The impact of National Death Index linkages on population-based cancer survival rates in the United States

Cancer Epidemiology

Volumn 37, Issue 1, 2013, Pages 20-28

  Johnson, Christopher J ^a   Weir, Hannah K ^b   Fink, Aliza K ^c   German, Robert R ^b   Finch, Jack L ^d   Rycroft, Randi K ^d   Yin, Daixin ^e   Heron, Melonie ^f   Stewart, Sherri L ^b   Harder, Pam ^g   Bol, Kirk ^d   Bates, Janet ^e   Iachan, Ronaldo ^h   Anderson, Robert ^f   Foster, Stephanie ⁱ  

^a Cancer Data Registry of Idaho   (United States)

^b NATIONAL CENTER FOR CHRONIC DISEASE PREVENTION AND HEALTH PROMOTION   (United States)

^c ICF INTERNATIONAL   (United States)

^d Colorado Department of Public Health and Environment ^*  (United States)

^e California Cancer Registry   (United States)

^f NATIONAL CENTER FOR HEALTH STATISTICS   (United States)

^g Bureau of Vital Records and Health Statistics   (United States)

^h ICF Macro   (United States)

ⁱ AGENCY FOR TOXIC SUBSTANCES AND DISEASE REGISTRY   (United States)

Author keywords

Cancer survival; Death certificate accuracy; National Death Index

Indexed keywords

ARTICLE; BREAST CANCER; BRONCHUS CANCER; CANCER MORTALITY; CANCER OF UNKNOWN PRIMARY SITE; CANCER REGISTRY; CANCER SURVIVAL; CAUSE SPECIFIC SURVIVAL; COLORECTAL CANCER; CONTROLLED STUDY; DATA BASE; DEATH CERTIFICATE; FEMALE; FOLLOW UP; HUMAN; KAPOSI SARCOMA; LUNG CANCER; MAJOR CLINICAL STUDY; MALE; NATIONAL DEATH INDEX; NONHODGKIN LYMPHOMA; PANCREAS CANCER; PRIORITY JOURNAL; PROSTATE CANCER; SURVIVAL RATE; SURVIVAL TIME; UNITED STATES;

DEATH CERTIFICATES; HUMANS; NEOPLASMS; REGISTRIES; SURVIVAL RATE; UNITED STATES;

EID: 84872124610     PISSN: 18777821     EISSN: 1877783X     Source Type: Journal    
DOI: 10.1016/j.canep.2012.08.007     Document Type: Article

References (29)

