Understanding the symptom experience of patients with gastrointestinal cancers in the first year following diagnosis: Findings from a qualitative longitudinal study

Journal of Gastrointestinal Cancer

Volumn 44, Issue 1, 2013, Pages 60-67

  Ellis, J ^a   Brearley, S G ^b   Craven, O ^c   Molassiotis, A ^a,d  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b LANCASTER UNIVERSITY   (United Kingdom)

^c CHRISTIE HOSPITAL   (United Kingdom)

^d HONG KONG POLYTECHNIC UNIVERSITY   (Hong Kong)

Author keywords

Gastrointestinal cancers; Qualitative interviews; Return to work; Support; Survivorship; Symptom experience

Indexed keywords

ANTINEOPLASTIC AGENT;

ADULT; AGED; ARTICLE; BILE DUCT CARCINOMA; CANCER CHEMOTHERAPY; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CANCER RADIOTHERAPY; CANCER SURVIVAL; CARCINOID; CHEMORADIOTHERAPY; CLINICAL ARTICLE; CLINICAL INDICATOR; COLORECTAL CANCER; DIGESTIVE SYSTEM CANCER; ESOPHAGUS CANCER; FEAR; FEMALE; HORMONAL THERAPY; HUMAN; INTERVIEW; LIVER CELL CARCINOMA; LONGITUDINAL STUDY; MALE; OFFICE WORKER; PANCREAS CANCER; PENSIONER; PERSONAL EXPERIENCE; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUALITATIVE RESEARCH; QUALITY OF LIFE; RETURN TO WORK; SELF CONCEPT; SEMI STRUCTURED INTERVIEW; STOMACH CANCER; SYMPTOM; UNCERTAINTY; UNEMPLOYMENT;

EID: 84873741300     PISSN: 19416628     EISSN: 19416636     Source Type: Journal    
DOI: 10.1007/s12029-012-9443-9     Document Type: Article

References (36)

