“User-Dependent” Knowledge as Evidence in Health Care

The Evidence Book: Concepts, Generating, and Use of Evidence Comparative Policy Evaluatioon, Volume 15

Volumn 15, Issue , 2017, Pages 95-113

  Launsø, Laila ^a,b   Rieper, Olaf ^c  

^a The Danish Multiple Sclerosis Society   (Denmark)

^b UNIVERSITY OF TROMSØ   (Norway)

^c DANISH INSTITUTE OF GOVERNMENTAL RESEARCH   (Denmark)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84872815202     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.4324/9781351298049-13     Document Type: Chapter

References (49)

1. Antonowsky, A. (1988). Unraveling the mystery of health. How people manage stress and stay well. San Francisco: Jossey-Bass.
2. Barfod, T.S. (2005). “Placebos in medicine: Placebo use is well known, placebo effect is not.” BMJ 330 (7481):45.
3. Bell, I.R., C. Oper, G.E.R. Schartz, K.L. Grant, T.W. Gaudet, D. Rychener, V. Maizes and A. Weil (2002). “Integrative medicine and systemic outcomes research.” Archives of Internal Medicine 162 Jan. 28 (reprinted).
4. Brendstrup, E. and L. Launsø (1997). Headache and reflexological treatment. Copenhagen: The Council Concerning Alternative Treatment, The National Board of Health.
5. Bury M. (2001). “Illness narratives: fact or fiction.” Sociology of Health and Illness 23, 3: 263-285.
6. Coulter, I.D., M.A. Ellison, L. Hilton, H. Rhodes and C. Ryan (2007). Hospital-based integrative medicine. A case study of the barriers and factors facilitating the creation of a center. CA: RAND Health.
7. EMSP (European Multiple Sclerosis Platform) (2004). Recommendations on rehabilitation services for persons with Multiple Sclerosis in Europe. Multiple Sclerosis International Federation.
8. Eyerman, R. and A. Jamison (1991). Social movements-a cognitive approach. Cambridge: Polity Press.
9. Frank A. 1997. “Illness as a moral occasion; restoring agency to people.” Health 1, 2:131-148.
10. Gannik, D.E. (2005). Social sygdomsteori-et situationelt perspektiv. [Social disease theory-a situational perspective]. Copenhagen: Forlaget Samfundslitteratur.
11. Gannik, D.E. and L. Launsø (eds.) (2000). Disease, knowledge and society. Copenhagen: Forlaget Samfundslitteratur.
12. Haahr, N. and L. Launsø (2006). “Preliminary initiatives in a bridge building project between conventional and alternative practitioners in Denmark.” Forschende Komplementärmedizin und Klassische Naturheilkunde 13:307-312.
13. Haahr, N. and L. Launsø (2007). “Bridge building and integrative treatment of persons with Multiple Sclerosis. Research-based evaluation of a team building process.” Journal of Complementary and Integrative Medicine (JCIM) (Accepted for publication).
14. Hollenberg, D. (2006). “Uncharted ground: Patterns of professional interaction among complementary/alternative and biomedical practitioners in integrative health-care settings.” Social Science and Medicine 62, 3: 731-744.
15. Hrobjartsson, A. and P.C. Gøtzsche (2001). “Is the placebo powerless? An analysis of clinical trials comparing placebo with no treatment.” New England Journal of Medicine 344, 21:1594-1602.
16. Jørgensen, V. and L. Launsø (2005). “Patients’ choice of asthma and allergy treatments.” Journal of Alternative and Complementary Medicine 11, 3: 529-534.
17. Kaptchuk, T.J. (2002). “The placebo effect in alternative medicine: Can the performance of a healing ritual have clinical significance?" Annals of Internal Medicine 136: 817-825.
18. Kaptchuk, T.J.; J.M. Kelly, L.A. Conboy, R.B. Davis, C.E. Kerr, E.E. Jacobson, I.Kirsch, R.N. Schyner, B.H. Nam, L.T. Nguyen, M. Park, A.L. Rivers, C. McManus, E. Kokkotou, D.A. Drossman, P. Goldman and A.J. Lembo (2008). Components of placebo effect: randomised controlled trial in patients with irritable bowel syndrome. BMJ April 3. (http://www.ncbi.nlm.nih.gov/sites/entrez) Viewed April 9, 2008
19. Kirkpatrick, I. and M.M.Lucio (Eds.) (1995). The politics of quality in the public sector. London and New York: Routledge.
20. Launsø, L. (1989). “Integrated medicine in practice-a challenge to the health-care system.” Acta Sociologica 32, 3: 237-251.
21. Launsø, L. (1996). Det alternative behandlingsområde.-Brug og udvikling; rationalitet og paradigmer [The alternative treatment field. Use and development; rationality and paradigms]. Copenhagen: Akademisk Forlag.
22. Launsø, L. and D.E. Gannik. (2000). “The need for revision of medical research designs.” In D.E. Gannik and L. Launsø (eds.). Disease, Knowledge and Society. Copenhagen: Samfundslitteratur.
23. Launsø, L. and N. Haahr (2007). “Bridge building and integrative treatment of persons with Multiple Sclerosis. Research-based evaluation of a team building process.” Journal of Complementary and Integrative Medicine (JCIM) (Accepted for publication).
