Factors associated with health-related quality of life changes in survivors to pediatric intensive care

Pediatric Critical Care Medicine

Volumn 14, Issue 1, 2013, Pages

  Cunha, Francisco ^a   Mota, Teresa ^a   Teixeira Pinto, Armando ^b   Carvalho, Leonor ^c   Estrada, João ^d   Marques, António ^d   Costa Pereira, Altamiro ^b   Almeida Santos, Luís ^a  

^a HOSPITAL DE SÃO JOÃO   (Portugal)

^b University of Porto   (Portugal)

^c CENTRO HOSPITALAR E UNIVERSITÁRIO DE COIMBRA   (Portugal)

^d HOSPITAL DONA ESTEFÂNIA   (Portugal)

Author keywords

health related quality of life; ICUs; morbidity; outcome assessment; pediatric

Indexed keywords

ARTICLE; ARTIFICIAL VENTILATION; CHILD; CHILD CARE; FEMALE; HEALTH STATUS; HOSPITAL ADMISSION; HUMAN; INTENSIVE CARE; MAJOR CLINICAL STUDY; MALE; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; TELECONSULTATION;

CHILD; EMOTIONS; FEMALE; HEALTH STATUS; HUMANS; INTENSIVE CARE; INTENSIVE CARE UNITS, PEDIATRIC; LOGISTIC MODELS; MALE; MULTIVARIATE ANALYSIS; PAIN; PROSPECTIVE STUDIES; QUALITY OF LIFE; QUESTIONNAIRES; RESPIRATION, ARTIFICIAL; SURVIVORS; WOUNDS AND INJURIES;

EID: 84873164289     PISSN: 15297535     EISSN: 19473893     Source Type: Journal    
DOI: 10.1097/PCC.0b013e31826012b4     Document Type: Article

References (32)

