Comparing doctors' and nurses' accounts of how they provide emotional care for parents of children with acute lymphoblastic leukaemia

Psycho-Oncology

Volumn 22, Issue 2, 2013, Pages 260-267

  Forsey, Mary ^a   Salmon, Peter ^a   Eden, Tim ^b   Young, Bridget ^a  

^a UNIVERSITY OF LIVERPOOL   (United Kingdom)

^b UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

cancer; communication; emotional care; oncology; parent practitioner relationships

Indexed keywords

ACUTE LYMPHOBLASTIC LEUKEMIA; ARTICLE; AUTHORITY; CANCER CENTER; CHILD CARE; CLINICAL ARTICLE; CONSULTATION; DOCTOR PATIENT RELATION; EMOTIONAL CARE; EMOTIONAL STRESS; FEAR; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MEDICAL EDUCATION; NURSE; PARENT; PATIENT CARE; PHYSICIAN; PSYCHOLOGICAL ASPECT; REASSURANCE; TRUST;

CHILD; COMMUNICATION; FEMALE; GREAT BRITAIN; HUMANS; MALE; MEDICAL ONCOLOGY; NURSE'S ROLE; ONCOLOGIC NURSING; PARENTS; PHYSICIAN'S ROLE; PRECURSOR CELL LYMPHOBLASTIC LEUKEMIA-LYMPHOMA; PROFESSIONAL-FAMILY RELATIONS;

EID: 84873359268     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.2084     Document Type: Article

References (42)

