Children's self-reported quality of life after intensive care treatment*

Pediatric Critical Care Medicine

Volumn 14, Issue 2, 2013, Pages

  Colville, Gillian A ^a,b   Pierce, Christine M ^a  

^a GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^b ST GEORGE S HOSPITAL   (United Kingdom)

Author keywords

outcomes; posttraumatic stress; quality of life; traumatic brain injury

Indexed keywords

ACADEMIC ACHIEVEMENT; ARTICLE; CHILD; CLINICAL ASSESSMENT TOOL; DISEASE SEVERITY; EMOTION; FEMALE; HOSPITAL DISCHARGE; HUMAN; INTENSIVE CARE; MAJOR CLINICAL STUDY; MALE; PEDIATRIC QUALITY OF LIFE INVENTORY; PHYSICAL CAPACITY; POSTTRAUMATIC STRESS DISORDER; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUALITY OF LIFE; QUALITY OF LIFE INDEX; SCHOOL CHILD; SELF REPORT; SOCIAL STATUS;

ADOLESCENT; CHILD; FEMALE; HUMANS; INTENSIVE CARE; INTENSIVE CARE UNITS, PEDIATRIC; MALE; PROSPECTIVE STUDIES; QUALITY OF LIFE; QUESTIONNAIRES; RECOVERY OF FUNCTION; SEVERITY OF ILLNESS INDEX; SOCIAL PARTICIPATION; STATISTICS, NONPARAMETRIC; STRESS DISORDERS, POST-TRAUMATIC; STRESS, PSYCHOLOGICAL; TIME FACTORS;

EID: 84873997873     PISSN: 15297535     EISSN: 19473893     Source Type: Journal    
DOI: 10.1097/PCC.0b013e3182712997     Document Type: Article

References (45)