1. Namachivayam P, Shann F, Shekerdemian L, et al: Three decades of pediatric intensive care: Who was admitted, what happened in inten¬sive care, and what happened afterward. Pediatr Crit Care Med 2010; 11:549-555
2. de Keizer NF, Bonsel GJ, Gemke RJ: Health status prediction in critically ill children: A pilot study introducing standardized health ratios. Qual Life Res 1997; 6:192-199
3. Gemke RJ, Bonsel GJ: Reliability and validity of a comprehensive health status measure in a heterogeneous population of children admitted to intensive care. J Clin Epidemiol 1996; 49:327-333
4. Taylor A, Butt W: The evaluation of outcome following paediatric in¬tensive care: The major issues identified. Clin Intensive Care 2000; 11:239-244
5. Conlon NP, Breatnach C, O'Hare BP, et al: Health-related quality of life after prolonged pediatric intensive care unit stay. Pediatr Crit Care Med 2009; 10:41-44
6. Ambuehl J, Karrer A, Meer A, et al: Quality of life of survivors of paediatric intensive care. Swiss Med Wkly 2007; 137:312-316
7. Gemke RJ, Bonsel GJ, van Vught AJ: Long-Term survival and state of health after paediatric intensive care. Arch Dis Child 1995; 73:196- 201
8. Jayshree M, Singhi SC, Malhi P: Follow up of survival and quality of life in children after intensive care. Indian Pediatr 2003; 40:303-309
9. Taylor A, Butt W, Ciardulli M: The functional outcome and quality of life of children after admission to an intensive care unit. Intensive Care Med 2003; 29:795-800
10. Morrison AL, Gillis J, O'Connell AJ, et al: Quality of life of survivors of pediatric intensive care. Pediatr Crit Care Med 2002; 3:1-5
11. Jones S, Rantell K, Stevens K, et al; United Kingdom Pediatric Inten¬sive Care Outcome Study Group: Outcome at 6 months after ad¬mission for pediatric intensive care: A report of a national study of pediatric intensive care units in the United Kingdom. Pediatrics 2006; 118:2101-2108
12. Knoester H, Bronner MB, Bos AP, et al: Quality of life in children three and nine months after discharge from a paediatric intensive care unit: A prospective cohort study. Health Qual Life Outcomes 2008; 6:21. Available at: Http://www.hqlo.com/content/6/1/21. Accessed January 6, 2012
13. Feeny DH, Furlong WJ, Barr RD, et al: A comprehensive multi-Attribute system for classifying the health status of survivors of childhood cancer. J Clin Oncol 1992; 10:923-928
14. Torrance GW, Zhang Y, Feeny DH, et al: Multi-Attribute preference func¬tions for a comprehensive health status classification system. In: Centre for Health Economics and Policy Analysis Working Paper Series. Ham¬ilton, Ontario, McMaster University. Working Paper #92-18, 1992
15. Feeny DH, Torrance GW, Goldsmith C, et al: A multi-Attribute approach to population health status. In: 1993 Proceedings of the Social Sta¬tistics Section of the American Statistical Association. Alexandria, VA: American Statistical Association, 1994, pp 161-166
16. Cunha F, Almeida-Santos L, Teixeira-Pinto A, et al: Health-related qual¬ity of life of pediatric intensive care survivors. J Pediatr (Rio J) 2012; 88:25-32
17. Shann F, Pearson G, Slater A, et al: Paediatric index of mortality (PIM): A mortality prediction model for children in intensive care. Intensive Care Med 1997; 23:201-207
18. Pollack MM, Ruttimann UE, Getson PR: Pediatric risk of mortality (PRISM) score. Crit Care Med 1988; 16:1110-1116
19. Pollack MM, Patel KM, Ruttimann UE: PRISM III: An updated Pediatric Risk of Mortality score. Crit Care Med 1996; 24:743-752
20. Horsman J, Furlong W, Feeny D, et al: The Health Utilities Index (HUI): Concepts, measurement properties and applications. Health Qual Life Outcomes 2003; 1:54. Available at: Http://www.hqlo.com/con¬tent/1/1/54. Accessed January 6, 2012
21. Furlong W, Feeny D, Torrance G, et al: The Health Utilities Index (HUI) System for Assessing Health-related Quality of Life in Clinical Studies. s.l.: McMaster University Centre for Health Economics and Policy Analysis Research. Working Paper #01-02, 2001. Available at: Http://www.chepa.org/Research- Products/Working-Papers/ Working-Papers-Archive.aspx. January 6, 2012
22. Furlong WJ, Feeny DH, Torrance GW, et al: The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical stud¬ies. Ann Med 2001; 33:375-384
23. Mirabelli C, Cousins M, Marshall D, et al: A novel approach to measuring quality of life in children with asthma: The parent-child Dyad. Quality of Life Newsletter 2004; 33:14-16
24. Feeny D, Furlong W, Torrance GW, et al: Multiattribute and single-At¬tribute utility functions for the health utilities index mark 3 system. Med Care 2002; 40:113-128
25. Torrance GW, Feeny DH, Furlong WJ, et al: Multiattribute utility function for a comprehensive health status classification system. Health Utilities Index Mark 2. Med Care 1996; 34:702-722
26. Feeny D, Furlong W, Barr RD: Multiattribute approach to the assess¬ment of health-related quality of life: Health Utilities Index. Med Pedi¬atr Oncol 1998; SUPPL1:54-59
27. Buysse CM, Raat H, Hazelzet JA, et al: Surviving meningococcal sep¬tic shock: Health consequences and quality of life in children and their parents up to 2 years after pediatric intensive care unit discharge. Crit Care Med 2008; 36:596-602
28. Janse AJ, Sinnema G, Uiterwaal CS, et al: Quality of life in chronic ill¬ness: Perceptions of parents and paediatricians. Arch Dis Child 2005; 90:486-491
29. Fayers PM, Machin D: Quality of Life: The Assessment, Analysis and Interpretation of Patient-Reported Outcomes. Second Edition. Chichester, UK: Wiley & Sons, Ltd., 2007
30. Colver A, Parkinson K, Arnaud C, et al: SPARCLE - Study of PARticipation of Children with Cerebral Palsy Living in Europe. Quality of Life Newsletter 2004; 32:5-6
31. Butt W, Shann F, Tibballs J, et al: Long-Term outcome of children after intensive care. Crit Care Med 1990; 18:961-965
32. Butt W: Outcome after pediatric intensive care unit discharge. J Pediatr (Rio J) 2012; 88:1-3