24. Launsø L.; I. Henningsen, J. Rieper, H. Brender, F. Sandø and A. Hvenegaard (2007). “Expectations and effectiveness of medical treatment and classical homeopathic treatment for patients with hypersensitivity illnesses-one year prospective study.” Homeopathy 96:233-242.
25. Li, J., C. Johansen, H. Brønnum-Hansen, E. Stenager, N. Koch-Henriksen and J. Olsen (2004). “The risk of multiple sclerosis in bereaved parents. A nationwide cohort study in Denmark.” Neurology 62(March): 726-729.
26. Mann, D.; S. Gaylord and S. Norton (2004). Moving toward integrative care: Rationales, models and steps for conventional-care providers. Complement Health Practice Review 9:155-172.
27. Marrie, R.A., O. Hadjimichael and T. Vollmer (2003). “Predictors of alternative medicine use by multiple sclerosis patients.” Multiple Sclerosis 9, 5: 461-466.
28. Mayne, J. and O. Rieper (2003). “Collaborating for public service quality: The implications for evaluation.” Chapter 5 in A. Gray, B. Jenkins, F. Leeuw and J. Mayne (eds.), Collaboration in Public Services: The Challenge for Evaluation, New Brunswick (USA) and London (UK): Transaction Publishers.
29. Melucci A. (1989). Nomads of the present-social movements and individual needs in contemporary societies. London: Hutchinson Radius.
30. Mulkins, A.L. and M.J. Verhoef (2004). “Supporting the transformative process: experiences of cancer patients receiving integrative care.” Integrative cancer therapies 3, 3: 230-237.
31. Mulkins, A.L., J. Eng and M.J. Verhoef (2005). “Working towards a model of integrative health care: Critical elements for an effective team.” Complementary Therapies in Medicine 13:115-122.
32. Mulkins, A.L., M. Verhoef, J. Eng, B. Findlay and D. Ramsum (2003). “Evaluation of the Tzu Chi Institute for Complementary and Alternative Medicine’s Integrative Treatment Program.” Journal of Alternative Complementary Medicine 9, 4: 585-592.
33. Munger, K.L., S.M. Zhang, E. O’Reilly, M.A. Hernan, M.J. Olek, W.C. Willett and A. Ascherio (2004). “Vitamin D intake and incidence of multiple sclerosis.” Neurology 62: 60-65.
34. Naschold, F. (1995). The modernisation of the public sector in Europe. A comparison perspective on the Scandinavian experience. Helsinki: Ministry of Labour.
35. Ostenfeld-Rosenthal, A. (2007). “Symbolsk healing ‘embodied’. Krop, mening og spiritualitet i danske helbredelsesritualer.” [Symbolic healing ‘embodied’. Body, meaning and spirituality in Danish healing rituals] Tidsskrift for Forskning i Sygdom og Samfund 6:129-150.
36. Paterson, P. (2004). “Seeking the patient’s perspective: A qualitative assessment of Euro-Qol, COOP-WONCA charts and MYMOP.” Quality of Life Research 13: 871-881.
37. Paterson, P. and N. Britten (2000). “In pursuit of patient-centred outcomes: A qualitative evaluation of MYMOP, Measure Yourself Medical Outcome Profile.” J Health Ser Res Policy 5: 27-36
38. Paterson, P. and N. Britten (2004). “Acupuncture as a complex intervention: A holistic model. The Journal of Alternative and Complementary Medicine 10, 5: 791-801.
39. Pawson, R. (2006). Evidence-based policy. A realist perspective. London: SAGE Publications Ltd.
40. Pollit, C. and G. Bouckaert (Eds.) (1995). Quality improvement in European public services/concepts, cases and commentary. London: Sage.
41. Riise, T., M.W. Nortvedt and A. Ascherio (2003). “Smoking is a risk factor for multiple sclerosis.” Neurology 61: 1122-4.
42. Sandaunet, A.-G. (2008). Keeping up with the new health care user: the case of onlinehelp groups for women with breast cancer. Tromsø: University of Tromsø, Institute of Sociology, June.
43. Scherwitz, L., W. Stewart, P. McHenry, C. Wood, L. Robertson and M. Cantwell (2003). “An integrative medicine clinic in a community hospital.” American Journal of Public Health 93(4):549-552.
44. Scocozza, L. (2000). “The randomized trial. A critique from the philosophy of science.” In: D.E. Gannik, and L. Launsø (eds.), Disease, knowledge and society, Copenhagen: Forlaget Samfundslitteratur.
45. Storr, L.K. (2002). Brugeren og brugen af alternativ behandling. En populationsbaseret undersøgelse af scleroseramtes brug af alternativ behandling i Danmark [The user and use of alternative treatment. A population-based investigation of alternative treatment use among Multiple Sclerosis patients in Denmark]. PhD Thesis (unpublished).
46. Sørensen, P.S., M. Ravnborg and A. Jønsson (eds.) (2004). Dissemineret sklerose. En bog for patienter, pårørende og behandlere [Multiple Sclerosis. A book for patients, relatives and practitioners]. Copenhagen: Munksgaard.
47. The Danish Multiple Sclerosis Society (2002). Livet med Sclerose i Danmark 2002 [Living with Multiple Sclerosis in Denmark 2002]. Unpublished.
48. Touraine, A. (1981). The voice and the eye. New York: Cambridge University Press.
49. Wampold, B.E. (2001). The Great psychotherapy debate: Models, methods, and findings. LEA’s Counseling and Psychotherapy Series.