Family-centred care: A qualitative study of Chinese and South Asian immigrant parents' experiences of care in paediatric oncology

Child: Care, Health and Development

Volumn 39, Issue 2, 2013, Pages 185-193

  Watt, L ^a   Dix, D ^e   Gulati, S ^a   Sung, L ^b   Klaassen, R J ^c   Shaw, N T ^d   Klassen, A F ^a  

^a MCMASTER UNIVERSITY   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

^c CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^d ALGOMA UNIVERSITY   (Canada)

^e UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Childhood cancer; Family centred care; Grounded theory; Immigrant parents

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ASIA; ATTITUDE TO HEALTH; CANADA; CANCER CENTER; CHILD; CHILD HEALTH CARE; CHINA; ETHNOLOGY; FAMILY; FEMALE; HEALTH SERVICES RESEARCH; HUMAN; HUMAN RELATION; INFANT; MALE; METHODOLOGY; MIDDLE AGED; MIGRATION; MULTICENTER STUDY; NEOPLASM; NEWBORN; ORGANIZATION AND MANAGEMENT; PARENT; PATIENT CARE; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SOCIOECONOMICS;

ADOLESCENT; ADULT; ASIA; ATTITUDE TO HEALTH; CANADA; CHILD; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; CHINA; EMIGRANTS AND IMMIGRANTS; FAMILY; FEMALE; HEALTH SERVICES RESEARCH; HUMANS; INFANT; INFANT, NEWBORN; MALE; MIDDLE AGED; NEOPLASMS; ONCOLOGY SERVICE, HOSPITAL; PARENTS; PATIENT-CENTERED CARE; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH; SOCIOECONOMIC FACTORS;

MLCS; MLOWN;

EID: 84873055841     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2011.01342.x     Document Type: Article

References (25)

1. Allen, R. I. & Petr, C. G. (1998) Rethinking family-centered practice. The American Journal of Orthopsychiatry, 68, 4-15.
2. American Academy of Paediatrics Committee on Hospital Care (2003) Family-centered care and the paediatrician's role. Paediatrics, 112, 691-697.
3. Bamm, E. L. & Rosenbaum, P. (2008) Family-centered theory: origins, development, barriers and supports to implementation in rehabilitation medicine. Archives of Physical Medicine and Rehabilitation, 89, 1618-1624.
4. Bruce, B., Letourneau, N., Ritchie, J., Larocque, S., Dennis, C. & Elliott, M. R. (2002) A multisite study of health professionals' perception and practices of family-centred care. Journal of Family Nursing, 8, 408-429.
5. Callery, P. (1997) Maternal knowledge and professional knowledge: co-operation and conflict in the care of sick children. International Journal of Nursing Studies, 34, 27-34.
6. Charmaz, K. (2006) Constructing Grounded Theory: A Practical Guide through Qualitative Analysis. Sage Publications, London, UK.
7. Clarke, J. (1999) Finding Strength: A Mother and Daughter's Story of Childhood Cancer. Oxford University Press, Toronto, Canada.
8. Corlett, J. & Twycross, A. (2006) Negotiation of parental roles within family-centred care: a review of the research. Journal of Clinical Nursing, 15, 1308-1316.
9. Creswell, J. W. (1998) Qualitative Inquiry and Research Design: Choosing among Five Traditions. Sage Publications, Thousands Oaks, CA, USA.
10. Dix, D. B., Klassen, A. F., Papsdorf, M., Klaassen, R. J., Pritchard, S. & Sung, L. (2009) Factors affecting the delivery of family-centered care in paediatric oncology. Paediatric Blood and Cancer, 53, 1079-1085.
11. Franck, L. S. & Callery, P. (2004) Re-thinking family-centred care across the continuum of children's healthcare. Child: Care, Health and Development, 30, 265-277.
12. Frost, M., Green, A., Gance-Cleveland, B., Kersten, R. & Irby, G. (2010) Improving family-centred care through research. Journal of Paediatric Nursing, 25, 144-147.
13. Holm, K. E., Patterson, J. M. & Gurney, J. G. (2003) Parental involvement and family-centered care in the diagnostic and treatment phases of childhood cancer: results from a qualitative study. Journal of Pediatric Oncology Nursing, 20, 301-313.
14. King, S., Teplicky, R., King, G. & Rosenbaum, P. (2004) Family-centered services for children with cerebral palsy and their families: a review of the literature. Seminars in Paediatric Neurology, 11, 78-86.
15. Klassen, A., Dix, D., Cano, S. J., Papsdorf, M., Sung, L. & Klaassen, R. J. (2008) Evaluating family-centred service in paediatric oncology with the measure of processes of care (MPOC-20). Child: Care, Health and Development, 35, 16-22.
16. Klassen, A., Gulati, S., Watt, L., Banerjee, A., Sung, L., Klaassen, R., Dix, D., Poureslami, I. M. & Shaw, N. (2011) Immigrant to Canada, newcomer to childhood cancer: a qualitative study of challenges faced by immigrant parents. Psycho-oncology, 21 March 2011 [Epub ahead of print].
17. Krefting, L. (1991) Rigor in qualitative research: the assessment of trustworthiness. The American Journal of Occupational Therapy, 45, 214-222.
18. Law, M., Hanna, S., King, G., Hurley, P., King, S., Kertoy, M. & Rosenbaum, P. (2003) Factors affecting family-centred service delivery for children with disabilities. Child: Care, Health and Development, 29, 357-366.
19. MacKean, G. L., Thurston, W. E. & Scott, C. M. (2005) Bridging the divide between families and health providers' perspectives on family-centred care. Health Expectations, 8, 74-85.
20. McBride, S. L., Brotherson, M. J., Joanning, H., Whiddon, D. & Demmitt, A. (1993) Implementation of family-centred services: perceptions of families and professionals. Journal of Early Intervention, 17, 414-430.
21. Qualitative Solutions Research International (2008) Nivo 8 [Software]. QSR International, Australia.
22. Rosenbaum, P., King, S., Law, M., King, G. & Evan, J. (1998) Family-centered service: a conceptual framework and research review. Physical and Occupational Therapy in Paediatrics, 18, 1-20.
23. Shields, L. & Nixon, J. (2004) Hospital care of children in four countries. Journal of Advanced Nursing, 45, 475-486.
24. Statistics Canada (2006a) 2006 census: Canada's ethnocultural portrait: the changing mosaic. Statistics Canada Catalogue no. 97-562-X. Ottawa, 2010. Available at: http://www12.statcan.gc.ca/english/census06/analysis/ethnicorigin/pdf/97-562-XIE2006001.pdf (accessed from 19 October 2011).
25. Statistics Canada (2006b) 2006 census: immigration in Canada: a portrait of the foreign-born population, 2006 census: highlights. Catalogue no. 97-557-XIE2006001, 2010. Available at: http://www12.statcan.ca/census-recensement/2006/as-sa/97-557/p1-eng.cfm (accessed from 19 October 2011).