Development, validation and clinical assessment of a short questionnaire to assess disease-related knowledge in inflammatory bowel disease patients

Scandinavian Journal of Gastroenterology

Volumn 48, Issue 2, 2013, Pages 183-188

  Keegan, Denise ^a   Mcdermott, Edel ^a   Byrne, Kathryn ^a   Moloney, David ^a   Doherty, Glen A ^a   Mulcahy, Hugh E ^a  

^a ST VINCENT S UNIVERSITY HOSPITAL   (Ireland)

Author keywords

Crohn's disease; Inflammatory bowel disease; Patient education; Patient knowledge; Ulcerative colitis

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; ATTITUDE TO HEALTH; CLINICAL ASSESSMENT; CONSTRUCT VALIDITY; CROHN DISEASE; EDUCATIONAL STATUS; ENTERITIS; FAMILY HISTORY; FEMALE; HUMAN; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MALE; MEDICAL STAFF; NURSE; PATIENT EDUCATION; PHYSICIAN; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCORING SYSTEM; ULCERATIVE COLITIS;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; ATTITUDE OF HEALTH PERSONNEL; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFLAMMATORY BOWEL DISEASES; LOGISTIC MODELS; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; PATIENT EDUCATION AS TOPIC; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; YOUNG ADULT;

EID: 84872732506     PISSN: 00365521     EISSN: 15027708     Source Type: Journal    
DOI: 10.3109/00365521.2012.744090     Document Type: Article

References (23)

1. WatersBM, JensenL,FedorakRN.Effects of formal education for patients with inflammatory bowel disease: A randomized controlled trial. Can J Gastroenterol 2005;19:235-44 (Pubitemid 40778865)
2. Moradkhani A, Kerwin L, Dudley-Brown S, Tabibian JH. Disease-specific knowledge, coping, and adherence in patients with inflammatory bowel disease. Dig Dis Sci 2011;56:2972-7
3. Bernstein KI, Promislow S, Carr R, Rawsthorne P Walker JR, Bernstein CN. Information needs and preferences of recently diagnosed patients with inflammatory bowel disease. Inflamm Bowel Dis 2011;17:590-8
4. Casati J,TonerBB,DeRooyEC,DrossmanDA,MaunderRG. Concerns of patientswithinflammatoryboweldisease:Areview of emerging themes. Dig Dis Sci 2000;45:26-31
5. Jones SC, Gallacher B, Lobo AJ, Axon AT. A patient knowledge questionnaire in inflammatory bowel disease. J Clin Gastroenterol 1993;17:21-4 (Pubitemid 23193772)
6. Eaden JA, Abrams K, Mayberry JF. The Crohn's and colitis knowledge score: A test for measuring patient knowledge in inflammatory bowel disease. Am J Gastroenterol 1999;94: 3560-6
7. Payne SL. The art of asking questions. Princeton, NJ: Princeton University Press; 1951
8. Schaeffer NC, Presser S. The science of asking questions. Ann Rev Sociol 2003;29:65-88 (Pubitemid 37395366)
9. DeVellis RF. Scale development: Theory and applications. 2 Thousand Oaks, CA: Sage Publications, Inc; 2003
10. Wright JA, Wallston KA, Elasy TA, Ikizler TA Cavanaugh KL. Development and results of a kidney disease knowledge survey given to patients with CKD. Am J Kidney Dis 2011;57:387-95
11. Andrews JM, Holtmann G. IBD: Stress causes flares of IBD-how much evidence is enough? Nat Rev Gastroenterol Hepatol 2011;8:13-14
12. Bernstein CN, Singh S, Graff LA, Walker JR, Miller N Cheang M. A prospective population-based study of triggers of symptomatic flares in IBD. Am J Gastroenterol 2010;105: 1994-2002
13. Mittermaier C, Dejaco C, Waldhoer T, Oefferlbauer-Ernst A Miehsler W, Beier M, et al. Impact of depressive mood on relapse in patients with inflammatory bowel disease: A prospective 18-month follow-up study. Psychosom Med 2004;66:79-84 (Pubitemid 38146536)
14. Levenstein S. Could stress play a role in IBD? Inflamm Bowel Dis 2008;14:S206-7
15. Brédart A, Razavi D, Robertson C, Brignone S, Fonzo D Petit JY, et al. Timing of patient satisfaction assessment: Effect on questionnaire acceptability, completeness of data reliability and variability of scores. Patient Educ Couns 2002; 46:131-6 (Pubitemid 34175090)
16. Hjortswang H, Järnerot G, Curman B, Sandberg-Gertzén H Tysk C, Blomberg B, et al. The short health scale: A valid measure of subjective health in ulcerative colitis. Scand J Gastroenterol 2006;41:1196-203 (Pubitemid 44451683)
17. McDermott E, Keegan D, Byrne K, Doherty GA Mulcahy HE. The short health scale: A valid and reliable measure of health related quality of life in English speaking inflammatory bowel disease patients. J Crohns Colitis 2012 [Epub ahead of print].
18. Wright JA, Wallston KA, Elasy TA, Ikizler TA Cavanaugh KL. Development and results of a kidney disease knowledge survey given to patients with CKD. Am J Kidney Dis 2011;57:387-95
19. Hill J, Bird HA, Hopkins R, Lawton C, Wright V. The development and use of patient knowledge questionnaire in rheumatoid arthritis. Br J Rheumatol 1991;30:45-9
20. Bregenzer N, Lange A, Fürst A, Gross V, Schölmerich J Andus T. Patient education in inflammatory bowel disease does not influence patients knowledge and long-term psychosocial well-being. Z Gastroenterol 2005;43:367-71 (Pubitemid 40593381)
21. Verma S, Tsai HH, Giaffer MH. Does better disease-related education improve quality of life? A survey of IBD patients. Dig Dis Sci 2001;46:865-9 (Pubitemid 32373109)
22. Burisch J, Cukovic-Cavka S, Kaimakliotis I, Shonová O Andersen V, Dahlerup JF, et al. Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe An EpiCom study. J Crohns Colitis 2011;5:342-9
23. Bokemeyer B, Hardt J, Hüppe D, Prenzler A, Conrad S Düffelmeyer M, et al. Clinical status, psychosocial impairments medical treatment and health care costs for patients with inflammatory bowel disease (IBD) in Germany: An online IBD registry. J Crohns Colitis 2012; [Epub ahead of print].