1. Micheli A., Coebergh J.W., Mugno E., Massimiliani E., Sant M., Oberaigner W., et al. European health systems and cancer care. Ann Oncol 2003, 14(Suppl. 5):41-60.
2. Rachet B., Maringe C., Nur U., Quaresma M., Shah A., Woods L.M., et al. Population-based cancer survival trends in England and Wales up to 2007: an assessment of the NHS cancer plan for England. Lancet Oncol 2009, 10:351-369.
3. Survival of cancer patients in Europe: the EUROCARE study 1995, IARC Scientific Publication 132, International Association of Cancer Registries, Lyon, France. F. Berrino, M. Sant, V. Verdecchia, R. Capocaccia, T. Hakulinen, J. Estéve (Eds.).
4. Brenner H., Hakulinen T. Implications of incomplete registration of deaths on long-term survival estimates from population-based cancer registries. Int J Cancer 2009, 125:432-437.
5. Johnson C.J., Weir H.K., Yin D., Niu X. The impact of patient follow-up on population-based survival rates. J Regist Manage 2010, 37(3):86-103.
6. Edwards B.K., Howe H.L., Ries L.A., Thun M.J., Rosenberg H.M., Yancik R., et al. Annual report to the nation on the status of cancer, 1973-1999, featuring implications of age and aging on U.S. cancer burden. Cancer 2002, 94(10):2766-2792.
7. Seiffert J., McKeen K. Death clearance. Central cancer registries: design, management and use 2007, 101-110. Kendall/Hunt Publishing Company, Dubuque. 2nd ed. H.R. Menck, D. Deapen, J.L. Phillips, T.C. Tucker (Eds.).
8. SEER survival monograph: cancer survival among adults: U. S. SEER Program, 1988-2001, patient and tumor characteristics 2007, NIH Pub. No. 07-6215, National Cancer Institute, Bethesda, MD. L.A.G. Ries, J.L. Young, G.E. Keel, M.P. Eisner, Y.D. Lin, M.-J. Horner (Eds.).
9. Death clearance manual 2009, North American Association of Central Cancer Registries, Springfield, IL, [accessed 30.07.12]. http://www.naaccr.org/LinkClick.aspx%3Ffileticket=RD1FxWlmC24%3d%26tabid=130%26mid=470, NAACCR Death Clearance Best Practices Work Group (Ed.).
10. Wentworth D.N., Neaton J.D., Rasmussen W.L. An evaluation of the Social Security Administration MBR file and the National Death Index in the ascertainment of vital status. Am J Public Health 1983, 73:1270-1274.
11. Fillenbaum G.G., Burchett B.M., Blazer D.G. Identifying a National Death Index match. Am J Epidemiol 2009, 170(4):515-518.
12. Cotton C.A., Peterson S., Norkool P.A., Breslow N.E. Mortality ascertainment of participants in the National Wilms Tumor Study using the National Death Index: comparison of active and passive follow-up results. Epidemiol Perspect Innov 2007, 2:4-5.
13. Cowper D.C., Kubal J.D., Maynard C., Hynes D.M. A primer and comparative review of major US mortality databases. Ann Epidemiol 2002, 12:462-468.
14. Marcus P.M., Bergstralh E.J., Fagerstrom R.M., Williams D.E., Fontana R., Taylor W.F., et al. Lung cancer mortality in the Mayo Lung Project: impact of extended follow-up. J Natl Cancer Inst 2000, 92:1308-1316.
15. Rana J.S., Mukamal K.J., Morgan J.P., Muller J.E., Mittleman M.A. Obesity and the risk of death after acute myocardial infarction. Am Heart J 2004, 147:841-846.
16. Rauscher G.H., Sandler D.O. Validating cancer histories in deceased relatives. Epidemiology 2005, 16:262-265.
17. Sorlie P.D., Coady S., Lin C., Arias E. Factors associated with out-of-hospital coronary heart disease death: the National Longitudinal Mortality Study. Ann Epidemiol 2004, 14:447-452.
18. German R.R., Fink A.K., Heron M., Stewart S.L., Johnson C.J., Finch J.L., et al. The accuracy of cancer mortality statistics based on death certificates in the United States. Cancer. Epidemiology 2011, 35(2):126-131.
19. National Center for Health Statistics. About the mortality medical data system. [accessed 10.01.12]. http://www.cdc.gov/nchs/nvss/mmds/about_mmds.htm.
20. U.S.Cancer Statistics Working Group United States cancer statistics: 1999-2008 incidence and mortality data web-based report 2012, U.S. Department of Health and Human Services, Centers for Disease Control and Prevention and National Cancer Institute, Atlanta, [accessed 30.07.12]. http://www.cdc.gov/uscs.
21. SEER Site Recode ICD-O-3 (1/27/2003) Definition. [accessed 28.06.11]. http://seer.cancer.gov/siterecode/icdo3_d01272003.
22. Ederer F., Axtell L.M., Cutler S.J. The relative survival rate: a statistical methodology. J Natl Cancer Inst Monogr 1961, 6:101-121.
23. Ederer F, Heise H. Instructions to IBM 650 programmers in processing survival computations. Methodological Note Number 10, End Results Evaluation Section, Technical Report. Bethesda, MD: National Cancer Institute; 1959.
24. Coleman M.P. Opinion: why the variation in breast cancer survival in Europe?. Breast Cancer Res 1999, 1(1):22-26.
25. U.S. Census Bureau. 2010 American Community Survey, State-to-State Migration Flows. [accessed 30.07.12]. http://www.census.gov/hhes/migration/data/acs/state-to-state.html.
26. Hermansen S.W., Leitzman M.F., Schatzkin A. The impact on National Death Index ascertainment of limiting submissions to Social Security Administration Death Master File matches in epidemiologic studies of mortality. Am J Epidemiol 2009, 169(7):901-908.
27. Johnson C.J., Hahn C.G., Fink A.K., German R.R. Variability in cancer death certificate accuracy by characteristics of death certifiers. Am J Forensic Med Pathol 2012, 33(2):137-142.
28. Baili P., Micheli A., De Angelis R., Weir H.K., Francisci S., Santaquilani M., et al. Life tables for world-wide comparison of relative survival for cancer (CONCORD study). Tumori 2008, 94(5):658-668.
29. Howlader N., Ries L.A., Mariotto A.B., Reichman M.E., Ruhl J., Cronin K. Improved estimates of cancer-specific survival rates from population-based data. J Natl Cancer Inst 2010, 102(20):1584-1598.