1. Gustafsson BI, Siddique L, Chan A, Dong M, Drozdov I, Kidd M, Modlin IM. Uncommon cancers of the small intestine, appendix and colon: an analysis of SEER 1973-2004, and current diagnosis and therapy. Int J Oncol. 2010;33(6):1121-31.
2. Milosavljevic T, Kostic-Milosaljevic M, Jovanovic I, Krstic M. Gastrointestinal and liver tumours and public health in Europe. Eur Rev Med Pharm Sci. 2010;14(4):259-62.
3. Alfano CM, Rowland JH. Recovery issues in cancer survivorship: a new challenge for supportive care. Cancer J. 2006;12(5):432-43.
4. Haller D. Recovering the thread of life - destruction and reconstruction of the social world of patients after cancer of the colon. Pflege. 1995;8(3):187-202.
5. Simpson MF, Whyte F. Patients' experiences of completing treatment for colorectal cancer in a Scottish District General Hospital. Eur J Cancer Care. 2006;15(2):172-82.
6. National Cancer Survivor Initiative. Priorities for research on cancer survivorship: A report from the National Cancer Survivorship Initiative Research Workstream. 2010. Available at: www.ncsi.org.uk
7. Lopez V, Copp G, Brunton L, Molassiotis A. Symptom experience in patients with gynecological cancers: the development of symptom clusters through patient narratives. J Support Oncol. 2011;9(2):64-71.
8. Tighe M, Molassiotis A, Morris J, Richardson J. Coping, meaning and symptom experience: a narrative approach to the overwhelming impacts of breast cancer in the first year following diagnosis. Eur J Oncol Nurs. 2011;15(3):226-32.
9. Lowe M, Molassiotis A. A longitudinal qualitative analysis of the factors that influence patient distress within the lung cancer population. Lung Cancer. 2011;74(2):344-8.
10. Molassiotis A, Wilson B, Brunton L, Chaudhary H, Gattamaneni R, McBain C. Symptom experience in patients with primary brain tumours: a longitudinal exploratory study. Eur J Oncol Nurs. 2010;14(5):410-6.
11. Molassiotis A, Lowe M, Blackhall F, Lorigan P. A qualitative exploration of a respiratory distress symptom cluster in lung cancer: cough, breathlessness and fatigue. Lung Cancer. 2011;71(1):94-102.
12. Johansson E, Wilson B, Brunton L, Tishelman C, Molassiotis A. Symptoms before, during, and 14 months after the beginning of treatment as perceived by patients with lymphoma. Oncol Nurs Forum. 2010;37(2):E105-13.
13. Leventhal H, Johnson J. Laboratory and field experimentation: development of a theory of self-regulation. In: Wooldridge P, Schmitt M, Skipper J, Leonard R, editors. Behavioral science and nursing theory. St. Louis, MO: Mosby; 1983. p. 189-262.
14. Miles MB, Huberman AM. Qualitative data analysis: an expanded sourcebook. New York: SAGE; 1994.
15. Cooley ME, Short TH, Moriarty HJ. Symptom prevalence, distress, and change over time in adults receiving treatment for lung cancer. Psycho-Oncol. 2003;12(7):694-708.
16. Barton-Burke M. Cancer-related fatigue and sleep disturbances: further research on the prevalence of these two symptoms in long-term cancer survivors can inform education, policy, and clinical practice. Cancer Nurs. 2006;29(2):72-7.
17. Rozmovits L, Ziebland S. Expressions of loss of adulthood in the narratives of people with colorectal cancer. Qual Health Res. 2004;14(2):187-203.
18. Lawrence DP, Kupelnick B, Miller K, Devine D, Lau J. Evidence report on the occurrence, assessment, and treatment of fatigue in cancer patients. JNCI Monogr. 2004;2004(32):40-50.
19. Nail LM. Cognitive changes in cancer survivors: cancer and cancer treatment often cause cognitive deficits, but no guidelines exist for screening or treatment. Am J Nurs. 2006;106:48-54.
20. Anderson-Hanley C, Sherman ML, Riggs R, Agocha VB, Compas BE. Neuropsychological effects of treatments for adults with cancer: a meta-analysis and review of the literature. J Int Neuropsych Soc. 2003;9(7):967-82.
21. Heflin LH, Meyerowitz BE, Hall P, Lichtenstein P, Johansson B, Pedersen NL, Gatz M. Cancer as a risk factor for long-term cognitive deficits and dementia. J Nat Cancer Inst. 2005;97(11):854-6.
22. Peteet JR. Cancer and the meaning of work. Gen Hosp Psych. 2000;22(3):200-5.
23. Steiner JF, Cavender TA, Main DS, Bradley CJ. Assessing the impact of cancer on work outcomes. Cancer. 2004;101(8):1703-11.
24. Arndt V, Merx H, Stegmaier C, Ziegler H, Brenner H. Quality of life in patients with colorectal cancer 1 year after diagnosis compared with the general population: a population-based study. J Clin Oncol. 2004;22(23):4829-36.
25. Sanchez KM, Richardson JL, Mason HR. The return to work experiences of colorectal cancer survivors. AAOHN J. 2004;52(12):500-10.
26. Hubbard G, Kidd L, Kearney N. Disrupted lives and threats to identity: the experiences of people with colorectal cancer within the first year following diagnosis. Health. 2010;14(2):131-46.
27. Manderson L. Boundary breaches: the body, sex and sexuality after stoma surgery. Soc Sci Med. 2005;61(2):405-15.
28. Knowles G, Tierney A, Jodrell D, Cull A. The perceived information needs of patients receiving adjuvant chemotherapy for surgically resected colorectal cancer. Eur J Oncol Nurs. 1999;3(4):208-20.
29. Benzein E, Norberg A, Saveman BI. The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliat Med. 2001;15(2):117-26.
30. Benzein E, Saveman BI. Nurses' perception of hope in patients with cancer: a palliative care perspective. Cancer Nurs. 1998;21(1):10-6.
31. Berterö C, Vanhanen M, Appelin G. Receiving a diagnosis of inoperable lung cancer: patients' perspectives of how it affects their life situation and quality of life. Acta Oncol. 2008;47(5):862-9.
32. Berendes D, Keefe FJ, Somers TJ, Kothadia SM, Porter LS, Cheavens JS. Hope in the context of lung cancer: relationships of hope to symptoms and psychological distress. J Pain Symptom Manag. 2010;40(2):174-82.
33. Deimling GT, Bowman KF, Sterns S, Wagner LJ, Kahana B. Cancer-related health worries and psychological distress among older adult, long-term cancer survivors. Psycho-Oncol. 2006;15(4):306-20.
34. Harrison SE, Watson EK, Ward AM, Khan NF, Turner D, Adams E, Forman D, Roche MF, Rose PW. Primary health and supportive care needs of long-term cancer survivors: a questionnaire survey. J Clin Oncol. 2011;29(15):2091-8.
35. Bennion AE, Molassiotis A. Qualitative research into the symptom experiences of adult cancer patients after treatments: a systematic review and meta-synthesis. Support Care Cancer. 2012. doi: 10.1007/s00520-012-1573-x.
36. Quinn Patton M. Qualitative research and evaluation methods. 3rd ed. Thousand Oaks: Sage; 2002. p. 235.