Difficulties, coping strategies, satisfaction and burden in informal Portuguese caregivers

Journal of Clinical Nursing

Volumn 22, Issue 3-4, 2013, Pages 491-500

  Sequeira, Carlos ^a  

^a Escola Superior de Enfermagem do Porto   (Portugal)

Author keywords

Burden; Coping strategies; Difficulties; Informal caregivers; Satisfaction

Indexed keywords

ADAPTIVE BEHAVIOR; ARTICLE; CAREGIVER; DEMENTIA; HUMAN; MENTAL STRESS; NURSING; PATIENT SATISFACTION; PORTUGAL; PSYCHOLOGICAL ASPECT;

ADAPTATION, PSYCHOLOGICAL; CAREGIVERS; DEMENTIA; HUMANS; PATIENT SATISFACTION; PORTUGAL; STRESS, PSYCHOLOGICAL;

EID: 84872329981     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/jocn.12108     Document Type: Article

References (33)

1. Alonso A, Garrido A, Díaz A, Casquero R & Riera M (2004) Perfil y sobrecarga de los cuidadores de pacientes con demencia incluidos en el programa ALOIS (Profile and overload of caregivers of patients with dementia, included in the program ALOIS). Atención Primaria (Journal of Primary Care) 33, 61-68 [in Spanish].
2. Berg L, Hughes CP, Danzinger LW, Coben LA & Martin RL (1982) A new clinical scale for the staging of dementia. British Journal of Psychiatry 140, 566-572.
3. Braithwaite V (1996) Between stressors and outcomes: can we simplify caregiving process variables? The Gerontologist 36, 42-53.
4. Brito L (2002) A saúde mental dos prestadores de cuidados a familiares idosos (Mental Health of Caregivers of Elderly Family Members). Quarteto Editora, Coimbra [in Portuguese].
5. Carrero M (2002) Ante la enfermedad de Alzheimer: pistas para cuidadores y familiares (Alzheimer's Disease: Clues for Caregivers and Family Members). Ed. Descllée de Brouwer, Bilbao [in Spanish].
6. Chang BH, Noonan A & Tennsted SL (1998) The role of religion/spirituality in coping with caregiving for disabled elders. The Gerontologist 38, 463-470.
7. Guerreiro MP, Silva AP, Botelho MA, Leitão O, Castro Caldas A & Garcia C (1994) Adaptação à população portuguesa da tradução do Mini Mental State Examination (MMSE) [Adaptation to the Portuguese population of the translation of the Mini Mental State Examination (MMSE)]. Revista Portuguesa de Neurologia (Portuguese Journal of Neurology) 1, 1-9 [in Portuguese].
8. INE - Instituto Nacional de Estatística (2008) Estatísticas demográficas 2007 (Demographic Statistics 2007). INE, Lisboa [in Portuguese].
9. INSERSO (1995) Cuidados en la vejez: el apoyo informal (Care for Old Age: the Informal Support). Ministério de Assuntos Sociales (Ministry of Social Issues), Madrid [in Spanish].
10. Lage I (2005) Cuidados familiares a idosos (Family care for the elderly). In Envelhecer em Portugal (Ageing in Portugal) (Paúl C & Fonseca A eds). Climepsi Editores, Lisboa, pp. 203-229 [in Portuguese].
11. Laham CF (2003) Percepção de perdas e ganhos subjectivos entre o cuidadores de pacientes atendidos em um programa de assistência domiciliar (Perceived Subjective Gains and Losses among the Caregivers of Patients Enrolled in a Program of Home Care). Master's Thesis, Faculty of Medicine, University of São Paulo, São Paulo [in Portuguese].
12. Lawton MP & Brody E (1969) Assessment of older people: self-maintaining and instrumental activities of daily living. The Gerontologist 9, 179-186.
13. Lieberman MA & Fisher L (1995) The impact of chronic illness on the health and well-being of family members. The Gerontologist 35, 94-102.
14. Mahoney FI & Barthel DW (1965) Functional evaluation. The Barthel Index. Md State Medical Journal 14, 61-65.
15. Martín M, Salvadó I, Nadal S, Miji LC, Rico JM & Taussing MI (1996) Adaptación para nuestro medio de la escala de sobrecarga del cuidador (Caregiver Burden Interview) de Zarit [Adaptation to our middle of the scale of caregiver burden (Caregiver Burden Interview) Zarit]. Revista de Gerontología (Journal of Gerontology) 6, 338-346 [in Spanish].
