Parents' experiences of support during and after their child's diagnosis of Meningococcal Disease

Acta Paediatrica, International Journal of Paediatrics

Volumn 102, Issue 3, 2013, Pages

  Sweeney, Faye ^a   Viner, Russell M ^a   Booy, Robert ^b   Christie, Deborah ^a  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Adolescents; Children; Meningococcal disease; Qualitative research; Support

Indexed keywords

ARTICLE; CAREGIVER SUPPORT; CHILD; CHILD HEALTH CARE; CONTROLLED STUDY; DISEASE ACTIVITY; DISEASE COURSE; FOLLOW UP; HEALTH CARE PERSONNEL; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MEDICAL EDUCATION; MEDICAL INFORMATION; MENINGOCOCCAL SEROGROUP B DISEASE; MENINGOCOCCOSIS; PARENT; PARENTAL STRESS; POPULATION BASED CASE CONTROL STUDY; PRIORITY JOURNAL; STRUCTURED INTERVIEW;

ADOLESCENT; CHILD; COHORT STUDIES; FEMALE; GREAT BRITAIN; HEALTH COMMUNICATION; HEALTH EDUCATION; HUMANS; MALE; MENINGOCOCCAL INFECTIONS; NEEDS ASSESSMENT; NEISSERIA MENINGITIDIS, SEROGROUP B; PARENTS; PROFESSIONAL-FAMILY RELATIONS; SOCIAL SUPPORT;

EID: 84873406857     PISSN: 08035253     EISSN: 16512227     Source Type: Journal    
DOI: 10.1111/apa.12112     Document Type: Article

References (24)

1. Health Protection Agency. Meningococcal Reference Unit isolates of Neisseria menengitidis: England and Wales, by serogroup & epidemiological year. 1998/99-2009/10. Available at: http://www.hpa.org.uk/web/ HPAweb&HPAwebStandard/HPA web-C/1234859711901 (accessed on January 29, 2012).
2. Erickson L, DeWals P,. Complications and sequelae of meningococcal disease in Quebec, Canada. Clin Infect Dis 1998; 26: 1159-64.
3. Shears D, Nadel S, Gledhill J, Garralda ME,. Short-term psychiatric adjustment of children and their parents following meningococcal disease. Pediatr Crit Care Med 2005; 6: 39-43.
4. Kai J,. What worries parents when their preschool children are acutely ill, and why: a qualitative study. BMJ 1996; 313: 983-6.
5. Audit Commission. Children First: A Study of Hospital Services. London: HMSO, 1993.
6. Department of Health. Welfare of Children And Young People in Hospital. London: HMSO, 1991.
7. Noyes J,. The impact of knowing your child is critically ill: a qualitative study of mothers' experiences. J Adv Nurs 1999; 29: 427-35.
8. Fisher HR,. Needs of parents with chronically sick children: a literature review. J Adv Nurs 2001; 36: 600-7.
9. Viner RM, Booy R, Johnson H, Edmunds EJ, Hudson L, Bedford H, et al. Outcomes of invasive meningococcal serogroup B disease in children and adolescents (MOSAIC): a case-control study. Lancet Neurol 2012; 11: 774-83.
10. Frey L,. The naturalistic paradigm: studying small groups in the postmodern era. Small group research 1994; 25: 551-77.
11. Weber RP,. Basic content analysis. 2nd ed. Newbury Park, CA: Sage, 1990.
12. Graneheim UH, Lundman B,. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004; 24: 105-12.
13. Hsiu-Fang H, Shannon SE,. Three approaches to qualitative content analysis. Qual Health Res 2005; 15: 1277-88.
14. Schilling J,. On the pragmatics of qualitative assessment: designing the process for content analysis. Eur J Psychol Assess 2006; 22: 28-37.
15. Lincoln YS, Guba EG,. Naturalistic Inquiry. Beverly Hills, CA: Sage Publications, 1985.
16. Borg J, Christie D, Coen PG, Booy R, Viner RM,. Outcomes of meningococcal disease in adolescence: prospective, matched-cohort study. Paediatrics 2009; 123: 502-9.
17. Thompson MJ, Ninis ', Perera R, Mayon-White R, Phillips C, Bailey L, et al. Clinical recognition of meningococcal disease in children and adolescents. Lancet 2006; 367: 397-403.
18. Koorevaar R, Bruijnzeels MA, Van der Wouden JC, Van derDoes E, Van derVelden K, Van Suijleom-Smit LWA,. Patients with suspected meningitis: a study in general practice. Eur J Gen Pract 1995; 1: 21.
19. Granier S, Owen P, Pill R, Jacobson L,. Recognising meningococcal disease in primary care: qualitative study of how general practitioners process clinical and contextual information. BMJ 1998; 316: 276-9.
20. Nadel S, Britto J, Booy R, Maconochie I, Habibi P, Levin M,. Avoidable deficiencies in the delivery of health care to children with meningococcal disease. J Accid Emerg Med 1998; 15: 298-303.
21. Hutchfield K,. Family-centred care: a concept analysis. J Adv Nurs 1999; 29: 1178-87.
22. Mikkelsen G, Frederiksen K,. Family-centred care of children in hospital-a concept analysis. J Adv Nurs 2011; 67: 1152-62.
23. Callery P,. Caring for parents of hospitalized children: a hidden area of nursing work. J Adv Nurs 1997; 26: 992-8.
24. Kai J,. Parents' difficulties and information needs in coping with acute illness in preschool children: a qualitative study. BMJ 1996; 313: 987-90.