Perspectives of a lifelong cancer survivor-Improving survivorship care

Nature Reviews Clinical Oncology

Volumn 10, Issue 2, 2013, Pages 117-120

  Rechis, Ruth ^a   Arvey, Sarah R ^a   Beckjord, Ellen Burke ^b  

^a LIVESTRONG Foundation   (United States)

^b UNIVERSITY OF PITTSBURGH CANCER INSTITUTE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CANCER PALLIATIVE THERAPY; CANCER SCREENING; CANCER SURVIVAL; CANCER SURVIVOR; EMOTION; EMPLOYMENT; FINANCIAL DEFICIT; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH CARE QUALITY; HEALTH INSURANCE; HODGKIN DISEASE; HUMAN; PATIENT ADVOCACY; PATIENT ATTITUDE; PATIENT CARE; PATIENT EDUCATION; PATIENT REFERRAL; PERSONAL EXPERIENCE; PHYSICAL DISEASE; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; REVIEW; SURVIVAL RATE;

ADULT; DELIVERY OF HEALTH CARE; FEMALE; HODGKIN DISEASE; HUMANS; NEEDS ASSESSMENT; PATIENT ADVOCACY; PATIENT EDUCATION AS TOPIC; PATIENT-CENTERED CARE; SURVIVAL RATE; SURVIVORS; YOUNG ADULT;

EID: 84873405396     PISSN: 17594774     EISSN: 17594782     Source Type: Journal    
DOI: 10.1038/nrclinonc.2012.212     Document Type: Review

References (50)