16. Montorio I, Izal M, López A & Sánchez M (1998) La entrevista de carga del cuidador. Utilidad y validez del concepto de carga (The caregiver burden interview. Utility and validity of the concept of burden). Anales de Psicología (Journal of Psychology) 14, 229-248 [in Spanish].
17. Morris JC (1993) The CDR: current version and scoring rules. Neurology 43, 1412-1414.
18. Nolan M & Grant G (1989) Addressing the needs of informal carers: a neglected area of nurses practice. Journal of Advanced Nursing 14, 950-961.
19. Nolan M, Grant G & Ellis N (1990) Stress is in the eye of the beholder: reconceptualizing the measurement of carer burden. Journal of Advanced Nursing 15, 544-555.
20. Nolan M, Keady J & Grant G (1995) CAMI - A basis for assessment and support with family carers. British Journal of Adult/Elderly Care Nursing 4, 822-826.
21. Nolan M, Grant G & Keady J (1996) Understanding Family Care: a Multidimensional Model for Caring and Coping. Open University Press, Buckingham.
22. Nolan M, Grant G & Keady J (1998) Assessing the Needs of Family Carers: a Guide for Practitioners. Pavillon Publications, Brighton.
23. Paúl MC (1997) Lá para o fim da vida (Towards the End of Life). Livraria Almedina, Coimbra [in Portuguese].
24. Roig MV, Abengózar MC & Serra E (1998) La sobrecarga en los cuidadores principales de enfermos de Alzheimer (Burden in main caregivers of Alzheimer patients). Anales de Psicología (Journal of Psychology) 14, 215-227 [in Spanish].
25. Santos ATM (2004) Acidente vascular cerebral: Qualidade de vida e bem-estar dos doentes e familiares cuidadores (Stroke: Quality of Life and Well Being of Patients and Family Caregivers). PhD Dissertation, Department of Psychology and Educational Sciences, University of Porto, Porto [in Portuguese].
26. Scazufca M (2002) Versão brasileira da escala «Burden Interview» para avaliação de sobrecarga em cuidadores de indivíduos com doenças mentais (The Brazilian version of the scale 'Burden Interview' for the assessment of burden in caregivers of individuals with mental illness). Revista Brasileira de Psiquiatria (Brazilian Journal of Psychiatry) 24, 12-17 [in Portuguese].
27. Sequeira C (2007) O aparecimento de uma perturbação demencial e suas repercussões na família (The Appearance of a Dementia Disorder and its Repercussions in a Family). PhD Dissertation, Abel Salazar Institute of Biomedical Sciences, University of Porto, Porto [in Portuguese].
28. Sequeira C (2010a) Cuidar de idosos com dependência fisica e mental (Caring for Elderly People with Physical and Mental Dependence). Lidel edições Técnicas Lda, Lisbon [in Portuguese].
29. Sequeira C (2010b) Adaptation and validation of Zarit Burden interview scale. Revista Referência (Reference Journal of Nursing) 12, 9-16 [in Portuguese].
30. Silva AMA (2009) Efectividade de um programa de intervenção na percepção de sobrecarga dos familiares cuidadores de pessoas idosas com demência (Effectiveness of an Intervention Program in the Perception of Burden of Family Caregivers of Older People with Dementia). Master's Thesis, School of Medicine, University of Lisbon, Lisbon [in Portuguese].
31. Sotto Mayor RM (2002) Cuidadores de idosos demenciados (Caregivers of Demented Elderly). Master's Thesis, School of Medicine, University of Porto, Porto [in Portuguese].
32. Zarit SH & Zarit JM (1983) The Memory and Behaviour Problems Checklist and the Burden Interview. Pennsylvania State University, University Park, PA.
33. Zarit SH, Johanson B & Malmberg P (1995) Changes in functional competency in the oldest old: a longitudinal study. Journal of Aging and Health 7, 3-23.