Design and evaluation of a decision aid for inviting parents to participate in a fragile X newborn screening pilot study

Journal of Genetic Counseling

Volumn 22, Issue 1, 2013, Pages 108-117

  Bailey Jr , Donald B ^a   Lewis, Megan A ^a   Harris, Shelly L ^a   Grant, Tracey ^a   Bann, Carla ^a   Bishop, Ellen ^a   Roche, Myra ^b   Guarda, Sonia ^b   Barnum, Leah ^b   Powell, Cynthia ^b   Therrell Jr , Bradford L ^c  

^a RTI INTERNATIONAL   (United States)

^b UNIVERSITY OF NORTH CAROLINA   (United States)

^c UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO   (United States)

Author keywords

Decision aids; Informed decision making; Newborn screening

Indexed keywords

ARTICLE; DECISION SUPPORT SYSTEM; FRAGILE X SYNDROME; HUMAN; NEWBORN; NEWBORN SCREENING; PILOT STUDY; UNCERTAINTY;

DECISION SUPPORT TECHNIQUES; FRAGILE X SYNDROME; HUMANS; INFANT, NEWBORN; NEONATAL SCREENING; PILOT PROJECTS; UNCERTAINTY;

MLCS; MLOWN;

EID: 84873060180     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-012-9511-0     Document Type: Conference Paper

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