Diabetes and end of life: Ethical and methodological issues in gathering evidence to guide care

Scandinavian Journal of Caring Sciences

Volumn 27, Issue 1, 2013, Pages 203-211

  Dunning, Trisha ^a   Duggan, Nicole ^a   Savage, Sally ^a   Martin, Peter ^b  

^a BARWON HEALTH   (Australia)

^b Palliative Care Services   (Australia)

Author keywords

Chronic illness; Diabetes; Ethics

Indexed keywords

ARTICLE; DIABETES MELLITUS; ETHICS; EVIDENCE BASED MEDICINE; HUMAN; ORGANIZATION AND MANAGEMENT; TERMINAL CARE;

DIABETES MELLITUS; ETHICS; EVIDENCE-BASED MEDICINE; HUMANS; TERMINAL CARE;

EID: 84873448533     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/j.1471-6712.2012.01016.x     Document Type: Article

References (25)

1. Evans W, Morely J, Argiles J, Bales C, Baracos V, Guttridge D, Jatoi A, Kalantar-Zadeh K, Loch H, Mantovani G, Marks D, Milch W, Muscaritoli M, Najand A, Ponikowski P, Fanelli F, Schombelan M, Schols A, Schuster M, Thomas D, Wolfe R, Anker S.Cachexia: a new definition. Clin Nutr 2008; 27: 793-9.
2. Emanuel L, Alexander C, Arnold RM, Bernstein R, Dart R, Dellasantina C, Dykstra L, Tulsky J. Palliative Care Guidelines Group of the American Hospice Foundation. Integrating palliative care into disease management guidelines. J Palliat Med 2004; 7: 774-83.
3. Dunning T, Savage S, Duggan N, Martin P. Developing Guidelines for Managing Diabetes at the End of Life: Final Report. 2010, Geelong.
4. Quinn K, Hudson P, Dunning T. Diabetes management in patients receiving palliative care. J Pain Symptom Manage 2006; 32: 275-86.
5. Poulson J. The management of diabetes in patients with advanced cancer. J Pain Symptom Manage 1997; 13: 339-46.
6. National Health and Medical Research Council. A Guide to The Development, Implementation and Evaluation of Clinical Practice Guidelines. 1999, National Health and Medical Research Council, Canberra.
7. Palliative Care Outcomes Collaboration (PCOC). PCOC Assessment Tool Definitions: Phase V 1.2. http://chsd.uow.edu.au/pcoc/documents/phase_definitions.pdf (last accessed September, 2010).
8. Ritchie J, Spencer L. Quantitative data analysis for applied policy research. In Analysing Qualitative Data (Bryman A, Burgess R, eds), 1994, Routledge, London, 173-94.
9. Koffman J, Morgan M, Edmonds P, Speck P, Higginson IJ. Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer. J Med Ethics 2009; 35: 440-4.
10. Kipnis K. Vulnerability in research subjects: a bioethical taxonomy. In Ethical and Policy Issues in Research Involving Human Research Participants (National Bioethics Advisory Commission, eds), 2001, National Bioethics Advisory Commission, Bethesda, Maryland.
11. Reid J. Conducting qualitative research with advanced cancer patients and their families: ethical considerations. Int J Palliat Nurs 2009; 15: 30-33.
12. Declaration of Geneva. Adopted by the General Assembly of World Medical Associations at Geneva, September 1948, Switzerland, 1948.
13. National Health and Medical Research Council. Statement on Ethical Conduct in Research Involving Humans. 1999, NHMRC, Canberra.
14. Länsimies-Antikainen H, Laitinen T, Rauramaa R, Pietilä A. Evaluation of informed consent in health research: a questionnaire survey. Scand J Caring Sci 2010; 24: 56-64.
15. Farsides C. How informed can consent ever be? In Ethics in Palliative Care (Webb P, ed.), 2005, Radcliffe Publishing, Oxford, 83-96.
16. Hudson P, Aranda S, Kristjanson LJ, Quinn K. Minimising gate-keeping in palliative care research. Eur J Palliat Care 2005; 12: 165-9.
17. Plant H. Research interviewing. Palliat Med 1996; 10: 339-41.
18. Locher J, Bronstein J, Robinson C, Williams C, Ritchie C. Ethical issues involving research conducted with homebound older adults. Gerontologist 2006; 46: 160-4.
19. Bailey R. Methods of Social Research. 1987, Free Press, New York.
20. Aoun SM, Kristjanson LJ. Evidence in palliative care research: how should it be gathered?Med J Aust 2005; 183: 264-6.
21. Bennett M, Ahmedzai M. APM Science Committee for Palliative Medicine. Evidence based clinical guideline for palliative care: the work of the APM Science Committee. Palliat Med 2000; 14: 453-4.
22. Ryan G. What are Standards of Rigor for Qualitative Research. 2010, Rand Corporation, http://www.wjh.harvard.edu/nsfqual/Ryan%20Paper.pdf (last accessed August 2010).
23. Golafshani N. Understanding reliability and validity in qualitative research. Qual Rep 2003; 8: 597-607.
24. Burns N, Grove S. The Practice of Nursing Research: Conduct, Critique, and Utilisation. 2005, Elsevier, St. Louis, Missouri.
25. Numminen O, van der Arend A, Leino-Kilpi H. Nurses' codes of ethics in practice and education: a review of the literature. Scand J Caring Sci 2009; 23: 380-94.