1. Bhatia, S. et al. High risk of subsequent neoplasms continues with extended follow-up of childhood Hodgkin's disease: report from the Late Effects Study Group. J. Clin. Oncol. 21, 4386-4394 (2003).
2. Ibrahim, E. M. et al. Risk of second breast cancer in female Hodgkin's lymphoma survivors: a meta-analysis. BMC Cancer 12, 197 (2012).
3. Children's Oncology Group Nursing Discipline Clinical Practice Subcommittee/Survivorship in collaboration with the Late Effects Committee. Establishing and Enhancing Services for Childhood Cancer Survivors: Long-Term Follow-Up Program Resource Guide [online], http://www.survivorshipguidelines. org/pdf/LTFUResourceGuide.pdf (2007).
4. American Cancer Society. Cancer Treatment and Survivorship Facts & Figures 2012-2013 [online], http://www.cancer.org/acs/groups/content/ @epidemiologysurveilance/documents/document/acspc033876.pdf (2012).
5. Hewitt, M., Greenfield, S. & Stovall, E. From Cancer Patient to Cancer Survivor: Lost in Transition (National Acadamies Press, Washington, DC, 2005).
6. Harrington, C. B., Hansen, J. A., Moskowitz, M., Todd, B. L. & Feuerstein, M. It's not over when it's over: long-term symptoms in cancer survivors-a systematic review. Int. J. Psychiatry Med. 40, 163-181 (2010).
7. Stanton, A. L. What happens now? Psychosocial care for cancer survivors after medical treatment completion. J. Clin. Oncol. 30, 1215-1220 (2012).
8. Stanton, A. L. et al. Promoting adjustment after treatment for cancer. Cancer 104 (Suppl. 11), 2608-2613 (2005).
9. Aziz, N. M. in Cancer Survivorship: Today and Tomorrow (ed. Ganz, P. A.) 54-76 (Springer, New York, 2007).
10. Ganz, P. A. Late effects of cancer and its treatment. Semin. Oncol. Nurs. 17, 241-248 (2001).
11. Ganz, P. A. Survivorship: adult cancer survivors. Prim. Care 36, 721-741 (2009).
12. Rechis, R. et al. How cancer has affected post-treatment survivors: A LIVESTRONG Report [online], http://www.livestrong.org/pdfs/3-0/ LSSurvivorSurveyReport (2006).
13. Stricker, C. T. & Jacobs, L. A. Physical late effects in adult cancer survivors. Oncology (Williston Park) 22 (Suppl. 8), 33-41 (2008).
14. Ganz, P. A., Rowland, J. H., Desmond, K., Meyerowitz, B. E. & Wyatt, G. E. Life after breast cancer: understanding women's health-related quality of life and sexual functioning. J. Clin. Oncol. 16, 501-514 (1998).
15. Stanton, A. L., Revenson, T. A. & Tennen, H. Health psychology: psychological adjustment to chronic disease. Annu. Rev. Psychol. 58, 565-592 (2007).
16. Kirchhoff, A. C. Late-Term Effects and Employment Outcomes for Cancer Survivors. Thesis, University of Washington (2009).
17. Rechis, R., Reynolds, K. A., Beckjord, E. B. & Nutt, S. "I Learned To Live With It" is Not Good Enough: Challenges Reported by Post-Treatment Cancer Survivors in the LIVESTRONG Surveys: a LIVESTRONG Report [online], http://livestrong.org/pdfs/3-0/LSSurvivorSurveyReport-final (2010).
18. Ganz, P. A. et al. Breast cancer survivors: psychosocial concerns and quality of life. Breast Cancer Res. Treat. 38, 183-199 (1996).
19. Ganz, P. A. Monitoring the physical health of cancer survivors: a survivorship-focused medical history. J. Clin. Oncol. 24, 5105-5111 (2006).
20. Weaver, K. E. et al. Mental and physical health-related quality of life among U. S. cancer survivors: population estimates from the 2010 National Health Interview Survey. Cancer Epidemiol. Biomarkers Prev. 21, 2108-2117 (2012).
21. Rowland, J. H., Hewitt, M. & Ganz, P. A. Cancer survivorship: a new challenge in delivering quality cancer care. J. Clin. Oncol. 24, 5101-5104 (2006).
22. Horning, S. J. Follow-up of adult cancer survivors: new paradigms for survivorship care planning. Hematol. Oncol. Clin. North Am. 22, 201-210 (2008).
23. Grunfeld, E. Cancer survivorship: a challenge for primary care physicians. Br. J. Gen. Pract. 55, 741-774 (2005).
24. Bober, S. L. et al. Caring for cancer survivors. Cancer 115 (Suppl. 18), 4409-4418 (2009).
25. Potosky, A. L. et al. Differences between primary care physicians' and oncologists' knowledge, attitudes and practices regarding the care of cancer survivors. J. Gen. Intern. Med. 26, 1403-1410 (2011).
26. Jacobs, L. A. et al. Adult cancer survivorship: Evolution, research, and planning care. CA Cancer J. Clin. 59, 391-410 (2009).
27. Howell, D. et al. Models of care for post-treatment follow-up of adult cancer survivors: A systematic review and quality appraisal of the evidence. J. Cancer Surviv. http://dx.doi.org/10.1007/s117640120232z.
28. Hahn, E. E. & Ganz, P. A. Survivorship programs and care plans in practice: variations on a theme. J. Oncol. Pract. 7, 70-75 (2011).
29. Campbell, M. K. et al. Adult cancer survivorship care: experiences from the LIVESTRONG centers of excellence network. J. Cancer Surviv. 5, 271-282 (2011).
30. Grunfeld, E. & Earle, C. C. The interface between primary and oncology specialty care: treatment through survivorship. J. Natl Cancer Inst. Monogr. 2010, 25-30 (2010).
31. Landier, W. Survivorship care: essential components and models of delivery. Oncology (Williston Park) 23 (Suppl. 4), 46-53 (2009).
32. Chubak, J. et al. Providing care for cancer survivors in integrated health care delivery systems: practices, challenges, and research opportunities. J. Oncol. Pract. 8, 184-189 (2012).
33. Shalom, M. M., Hahn, E. E., Casillas, J. & Ganz, P. A. Do survivorship care plans make a difference? A primary care provider perspective. J. Oncol. Pract. 7, 314-318 (2011).
34. Casillas, J. et al. How confident are young adult cancer survivors in managing their survivorship care? A report from the LIVESTRONG Survivorship Center of Excellence Network. J. Cancer Surviv. 5, 371-381 (2011).
35. Beckjord, E. B. et al. What do people affected by cancer think about electronic health information exchange? Results from the 2010 LIVESTRONG Electronic Health Information Exchange Survey and the 2008 Health Information National Trends Survey. J. Oncol. Pract. 7, 237-247 (2011).
36. Eshelman, D. et al. Facilitating care for childhood cancer survivors: integrating Children's Oncology Group long-term follow-up guidelines and health links in clinical practice. J. Pediatr. Oncol. Nurs. 21, 271-280 (2004).
37. Nathan, P. C. et al. Guidelines for identification of, advocacy for, and intervention in neurocognitive problems in survivors of childhood cancer: a report from the Children's Oncology Group. Arch. Pediatr. Adolesc. Med. 161, 798-806 (2007).
38. Seehusen, D. A., Baird, D. & Bode, D. Primary care of adult survivors of childhood cancer. Am. Fam. Physician 81, 1250-1255 (2010).
39. Skinner, R. et al. Long-term follow-up of people who have survived cancer during childhood. Lancet Oncol. 7, 489-498 (2006).
40. Children's Oncology Group. COG Research Collaborations [online], http://www.childrensoncologygroup.org/index.php/spectrumofcog-research.
41. National Consensus Project for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care, Second Edition [online], http://www.nationalconsensusproject.org/guideline.pdf (2009).
42. Nekhlyudov, L. & Schnipper, J. L. Cancer survivorship care plans: what can be learned from hospital discharge summaries? J. Oncol. Pract. 8, 24-29 (2012).
43. Earle, C. C. & Ganz, P. A. Cancer survivorship: don't let perfect be the enemy of good. J. Clin. Oncol. 30, 3764-3768 (2012).
44. Rechis, R., Beckjord, E. B., Arvey, S. R., Reynolds, K. A. & McGoldrick, D. The Essential Elements of Survivorship Care: A LIVESTRONG Brief [online], http://www.livestrong.org/pdfs/3-0/EssentialElementsBrief (2011).
45. Grunfeld, E. et al. Evaluating survivorship care plans: results of a randomized, clinical trial of patients with breast cancer. J. Clin. Oncol. 29, 4755-4762 (2011).
46. Stricker, C. T., Jacobs, L. A. & Palmer, S. C. Survivorship care plans: an argument for evidence over common sense. J. Clin. Oncol. 30, 1392-1395 (2012).
47. Salz, T., Oeffinger, K. C., McCabe, M. S., Layne, T. M. & Bach, P. B. Survivorship care plans in research and practice. CA Cancer J. Clin. 62, 101-117 (2012).
48. Stricker, C. T. et al. Survivorship care planning after the Institute of Medicine recommendations: how are we faring? J. Cancer Surviv. 5, 358-370 (2011).
49. Earle, C. C. Failing to plan is planning to fail: Improving the quality of care with survivorship care plans. J. Clin. Oncol. 24, 5112-5116 (2006).
50. Earle, C. C. Long term care planning for cancer survivors: a health services research agenda. J. Cancer Surviv. 1, 64-74 (2007).