1. Steifel F, Barth J, Bensing J, et al,. Communication skills training in oncology: a position paper based on a consensus meeting among European experts in 2009. Ann Oncol 2010; 21: 204-207.
2. Epstein RM, Franks P, Fiscella K, et al,. Measuring patient-centered communication in patient-physician consultations: theoretical and practical issues. Soc Sci Med 2005; 61: 1516-1528.
3. Little P, Everitt H, Williamson I, et al,. Preferences of patients for patient centred approach to consultation in primary care: observational study. Br Med J 2001; 322: 1-7.
4. Epstein RM, Street RL,. Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. National Cancer Institute: Bethesda, 2007.
5. Butow PN, Brown RF, Cogar S, et al,. Oncologists' reactions to cancer patients' verbal cues. Psycho-Oncology 2002; 11: 47-58.
6. Hack T, Pickles T, Ruether DJ,. Behind closed doors: systematic analysis of breast cancer consultation communication and predictors of satisfaction with communication. Psycho-Oncology 2010; 19: 626-636.
7. Fallowfield L, Jenkins V, Farewell V, et al,. Efficacy of a Cancer Research UK communication skills training model for oncologists: a randomised controlled trial. Lancet 2002; 359: 650-656.
8. Makoul GP,. Essential elements of communication in medical encounters: the Kalamazoo Consensus Statement. Acad Med 2001; 76: 390-393.
9. Gysels M, Richardson A, Higginson IJ,. Communication training for health professionals who care for patients with cancer: a systematic review of effectiveness. Support Care Cancer 2004; 12: 692-700.
10. Maguire P, Pitceathly C,. Key communication skills and how to acquire them. Br Med J 2002; 325: 697-700.
11. Rao JK, Anderson LA, Inui TS, et al,. Communication interventions make a difference in conversations between physicians and patients: a systematic review of the evidence. Med Care 2007; 45: 340-349.
12. Moore PM, Wilkinson SSM, Mercado SR,. Communication skills training for health care professionals working cancer patients and their families and/or carers. Cochrane Database Syst Rev, 2004; 2: 1-21. DOI: 10.1002/14651858. CD003751.pub2.
13. Uitterhoeve RJ, Bensing JM, Grol RP, et al,. The effect of communication skills training on patient outcomes in cancer care: a systematic review of the literature. Eur J Cancer Care 2010; 19: 442-457.
14. Duke S,. Communication skills training in end of life care-short of the mark? Eur J Oncol Nurs 2010; 14: 261-262.
15. Mitchell C, Payne T, Wade R, et al,. The impact of risk stratification by early bone marrow response in childhood acute lymphoblastic leukaemia: results from the United Kingdom Medical Research Council trial ALL97 and ALL97/99. Br J Haematol 2009; 146: 424-436.
16. Masera G, Spinetta JJ, Jankovic M, et al,. Guidelines for a therapeutic alliance between families and staff: A report of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology. Med Pediatr Oncol 1998; 30: 183-186.
17. Young B, Dixon-Woods M, Heney D,. Identity and role in parenting a child with cancer. Pediatr Rehabil 2002; 5: 209-214.
18. Yeh CH, Lin CF, Tsai JL, et al,. Determinants of parental decisions on 'drop out' from cancer treatment for childhood cancer patients. J Adv Nurs 1999; 30: 193-199.
19. Kars MC, Duijnstee MS, Pool A, et al,. Being there: parenting the child with acute lymphoblastic leukaemia. J Clin Nurs 2008; 17: 1553-1562.
20. Dixon-Woods M, Young B, Heney D,. Rethinking childhood experiences of cancer: a multidisciplinary approach to chronic childhood illness. Open University Press: Berkshire, 2005.
21. Stenmarker M, Hallberg U, Palmerus K, et al,. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer 2010; 55: 478-484.
22. Eilertsen MEB, Kristiansen K, Reinfjell T, et al,. Professional collaboration-support for children with cancer and their families-focus group interview-a source of information and knowledge-professionals' perspectives. J Interprof Care 2009; 23: 356-368.
23. Kiernan G, Meyler E, Guerin S,. Psychosocial issues and care in pediatric oncology. Cancer Nurs 2010; 33: 12-20.
24. Anderzen-Carlsson A, Kihlgren M, Skeppner G, et al,. How physicians and nurses handle fear in children with cancer. J Pediatr Nurs 2007; 22: 71-79.
25. Glaser BG, Strauss AL,. The Discovery of Grounded Theory: Strategies for Qualitative Research. Weidenfeld & Nicolson: London, 1968.
26. Stiles WB,. Quality control in qualitative research. Clin Psychol Rev 1993; 13: 593-618.
27. Mays N, Pope C,. Qualitative research in health care: assessing quality in qualitative research. Br Med J 2000; 320: 50-52.
28. Lincoln YS, Guba EG,. Paradigmatic controversies, contradictions, and emerging confluences. In Handbook of Qualitative Research (2nd edn), Denzin NK, Lincoln YS, (eds). Sage Publications: London, 2000; 163-189.
29. National Institute for Health and Clinical Excellence. Improving Outcomes in Children and Young People with Cancer: The Manual. National Institute for Health and Clinical Excellence: London, 2005.
30. Helft PR,. Necessary collusion: Prognostic communication with advanced cancer patients. J Clin Oncol 2005; 23: 3146-3150.
31. Pedersen R,. Emperical evidence of empathy in medicine-a critical review. Patient Educ Couns 2009; 76: 307-322.
32. Hopia H, Tomlinson PS, Paavilainen E, et al,. Child in hospital: family experiences and expectations of how nurses can promote family health. J Clin Nurs 2005; 14: 212-222.
33. Emery JE,. Perceived sources of stress among pediatric oncology nurses. J Pediatr Oncol Nurs 1993; 10: 87-92.
34. Hinds PS, Puckett P, Donohoe M, et al,. The impact of a grief workshop for pediatric oncology nurses on their grief and perceived stress. J Pediatr Nurs 1994; 9: 388-397.
35. Gallagher R, Gormley DK,. Perceptions of stress, burnout and support systems in pediatric bone marrow transplantation nursing. Clin J Oncol Nurs 2009; 13: 681-685.
36. Menzies IEP,. A case-study in the functioning of social systems as a defence against anxiety: A report on a study of the nursing service of a general hospital. Hum Relat 1960; 13: 95-121.
37. Kovacs M, Kovacs E, Hegedus K,. Is emotional dissonance more prevalent in oncology care? Emotion work, burnout and coping. Psycho-Oncology 2010; 19: 855-862.
38. Mendick, N, Young B, Holcombe C, et al,. The ethics of responsibility and ownership in decision-making about treatment for breast cancer: Triangulation of consultation with patient and surgeon perspectives. Soc Sci Med 2010; 70: 1904-1911.
39. Young B, Ward J, Forsey M, et al,. Testing the validity of the unitary theory of clinical relationships: comparison of observed and experienced parent-doctor interaction. Patient Educ Couns 2011; 85: 60-67.
40. Pollak K, Arnold RM, Jeffreys AS, et al,. Oncologist communication about emotion during visits with patients with advanced cancer. J Clin Oncol 2007; 25: 5748-5752.
41. Peters S, Rogers A, Salmon P,. What do patients choose to tell their doctors? Qualitative analysis of potential barriers to reattributing medically unexplained symptoms. J Gen Intern Med 2009; 24: 443-449.
42. Thomsen DK, Pedersen AF, Johansen MB, et al,. Breast cancer patients' narratives about positive and negative communication experiences. Acta Oncol 2007; 46: 900-908.