Receipt of cancer treatment summaries and follow-up instructions among adult cancer survivors: Results from a national survey

Journal of Cancer Survivorship

Volumn 7, Issue 1, 2013, Pages 32-43

  Sabatino, Susan A ^a   Thompson, Trevor D ^a   Smith, Judith Lee ^a   Rowland, Julia H ^b   Forsythe, Laura P ^b   Pollack, Loria ^a   Hawkins, Nikki A ^a  

^a CENTERS FOR DISEASE CONTROL AND PREVENTION   (United States)

^b NATIONAL CANCER INSTITUTE   (United States)

Author keywords

Cancer follow up care; Cancer survivors; Survivorship care plans; Treatment summaries

Indexed keywords

EID: 84873748613     PISSN: 19322259     EISSN: 19322267     Source Type: Journal    
DOI: 10.1007/s11764-012-0242-x     Document Type: Article

References (35)

1. Altekruse SF, Kosary CL, Krapcho M, Neyman N, Aminou R, Waldron W, et al. SEER Cancer Statistics Review, 1975-2008, National Cancer Institute. Bethesda, MD, http://seer. cancer. gov/csr/1975_2007/, based on November 2010 SEER data submission, posted to SEER web site, 2011.
2. Cancer survivors-United States, 2007. MMWR Morb Mortal Wkly Rep. 2011; 60: 269-272.
3. Mariotto AG, Rowland JH, Ries LAG, Scoppa S, Feuer EJ. Multiple cancer prevalence: a growing challenge in long-term survivorship. Cancer Epidemiol Biomarkers Prev. 2007; 16: 566-71.
4. Ganz PA. Late effects of cancer and its treatment. Semin Oncol Nurs. 2001; 17: 241-8.
5. Earle CC. Failing to plan is planning to fail: improving the quality of care with survivorship care plans. J Clin Oncol. 2006; 24: 5112-6.
6. Hewitt ME, Weiner SL, Simone JV. Childhood cancer survivorship: improving care and quality of life. Washington, DC: National Academies Press; 2003.
7. Doroshow JH. Doxorubicin-induced cardiac toxicity. N Engl J Med. 1991; 324: 843-5.
8. Earle CC. Long term care planning for cancer survivors: a health services research agenda. J Cancer Surviv. 2007; 1: 64-74.
9. Erikson C, Salsberg E, Forte G, Bruinooge S, Goldstein M. Future supply and demand for oncologists: challenges to assuring access to oncology services. J Oncol Pract. 2007; 3: 79-86.
10. Ganz PA. Survivorship: adult cancer survivors. Prim Care. 2009; 36: 721-41.
11. Pollack LA, Adamache W, Ryerson AB, Eheman CR, Richardson LC. Care of long-term cancer survivors: physicians seen by Medicare enrollees surviving longer than 5 years. Cancer. 2009; 115: 5284-95.
12. Hewitt ME, Greenfield S, Stovall E. From cancer patient to cancer survivor: lost in transition. Washington, DC: National Academies Press; 2006.
13. Bober SL, Recklitis CJ, Campbell EG, Park ER, Kutner JS, Najita JS, et al. Caring for cancer survivors: a survey of primary care physicians. Cancer. 2009; 115: 4409-18.
14. Kantsiper M, McDonald EL, Geller G, Shockney L, Snyder C, Wolff AC. Transitioning to breast cancer survivorship: perspectives of patients, cancer specialists, and primary care providers. J Gen Intern Med. 2009; 24 Suppl 2: S459-66.
15. Potosky AL, Han PK, Rowland J, Klabunde CN, Smith T, Aziz N, et al. Differences between primary care physicians' and oncologists' knowledge, attitudes and practices regarding the care of cancer survivors. J Gen Intern Med. 2011; 26: 1403-10.
16. Mertens AC, Cotter KL, Foster BM, Zebrack BJ, Hudson MM, Eshelman D, et al. Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts. Health Policy. 2004; 69: 169-78.
17. Miedema B, MacDonald I, Tatemichi S. Cancer follow-up care. Patients' perspectives. Can Fam Physician. 2003; 49: 890-5.