1. Namachivayam P, Shann F, Shekerdemian L, et al: Three decades of pediatric intensive care: Who was admitted, what happened in intensive care, and what happened afterward. Pediatr Crit Care Med 2010; 11:549-555
2. Morrison W: Mortality, morbidity, and pediatric critical care. Pediatr Crit Care Med 2010; 11:630-631
3. World Health Organization: Constitution of the World Health Organization Constitution Basic Document. Geneva, Switzerland, World Health Organization, 1948
4. Knoester H, Grootenhuis MA, Bos AP: Outcome of paediatric intensive care survivors. Eur J Pediatr 2007; 166:1119-1128
5. Gemke RJ, Bonsel GJ, van Vught AJ: Long-term survival and state of health after paediatric intensive care. Arch Dis Child 1995; 73:196-201
6. Colville G: The psychologic impact on children of admission to intensive care. Pediatr Clin North Am 2008; 55:605-616
7. Rennick JE, Rashotte J: Psychological outcomes in children following pediatric intensive care unit hospitalization: A systematic review of the research. J Child Health Care 2009; 13:128-149
8. Davydow DS, Richardson LP, Zatzick DF, et al: Psychiatric morbidity in pediatric critical illness survivors: A comprehensive review of the literature. Arch Pediatr Adolesc Med 2010; 164:377-385
9. Morrison AL, Gillis J, O'Connell AJ, et al: Quality of life of survivors of pediatric intensive care. Pediatr Crit Care Med 2002; 3:1-5
10. Taylor A, Butt W, Ciardulli M: The functional outcome and quality of life of children after admission to an intensive care unit. Intensive Care Med 2003; 29:795-800
11. Jayshree M, Singhi SC, Malhi P: Follow up of survival and quality of life in children after intensive care. Indian Pediatr 2003; 40:303-309
12. Jones S, Rantell K, Stevens K, et al; United Kingdom Pediatric Intensive Care Outcome Study Group: Outcome at 6 months after admission for pediatric intensive care: A report of a national study of pediatric intensive care units in the United Kingdom. Pediatrics 2006; 118:2101-2108
13. Ambuehl J, Karrer A, Meer A, et al: Quality of life of survivors of paediatric intensive care. Swiss Med Wkly 2007; 137:312-316
14. Torrance GW, Boyle MH, Horwood SP: Application of multi-attribute utility theory to measure social preferences for health states. Oper Res 1982; 30:1043-1069
15. Feeny D, Furlong W, Barr RD, et al: A comprehensive multiattribute system for classifying the health status of survivors of childhood cancer. J Clin Oncol 1992; 10:923-928
16. Dossetor DR, Liddle JL, Mellis CM: Measuring health outcome in paediatrics: Development of the RAHC measure of function. J Paediatr Child Health 1996; 32:519-524
17. Upton P, Lawford J, Eiser C: Parent-child agreement across child health-related quality of life instruments: A review of the literature. Qual Life Res 2008; 17:895-913
18. Knoester H, Bronner MB, Bos AP, et al: Quality of life in children three and nine months after discharge from a paediatric intensive care unit: A prospective cohort study. Health Qual Life Outcomes 2008; 6:21
19. Noyes J: Comparison of ventilator-dependent child reports of healthrelated quality of life with parent reports and normative populations. J Adv Nurs 2007; 58:1-10
20. Varni JW, Seid M, Rode CA: The PedsQL: Measurement model for the pediatric quality of life inventory. Med Care 1999; 37:126-139
21. Colville G, Kerry S, Pierce C: Children's factual and delusional memories of intensive care. Am J Respir Crit Care Med 2008; 177:976-982
22. Colville G, Pierce C: Patterns of post-traumatic stress symptoms in families after paediatric intensive care. Intensive Care Med 2012; 38:1523-1531
23. Pearson G, Stickley J, Shann F: Calibration of the paediatric index of mortality in UK paediatric intensive care units. Arch Dis Child 2001; 84:125-128
24. Townsend P, Phillimore P, Beattie A: Health and deprivation: Inequality and the North. Andover, Croom Helm, 1988
25. Yule W: Anxiety, depression and post-traumatic stress in childhood. In: Child Psychology Portfolio. Sclare I (Ed). Windsor, UK, NFER-Nelson, 1997, pp 35-38. Available online at: http://www.childrenandwar. org/measures. Accessed January 30, 2011
26. Varni JW, Burwinkle TM, Seid M: The PedsQL as a pediatric patientreported outcome: Reliability and validity of the PedsQL Measurement Model in 25,000 children. Expert Rev Pharmacoecon Outcomes Res 2005; 5:705-719
27. Eiser C, Morse R: The measurement of quality of life in children: Past and future perspectives. J Dev Behav Pediatr 2001; 22:248-256
28. Janssens L, Gorter JW, Ketelaar M, et al: Health-related quality-of-life measures for long-term follow-up in children after major trauma. Qual Life Res 2008; 17:701-713
29. Varni JW, Burwinkle TM, Rapoff MA, et al: The PedsQL in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module. J Behav Med 2004; 27:297-318
30. Varni JW, Burwinkle TM, Katz ER, et al: The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 2002; 94:2090-2106
31. Varni JW, Burwinkle TM, Jacobs JR, et al: The PedsQL in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care 2003; 26:631-637
32. Varni JW, Burwinkle TM, Seid M, et al: The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambul Pediatr 2003; 3:329-341
33. Upton P, Eiser C, Cheung I, et al: Measurement properties of the UKEnglish version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2005; 3:22
34. Horowitz M, Wilner N, Alvarez W: Impact of Event Scale: A measure of subjective stress. Psychosom Med 1979; 41:209-218
35. Stallard P, Velleman R, Baldwin S: Psychological screening of children for posttraumatic stress disorder. J Child Psychol Psychiatry 1999; 40:1075-1082
36. Smith P, Perrin S, Dyregov A, et al: Principal components analysis of the Impact of Event scale with children in war. Pers Individ Dif 2003; 34:315-322
37. Perrin S, Meiser-Stedman R, Smith P: The Children's Revised Impact of Event Scale (CRIES): Validity of a screening instrument for PTSD. Behav Cogn Psychother 2005; 33:487-498
38. Schelling G, Stoll C, Haller M, et al: Health-related quality of life and posttraumatic stress disorder in survivors of the acute respiratory distress syndrome. Crit Care Med 1998; 26:651-659
39. Landolt MA, Buehlmann C, Maag T, et al: Brief report: Quality of life is impaired in pediatric burn survivors with posttraumatic stress disorder. J Pediatr Psychol 2009; 34:14-21
40. Calvert S, Miller HE, Curran A, et al: The King's Outcome Scale for Childhood Head Injury and injury severity and outcome measures in children with traumatic brain injury. Dev Med Child Neurol 2008; 50:426-431
41. Mistry RD, Stevens MW, Gorelick MH: Health-related quality of life for pediatric emergency department febrile illnesses: An evaluation of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Health Qual Life Outcomes 2009; 7:5
42. Noyes J: Enabling young 'ventilator-dependent' people to express their views and experiences of their care in hospital. J Adv Nurs 2000; 31:1206-1215
43. Conlon NP, Breatnach C, O'Hare BP, et al: Health-related quality of life after prolonged pediatric intensive care unit stay. Pediatr Crit Care Med 2009; 10:41-44
44. Graham RJ, Pemstein DM, Curley MA: Experiencing the pediatric intensive care unit: Perspective from parents of children with severe antecedent disabilities. Crit Care Med 2009; 37:2064-2070
45. Taylor AB, Butt W: The evaluation of outcome following paediatric intensive care: The major issues identified. Clin Intensive Care 2000; 11:239-244