Assessment of COPD wellness tools for use in primary care: An IPCRG initiative

International Journal of COPD

Volumn 7, Issue , 2012, Pages 447-456

  Cave, Andrew J ^a   Atkinson, Lana ^a   Tsiligianni, Ioanna G ^b,c   Kaplan, Alan G ^d  

^a UNIVERSITY OF ALBERTA   (Canada)

^b UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^c Agia Barbara Health Care Centre   (Greece)

^d Family Physician Airways Group of Canada   (Canada)

Author keywords

Instrument; Primary care; Quality of life; Wellness

Indexed keywords

10 ITEM RESPIRATORY ILLNESS QUESTIONNAIRE MONITORING; AIRWAYS QUESTIONNAIRE; ARTICLE; BREATHING PROBLEMS QUESTIONNAIRE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CHRONIC RESPIRATORY QUESTIONNAIRE; CLINICAL ASSESSMENT TOOL; CLINICAL COPD QUESTIONNAIRE; COPD ACTIVITY RATING SCALE; COPD ASSESSMENT TEST; HEALTH CARE ORGANIZATION; HEALTH CARE PERSONNEL; HUMAN; MEDICAL RESEARCH COUNCIL DYSPNOEA; PRACTICE GUIDELINE; PRIMARY MEDICAL CARE; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY; ST GEORGE RESPIRATORY DISEASE QUESTIONNAIRE; VALIDITY; WELLBEING; HEALTH STATUS; HEALTH STATUS INDICATOR; LUNG; PATHOPHYSIOLOGY; PREDICTIVE VALUE; PRIMARY HEALTH CARE; PSYCHOLOGICAL ASPECT; REVIEW; STANDARD; TREATMENT OUTCOME;

HEALTH STATUS; HEALTH STATUS INDICATORS; HUMANS; LUNG; PRACTICE GUIDELINES AS TOPIC; PREDICTIVE VALUE OF TESTS; PRIMARY HEALTH CARE; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITY OF LIFE; TREATMENT OUTCOME;

EID: 84872224756     PISSN: 11769106     EISSN: 11782005     Source Type: Journal    
DOI: 10.2147/COPD.S29868     Document Type: Article

References (27)

