A long journey: Biological and non-biological parents' experiences raising children with FASD

Journal of Population Therapeutics and Clinical Pharmacology

Volumn 17, Issue 2, 2010, Pages

  Sanders, James L ^a   Buck, George ^a  

^a UNIVERSITY OF ALBERTA   (Canada)

Author keywords

Fetal alcohol spectrum disorders (FASD); Parenting; Qualitative research

Indexed keywords

EID: 84873442767     PISSN: 17106222     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (36)

1. Lemoine P, Harrouseau H, Borteyru JP, Menuet JC. Les enfants de parents alcoholiques: Anomalies observees a propos de 127 cas. Ouest Medical 1968;8:476-482.
2. Jones KL, Smith DW. Recognition of the fetal alcohol syndrome in early infancy. Lancet 1973;2(7836):999-1001.
3. Jones KL, Smith DW, Streissguth AP, Myrianthopoulos NC. Outcome in offspring of chronic alcoholic women. Lancet 1974 Jun 1;1(7866):1076-1078.
4. Kodituwakku PW. Neurocognitive profile in children with fetal alcohol spectrum disorders. Dev Disabil Res Rev 2009;15(3):218-224.
5. Mattson SN, Riley EP, Gramling L, Delis DC, Jones KL. Heavy prenatal alcohol exposure with or without physical features of fetal alcohol syndrome leads to IQ deficits. J Pediatr 1997 Nov;131(5):718-721.
6. Rasmussen C. Executive functioning and working memory in fetal alcohol spectrum disorder. Alcohol Clin Exp Res 2005 Aug;29(8):1359-1367.
7. Coles CD, Platzman KA, Lynch ME, Freides D. Auditory and visual sustained attention in adolescents prenatally exposed to alcohol. Alcohol Clin Exp Res 2002 Feb;26(2):263-271.
8. Mattson SN, Riley EP. Implicit and explicit memory functioning in children with heavy prenatal alcohol exposure. J Int Neuropsychol Soc 1999 Jul;5(5):462-471.
9. McGee CL, Fryer SL, Bjorkquist OA, Mattson SN, Riley EP. Deficits in social problem solving in adolescents with prenatal exposure to alcohol. Am J Drug Alcohol Abuse 2008;34(4):423-431.
10. Mattson SN, Schoenfeld AM, Riley EP. Teratogenic effects of alcohol on brain and behavior. Alcohol Research & Health 2001;25(3):185-191.
11. Streissguth AP. Recent advances in fetal alcohol syndrome and alcohol use in pregnancy. In: Dharam P. Agarwal, Helmut K. Seitz, editors. Alcohol in health and disease. New York, NY, US: Marcel Dekker; 2001. p 303-324.
12. Streissguth AP, Bookstein FL, Barr HM, Sampson PD, O'Malley K, Young JK. Risk factors for adverse life outcomes in fetal alcohol syndrome and fetal alcohol effects. Journal of Developmental & Behavioral Pediatrics 2004 Aug;25(4):228-238.
13. Chudley AE, Conry J, Cook JL, Loock C, Rosales T, LeBlanc N. Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis. Can Med Assoc J 2005 Mar;172(Suppl):S1-S21.
14. Brown JD, Bednar LM. Parenting children with fetal alcohol spectrum disorder: A concept map of needs. DevelopmentalDisabilitiesBulletin 2003;31(2):130-154.
15. Frankel H, Frankel S, Opie SC. Service needs, environmental facilitating factors and barriers: The experience of families successfully caring for children affected by fetal alcohol spectrum disorders. Proceedings at the 8th Annual Fetal Alcohol Canadian Expertise (FACE) Research Roundtable; 2007 September 7; Winnipeg, MN. Retrievedfrom http://www.motherisk.org/fas6/webcast/index.html (June 28, 2010).
16. Brown JD, Bednar LM. Challenges of parenting children with a fetal alcohol spectrum disorder: A concept map. J Fam Soc Work 2004;8(3):1-18.
17. Paley B, O'Connor MJ, Frankel F, Marquardt R. Predictors of stress in parents of children with fetal alcohol spectrum disorders. Journal of Developmental & Behavioral Pediatrics 2006 10//;27(5):396-404.
18. Brown JD. Family supports for children who have alcohol-related disabilities. Developmental Disabilities Bulletin 2004;32(1):44-61.
19. Granitsas J. Experiences of adoptive parents of children with fetal alcohol syndrome. Clinical Excellence for Nurse Practitioners 2004;8(1):22-28.
20. Gardner J. Living with a child with fetal alcohol syndrome. MCN: The American Journal of Maternal/Child Nursing 2000 Sep-Oct;25(5):252-257.
21. Salmon J. Fetal alcohol spectrum disorder: New zealand birth mothers' experiences. Can J Clin Pharmacol 2008;15(2):e191-213.
22. Van Manen M. Researching lived experience: Human sciences for an action sensitive pedagogy. London, ON: The Althouse Press; 1990.
23. Rehorick DA, Taylor G. Thoughtful incoherence: First encounters with the phenomenological-hermeneutical domain. Human Studies 1995 10;18(4):389-414.
24. LeVasseur JJ. The problem of bracketing in phenomenology. Qual Health Res 2003 03;13(3):408.
25. Osborne JW. Some basic existential-phenomenological research methodology for counsellors. Canadian Journal of Counselling 1990 Apr;24(2):79-91.
26. Streissguth AP. Fetal alcohol syndrome:Aguide for families and communities. Baltimore, MD: Paul H. Brookes Publishing Co.; 1997.
27. Mattson SN, Riley EP. A review of the neurobehavioral deficits in children with fetal alcohol syndrome or prenatal exposure to alcohol. Alcoholism: Clinical and Experimental Research 1998 Apr;22(2):279-294.
28. Odishaw J, Snart F. Assessment of cognitive processing in persons with FASD: A promising alternative to traditional IQ measures. Exceptionality Education Canada 2005;15(1):25-41.
29. Nevin AC, Parshuram C, Nulman I, Koren G, Einarson A. A survey of physicians knowledge regarding awareness of maternal alcohol use and the diagnosis of FAS. BMC Fam Pract 2002;3:2.
30. Hay M. A practical roadmap for the imperfect but practical-minded clinician. In: J. Turpin, G. Schmidt, editors. Fetal alcohol Syndrome/Effect: Developing a community response. Halifax: Fernwood; 1999. p 26-43.
31. Armstrong EM. Conceiving risk, bearing responsibility: Fetal alcohol syndrome and the diagnosis of moral disorder. Baltimore, MD: John Hopkins University Press; 2003.
32. Carmichael B, Pembrey M, Turner G, Barnicoat A. Diagnosis of fragile-X syndrome: The experiences of parents. Journal of Intellectual Disability Research 1999;43:47-53.
33. Ryan S, Ferguson DL. On, yet under, the radar: Students with fetal alcohol syndrome disorder. Except Child 2006 Spr;72(3):363-379.
34. Jones K. The ecology of FAS/E: Developing an interdisciplinary approach to intervention with alcohol-affected children and their families. In: J. Turpin, G. Schmidt, editors. Fetal alcohol syndrome/ effect: Developing a community response. Halifax: Fernwood; 1999. p 80-87.
35. Schonfeld AM, Mattson SN, Riley EP. Moral maturity and delinquency after prenatal alcohol exposure. J Stud Alcohol 2005 Jul;66(4):545-554.
36. Kodituwakku PW. Defining the behavioral phenotype in children with fetal alcohol spectrum disorders: A review. Neuroscience & Biobehavioral Reviews 2007;31(2):192-201.