 2008 199 209
33. J.T. Pardeck, F.Y. Yuen Family health: an emerging paradigm for social workers J Health Soc Policy 13 3 2001 59 74
34. J.R. Rodrigue, D.L. Cornell, B. Kaplan, R.J. Howard Patients' willingness to talk to others about living kidney donation Prog Transplant 18 1 2008 25 31