Agency and Moral Relationship in Dementia

Cognitive Disability and Its Challenge to Moral Philosophy

Volumn , Issue , 2010, Pages 171-182

  Jennings, Bruce ^a,b,c  

^a YALE UNIVERSITY   (United States)

^b Center for Humans and Nature   (United States)

^c HASTINGS CENTER   (United States)

Author keywords

Agency and moral relationship in dementia; Aspects of personhood in context of dementia special conception or memorial personhood; Concept of "memorial personhood" status of demented individual within moral life world of semantic agents; Conceptual framing, clinical and familial discourse concerning dementia; Dementia care, relationship and recognition; Dynamic, dialogic or relational aspects of mind and agency; Fields of bioethics and moral philosophy ethics of dementia care; Goals of care and exercise of guardianship authority in long term care of persons with Alzheimer's disease; Preservation and restoration of capacities for human communicative relations; Quality of life and agency capacities, constitutive of human good or realization of full humanity.

Indexed keywords

EID: 84872302359     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1002/9781444322781.ch10     Document Type: Chapter

References (33)

1. Albert, Steven M., and Rebecca G. Logsdon, eds. 2000. Assessing Quality of Life in Alzheimer's Disease. New York: Springer.
2. Bayley, John. 1999. Elegy for Iris. New York: St. Martin's Press.
3. Bernlef, J. 1988. Out of Mind. London: Farber and Farber.
4. Brock, Dan. 1993. "Quality of Life Measures in Health Care and Medical Ethics." In The Quality of Life, edited by Martha C. Nussbaum and Amartya Sen, 95-139. New York: Cambridge University Press.
5. Cantor, Norman L. 2005. Making Medical Decisions for the Profoundly Mentally Disabled. Cambridge, Mass.: MIT Press.
6. Cooney, Eleanor. 2003. Death in Slow Motion: My Mother's Descent into Alzheimer's. New York: HarperCollins.
7. Damasio, Antonio R. 1994. Descartes' Error: Emotion, Reason, and the Human Brain. New York: G. P. Putnam's Sons.
8. Darwall, Stephen. 2006. The Second-Person Standpoint: Morality, Respect, and Accountability. Cambridge, Mass.: Harvard University Press.
9. Davidson, Ann. 1997. Alzheimer's, a Love Story: One Year in My Husband's Journey. Secaucus, N.J.: Carol.
10. DeBaggio, Thomas. 2002. Losing My Mind: An Intimate Look at Life with Alzheimer's. New York: Free Press.
11. FFF. 2003. When It Gets Dark: An Enlightened Reflection on Life with Alzheimer's. New York: Free Press.
12. Dresser, Rebecca S. 1986. "Life, Death and Incompetent Patients: Conceptual Infirmities and Hidden Values in the Law." Arizona Law Review 28:373-405.
13. Harré , Rom. 1998. The Singular Self. Thousand Oaks, Calif.: Sage.
14. Harré , Rom, and Grant Gillett. 1994. The Discursive Mind. Thousand Oaks, Calif.: Sage.
15. Jaworska, Agnieszka. 1999. "Respecting the Margins of Agency: Alzheimer's Patients and the Capacity to Value." Philosophy and Public Affairs 28, no. 2 (Spring): 105-38.
16. Jennings, Bruce. 2000. "A Life Greater Than the Sum of Its Sensations: Ethics, Dementia, and the Quality of Life." In Assessing Quality of Life in Alzheimer's Disease, edited by Steven M. Albert and Rebecca G. Logsdon, 165-78. New York: Springer.
17. FFF. 2001. "Freedom Fading: On Dementia, Best Interests, and Public Safety." Georgia Law Review 35, no. 2 (Winter): 593-619.
18. FFF. 2006. "The Ordeal of Reminding: Traumatic Brain Injury and the Ethics of Care." Hastings Center Report 37, no. 2 (March/April): 29-37.
19. Kittay, Eva Feder. 1999. Love's Labor: Essays on Women, Equality, and Dependency. New York: Routledge.
20. FFF. 2002. "Can Contractualism Justify State-Supported Long-Term Care Policies? Or, I'd Rather Be Some Mother's Child." In Ethical Choices in Long-Term Care: What Does Justice Require. edited by the World Health Organization, 77-83. Geneva: WHO.
21. Kitwood, Tom. 1993. "Towards a Theory of Dementia Care: The Interpersonal Process." Ageing and Society 13:51-67.
22. FFF. 1997. Dementia Reconsidered. Buckingham: Open University Press.
23. MacIntyre, Alasdair. 1999. Dependent Rational Animals. Chicago: Open Court.
24. McCormick, Richard. 1978. "The Quality of Life, the Sanctity of Life." Hastings Center 8, no. 1 (February): 30-36.
25. McGowin, Diana Friel. 1993. Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer's. New York: Delta Books.
26. Mitchell, Marilyn. 2002. Dancing on Quicksand: A Gift of Friendship in the Age of Alzheimer's. Boulder, Colo.: Johnson Books.
27. Nussbaum, Martha C. 2000. Women and Human Development. Cambridge: Cambridge University Press.
28. FFF. 2002. "Long-Term Care and Social Justice: A Challenge to Conventional Ideas of the Social Contract." In Ethical Choices in Long-Term Care: What Does Justice Require? edited by the World Health Organization, 31-66. Geneva: WHO.
29. FFF. 2006. Frontiers of Justice. Cambridge, Mass.: Harvard University Press.
30. Parfit, Derek. 1984. Reasons and Persons. Oxford: Oxford University Press.
31. Sabat, Steven R., and Rom Harré . 1992. "The Construction and Deconstruction of Self in Alzheimer's Disease." Ageing and Society 12:443-61.
32. Scanlon, Thomas M. 1993. "Value, Desire, and Quality of Life." In The Quality of Life, edited by Martha C. Nussbaum and Amartya Sen, 185-200. New York: Cambridge University Press.
33. Souren, Liduin, and Emile Franssen. 1994. Broken Connections: Alzheimer's Disease, part 1. Lisse: Swets and Zeitlinger.