18. Hewitt ME, Ganz PA. Implementing cancer survivorship care planning: workshop summary. Washington, DC: National Academies Press; 2007.
19. Reuben SH. Living beyond cancer: finding a new balance. President's Cancer Panel 2003-2004 Annual Report. U. S. Department of Health and Human Services, National Institutes of Health, National Cancer Institute; 2004.
20. CDC. A national action plan for cancer survivorship: advancing public health strategies. Atlanta GA: CDC; 2004. Available at http://www. cdc. gov/cancer/survivorship/pdf/plan. pdf.
21. National Center for Health Statistics. Data File Documentation, National Health Interview Survey, 2010 (machine readable data file and documentation). Hyattsville: National Center for Health Statistics, Centers for Disease Control and Prevention; 2011.
22. Harrell FE. Regression modeling strategies: with applications to linear models, logistic regression, and survival analysis. New York: Springer; 2001.
23. Frank E Harrell Jr, with contributions from many other users. Hmisc. Harrell Miscellaneous. R package version 3. 7-0; 2009.
24. R Development Core Team. R: A language and environment for statistical computing. Vienna: R Foundation for Statistical Computing; 2009.
25. Park SM, Park CT, Park SY, Bae DS, Nam JH, Cho CH, et al. Factors related to second cancer screening practice in disease-free cervical cancer survivors. Cancer Causes Control. 2009; 20: 1697-703.
26. Wilson SE, Andersen MR, Meischke H. Meeting the needs of rural breast cancer survivors: what still needs to be done? J Women Health Gen B. 2000; 9: 667-77.
27. Earle CC, Neville BA. Under use of necessary care among cancer survivors. Cancer. 2004; 101: 1712-9.
28. Earle CC, Burstein HJ, Winer EP, Weeks JC. Quality of non-breast cancer health maintenance among elderly breast cancer survivors. J Clin Oncol. 2003; 21: 1447-51.
29. Snyder CF, Frick KD, Peairs KS, Kantsiper ME, Herbert RJ, Blackford AL, et al. Comparing care for breast cancer survivors to non-cancer controls: a five-year longitudinal study. J Gen Intern Med. 2009; 24: 469-74.
30. Kadan-Lottick NS, Robison LL, Gurney JG, Neglia JP, Yasui Y, Hayashi R, et al. Childhood cancer survivors' knowledge about their past diagnosis and treatment: childhood cancer survivor study. JAMA. 2002; 287: 1832-9.
31. Schappert SM, Burt CW. Ambulatory care visits to physician offices, hospital outpatient departments, and emergency departments: United States, 2001-02. National Center for Health Statistics. Vital Health Stat. 2006; 13: 1-73.
32. Onega T, Duell EJ, Shi X, Demidenko E, Goodman DC. Race versus place of service in mortality among medicare beneficiaries with cancer. Cancer. 2010; 116: 2698-706.
33. Grunfeld E, Levine MN, Julian JA, Coyle D, Szechtman B, Mirsky D, et al. Randomized trial of long-term follow-up for early-stage breast cancer: a comparison of family physician versus specialist care. J Clin Oncol. 2006; 24: 848-55.
34. Oeffinger KC, Hudson MM, Mertens AC, et al. Increasing rates of breast cancer and cardiac surveillance among high-risk survivors of childhood Hodgkin lymphoma following a mailed, one-page survivorship care plan. Pediatr Blood Cancer. 2010; 56: 818-24.
35. Hewitt M, Breen N, Devesa S. Cancer prevalence and survivorship issues: analyses of the 1992 National Health Interview Survey. J Natl Cancer Inst. 1999; 91: 1480-6.