1. Pauwels RA, Buist AS, Calverley PM, et al. Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmo-nary disease. NHLBI/WHO global initiative for chronic obstructive lung disease (GOLD) workshop summary. Am J Respir Crit Care Med. 2001;163(5):1256-1276.
2. Heyworth IT, Hazell ML, Linehan MF, Frank TL. How do common chronic conditions affect health-related quality of life? Br J Gen Pract. 2009;59(568):e353-e358.
3. Fitzpatrick R, Bowling A, Gibbons E, et al. A Structured Review of Patient-Reported Measures in Relation to Selected Chronic Conditions, Perceptions of Quality of Care and Carer Impact. Oxford: Report to the Department of Health, University of Oxford; 2006. Available from: http://phi.uhce.ox.ac.uk/pdf/ChronicConditions/DH_REVIEWS_NOVEMBER_2007.pdf. Accessed December 23, 2011.
4. Garratt A, Schmidt L, Mackintosh A, Fitzpatrick R. Quality of life measurement: bibliographic study of patient assessed health outcome measures. BMJ. 2002;324(7351):1417-1421.
5. Jones PW. Health status measurement in chronic obstructive pulmonary disease. Thorax. 2001;56(11):880-887.
6. Tsiligianni I, Kocks J, Tzanakis N, Siafakas N, van der Molen T. Factors that influence disease-specific quality of life or health status in patients with COPD: a review and meta-analysis of Pearson correlations. Prim Care Respir J. 2011;20(3):257-268.
7. Stucki A, Stucki G, Cieza A, Schuurmans MM, Kostanjsek N, Ruof J. Content comparison of health-related quality of life instruments for COPD. Respir Med. 2007;101(6):1113-1122.
8. Cazzola M, MacNee W, Martinez FJ, et al. Outcomes for COPD phar-macological trials: from lung function to biomarkers. Eur Respir J. 2008;31(2):416-469.
9. Starkie H, Briggs A. Outcome Measures for the Assessment of Treatment Results in Chronic Obstructive Pulmonary Disease. Glasgow: Public Health and Health Policy, University of Glasgow; 2007.
10. Bausewein C, Farquhar M, Booth S, Gysels M, Higginson IJ. Measurement of breathlessness in advanced disease: a systematic review. Respir Med. 2007;101(3):399-410.
11. Dorman, S, Byrne A, Edwards A. Which measurement scales should we use to measure breathlessness in palliative care? A systematic review. Palliat Med. 2007;21(3):177-191.
12. Hajiro T, Nishimura K, Jones PW, et al. A novel, short, and simple questionnaire to measure health-related quality of life in patients with chronic obstructive pulmonary disease. Am J Respir Crit Care Med. 1999;159(6):1874-1878.
13. Hyland ME, Singh SJ, Sodergren SC, Morgan MP. Development of a shortened version of the Breathing Problems Questionnaire suitable for use in a pulmonary rehabilitation clinic: a purpose-specific, disease-specific questionnaire. Qual Life Res. 1998;7(3):227-233.
14. Morimoto M, Takai K, Nakajima K, Kagawa K. Development of the chronic obstructive pulmonary disease activity rating scale: reliability, validity and factorial structure. Nurs Health Sci. 2003;5(1):23-30.
15. Jones PW, Harding G, Berry P, Wiklund I, Chen WH, Kline Leidy N. Development and first validation of the COPD Assessment Test. Eur Respir J. 2009;34(3):648-654.
16. Jones PW, Price D, van der Molen T. Role of clinical questionnaires in optimizing everyday care of chronic obstructive pulmonary disease. Int J Chron Obstruct Pulmon Dis. 2011;6:289-296.
17. Van der Molen T, Willemse BW, Schokker S, ten Hacken NH, Postma DS, Juniper EF. Development, validity and responsiveness of the Clinical COPD Questionnaire. Health Qual Life Outcomes. 2003;1:13.
18. Stallberg B, Nokela M, Ehrs PO, Hjemdal P, Jonsson EW. Validation of the Clinical COPD Questionnaire (CCQ) in primary care. Health Qual Life Outcomes. 2009;7:26.
19. Tsai CL, Hodder RV, Page JH, Cydulka RK, Rowe BH, Camargo CA Jr. The short-form chronic respiratory disease questionnaire was a valid, reliable, and responsive quality-of-life instrument in acute exacerba-tions of chronic obstructive pulmonary disease. J Clin Epidemiol. 2008;61(5):489-497.
20. Hajiro T, Nishimura K, Tsukino M, Ikeda A, Koyama H, Izumi T. Comparison of discriminative properties among disease-specific ques-tionnaires for measuring health-related quality of life in patients with chronic obstructive pulmonary disease. Am J Respir Crit Care Med. 1998;157(3 Pt 1):785-790.
21. Bestall JC, Paul EA, Garrod R, Garnham R, Jones PW, Wedzicha JA. Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax. 1999;54(7):581-586.
22. Jacobs JE, Maille AR, Akkermans RP, van Weel C, Grol RP. Assessing the quality of life of adults with chronic respiratory diseases in routine primary care: construction and first validation of the 10-Item Respira-tory Illness Questionnaire-monitoring 10 (RIQ-MON10). Qual Life Res. 2004;13(6):1117-1127.
23. Jones PW, Quirk FH, Baveystock CM. The St George's Respiratory Questionnaire. Respir Med. 1991;85(Suppl B):25-31.
24. International Primary Care Respiratory Group (IPCRG). The IPCRG Users' Guide to Currently Available Asthma Control Tools. Westhill: IPCRG; 2009. Available from: http://www.theipcrg.org/resources/controltablefinalversion151009.xls. Accessed December 23, 2011.
25. Cave AJ, Tsiligianni I, Chavannes N, Correia de Sousa J, Yaman H. IPCRG Users' Guide to COPD "Wellness" Tools. Westhill: IPCRG; 2010 September. Available from: http://www.theipcrg.org/resources/ipcrg_users_guide_to_copd_wellness_tools.pdf. Accessed December 23, 2011.
26. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health sur-vey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30(6):473-483.
27. Bergner M, Bobbit RA, Carter WB, Gilson BS. The Sickness Impact Profile: development and final revision of a health status measure. Med Care. 1981;19(8):787-805.