Narrative in cancer research and policy: Voice, knowledge and context

Critical Reviews in Oncology/Hematology

Volumn 84, Issue SUPPL.2, 2012, Pages

  Atkinson, Sarah ^a   Rubinelli, Sara ^b  

^a DURHAM UNIVERSITY   (United Kingdom)

^b SWISS PARAPLEGIC RESEARCH   (Switzerland)

Author keywords

Experience; Humanities; Identity; Narrative; Negotiation; Personal; Political; Resources

Indexed keywords

ARTICLE; AWARENESS; CANCER PATIENT; CANCER RESEARCH; CANCER SURVIVAL; HEALTH CARE NEED; HEALTH CARE POLICY; HUMAN; MEDICAL DECISION MAKING; MEDICAL EDUCATION; MEDICAL LITERATURE; MEDICAL PRACTICE; NARRATIVE; PATIENT ASSESSMENT; PATIENT ATTITUDE; PERSONAL EXPERIENCE; PHYSICIAN ATTITUDE; PROFESSIONAL COMPETENCE; PROFESSIONAL KNOWLEDGE; RISK ASSESSMENT; SUPPORT GROUP; TOTAL QUALITY MANAGEMENT;

HEALTH POLICY; HUMANITIES; HUMANS; KNOWLEDGE; MEDICAL ONCOLOGY; NARRATION; NEOPLASMS;

EID: 84872673640     PISSN: 10408428     EISSN: 18790461     Source Type: Journal    
DOI: 10.1016/S1040-8428(13)70004-0     Document Type: Article

References (40)

1. Martignoni G, Grignoli N, Di Bernardo V, et al. Medical Humanities: a question of style. Crit Rev Oncol Hematol 2012, 84(Suppl 2):S1-S4.
2. Annoni M, Schiavone G, Chiapperino L, Boniolo G Constructing the Medical Humanities gaze. Crit Rev Oncol Hematol 2012, 84(Suppl 2):S5-S10.
3. Hurwitz B, Greenhalgh T, Skultans V Introduction. Narrative Research in Health and Illness 2005, 1-20. Blackwell, London. B. Hurwitz, T. Greenhalgh, V. Skultans (Eds.).
4. Thomas C Cancer narratives and methodological uncertainties. Qualitative Research 2008, 8(3):423-433.
5. Shapiro J Illness narratives: reliability, authenticity and the empathic witness. Medical Humanities 2011, 37(2):68-72.
6. Goyal RK, Charron R, Lekas H-M, et al. 'A local habitation and a name': how narrative evidence-based medicine transforms the translational research paradigm. Journal of Evaluation in Clinical Practice 2008, 14(5):732-741.
7. Mathieson CM, Stam HJ Renegotiating identity: cancer narratives. Sociology of Health and Illness 1995, 17(3):283-306.
8. Frank AW The Wounded Storyteller: Body, Illness and Ethics 1995, University of Chicago Press, Chicago, IL.
9. Woods A The limits of narrative: provocations for the medical humanities. Medical Humanities 2011, 37(2):73-78.
10. Hutto DD Narrative and understanding persons. Royal Institute of Philosophy Supplements 2007, 60:1-16.
11. Reeve J, Lloyd-Williams M, Payne S, Dowrick C Revisiting biographical disruption: exploring individual embodied illness experience in people with terminal cancer. Health (London) 2010, 14(2):178-195.
12. Frank AW Tricksters and truth tellers: narrating illness in an age of authenticity and appropriation. Literature and Medicine 2009, 28(2):185-199.
13. Skott C Expressive metaphors in cancer narratives. Cancer Nursing 2002, 25(3):230-235.
14. Kameny RR, Brearison DJ Cancer narratives of adolescents and young adults: a quantitative and qualitative analysis. Children's Health Care 2002, 31(2):143-173.
15. Van der Molen B Relating information needs to the cancer experience. 2. Themes from six cancer narratives. European Journal of Cancer Care 2000, 9(1):48-54.
16. Yaskowich KM, Stam HJ Cancer narratives and the cancer support group. Journal of Health Psychology 2003, 8(6):720-737.
17. Woodgate RL Life is never the same: childhood cancer narratives. European Journal of Cancer Care 2005, 15(1):8-18.
18. Evans M, Shaw A, Sharp D Integrity in patients' stories: 'Meaning-making' through narrative in supportive cancer care. European Journal of Integrative Medicine 2012, 4(1):e11-e18.
19. Jones T, Cohen F, Shapiro J Minding the gap(s): narrativity and liminality in medical student writing. Literature and Medicine 2012, 30(1):103-123.
20. Langellier KM, Sullivan CF Breast talk in breast cancer narratives. Qualitative Health Research 1998, 8(1):76-94.
21. Schultz JE (Un)body double: a rhapsody on hairless identity. Literature and Medicine 2009, 28(2):371-393.
22. Sinding C, Wiernikowski J Disruption foreclosed: older women's cancer narratives. Health (London) 2008, 12(3):389-411.
23. Reeve J, Lloyd-Williams M, Payne S, Dowrick C Revisiting biographical disruption: exploring individual embodied illness experience in people with terminal cancer. Health (London) 2010, 14(2):178-195.
24. Bishop JP Rejecting medical humanism: medical humanities and the metaphysics of medicine. Journal of Medical Humanities 2008, 29(1):15-25.
25. Petersen A, Bleakley A, Brömer R, Marshall R The medical humanities today: humane health care or tool of governance?. Journal of Medical Humanities 2008, 29(1):1-4.
26. Atkinson P Illness narratives revisited: the failure of narrative reductionism. Sociol Res Online 2009, 14(5):16. http://www.socresonline.org.uk/14/5/16.html, 10.5153/sro.2030.
27. Strawson G Against narrativity. Ratio 2004, 17(4):428-452.
28. Strawson G Episodic ethics. Royal Institute of Philosophy Supplements 2007, 60:85-116.
29. Tekla Les J When spoken words fail. Literature and Medicine 2009, 28(2):200-214.
30. Frank AW Illness and autobiographical work: dialogue as narrative destabilization. Qualitative Sociology 2000, 23(1):135-156.
31. Charmaz K Stories and silences: disclosures and self in chronic illness. Qualitative Inquiry 2002, 8(3):302-328.
32. Gardner KE Disruption and cancer narratives: from awareness to advocacy. Literature and Medicine 2009, 28(2):333-350.
33. Sontag S Illness as Metaphor 1978, Farrar, Strauss and Giroux, New York.
34. Lorde A The Cancer Journals 1980, Spinsters Ink, Argyle, NY.
35. Bartels EC Outside the box: surviving survival. Literature and Medicine 2009, 28(2):237-252.
36. Galvin R Disturbing notions of chronic illness and individual responsibility: towards a genealogy of morals. Health (London) 2002, 6(2):107-137.
37. Miller P, Rose N Governing the Present 2008, Polity Press, Cambridge.
38. King S Pink ribbons, Inc. Breast cancer and the politics of philanthropy 2006, University of Minnesota Press, Minneapolis, MN.
39. Diedrich L, Boyce E 'Breast cancer on Long Island': the emergence of a new object through mapping practices. Biosocieties 2007, 2(2):193-218.
40. Mullan F Seasons of survival: reflections of a physician with cancer. New England Journal of Medicine 1985, 313(4):270-273.