"Our best hope is a cure". Hope in the context of advance care planning

Palliative and Supportive Care

Volumn 10, Issue 2, 2012, Pages 75-82

  Robinson, Carole A ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

ACP; Advanced cancer; False hope; Hope; Terminal illness

Indexed keywords

FAMILY; FEMALE; HOPE; HUMAN; INTERVIEW; LUNG TUMOR; MALE; PALLIATIVE THERAPY; PATIENT CARE; PATIENT PREFERENCE; PSYCHOLOGY; QUALITATIVE RESEARCH; TERMINAL CARE; TERMINALLY ILL PATIENT;

ADVANCE CARE PLANNING; FAMILY; FEMALE; HOPE; HUMANS; INTERVIEWS AS TOPIC; LUNG NEOPLASMS; MALE; PALLIATIVE CARE; PATIENT PREFERENCE; QUALITATIVE RESEARCH; TERMINAL CARE; TERMINALLY ILL;

EID: 84872029789     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S147895151100068X     Document Type: Article

References (44)

1. Altekruse, S.F., Kosary, C.L., Krapcho, M. et al., eds. (2010). SEER Cancer Statistics Review, 1975-2007. http://seer.cancer.gov/csr/1975-2007/
2. Apatira, L., Boyd, E.A., Malvar, G., et al. (2008). Hope, truth, and preparing for death: Perspectives of surrogate decision makers. Annals of Internal Medicine, 149, 861-868.
3. Back, A.L., Arnold, R.M. & Quill, T.E. (2003). Hope for the best, and prepare for the worst. Annals of Internal Medicine, 138, 439-443. (Pubitemid 36262662)
4. Barnes, K., Jones, L., Tookman, A., et al. (2007). Acceptability of an advance care planning interview schedule: A focus group study. Palliative Medicine, 21, 23-28. (Pubitemid 47161278)
5. Benzein, E., Norberg, A. & Saveman, B.-I. (2001). The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliative Medicine, 15, 117-126. (Pubitemid 32259528)
6. Benzein, E.G. & Saveman, B.-I. (2008). Health-promoting conversations about hope and suffering with couples in palliative care. International Journal of Palliative Nursing, 14, 439-445.
7. Berendes, D., Keefe, F.J., Somers, T.J., et al. (2010). Hope in the context of lung cancer: Relationships of hope to symptoms and psychological distress. Journal of Pain and Symptom Management, 40, 174-182.
8. Breathnach, O.S., Freidlin, B., Conley, B., et al. (2001). Twenty-two years of phase III trials for patients with advanced non-small-cell lung cancer: Sobering results. Journal of Clinical Oncology, 19, 1734-1742. (Pubitemid 32230875)
9. Briggs, L. (2003). Shifting the focus of advance care planning: Using an in-depth interview to build and strengthen relationships. www.edc.org/lastacts.
10. Briggs, L.A., Kirchhoff, K.T., Hammes, B.J., et al. (2004). Patient-centered advance care planning in special patient populations: A pilot study. Journal of Professional Nursing, 20, 47-58. (Pubitemid 38425829)
11. Chi, G.C-H-L. (2007). The role of hope in patients with cancer. Oncology Nursing Forum, 34, 415-424.
12. Clayton, J.M., Butow, P.N., Arnold, R.M., et al. (2005). Fostering coping and nurturing hope when discussing the future with terminally ill cancer patients and their caregivers. Cancer, 103, 1965-1975. (Pubitemid 40563271)
13. Clayton, J.M., Hancock, K., Parker, S., et al. (2008). Sustaining hope when communicating with terminally ill patients and their families: A systematic review. Psycho- Oncology, 17, 641-659.
14. Curtis, J.R., Engelberg, R., Young, J.P., et al. (2008). An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. Journal of Palliative Medicine, 11, 610-620. (Pubitemid 351630198)
15. Daugherty, C.K. (2004). Examining ethical dilemmas as obstacles to hospice and palliative care for advanced cancer patients. Cancer Investigation, 22, 123-131. (Pubitemid 38523966)
16. Duggleby, W., Holtslander, L., Kylma, J., et al. (2010). Metasynthesis of the hope experience of family caregivers of persons with chronic illness. Qualitative Health Research, 20, 148-158.
17. Eliott, J. & Olver, I. (2002). The discursive properties of "hope": A qualitative analysis of cancer patients' speech. Qualitative Health Research, 12, 173-193.
18. Eliott, J.A. & Olver, I.N. (2007). Hope and hoping in the talk of dying cancer patients. Social Science&Medicine, 64, 138-149. (Pubitemid 44750326)
19. Field, D.&Copp, G. (1999). Communication and awareness about dying in the 1990s. Palliative Medicine, 13, 459-468. (Pubitemid 29533018)
20. Frank, A. (1998). Just listening: Narrative and deep illness. Families, Systems & Health, 16, 197-212. (Pubitemid 28433544)
21. Garrard, E. & Wrigley, A. (2009). Hope and terminal illness: False hope versus absolute hope. Clinical Ethics, 4, 38-43.
22. Glaser, B.G. & Strauss, A. (1967). The Discovery of Grounded Theory: Strategies for Qualitative Research. New York: Aldine Publishing Company.
23. Gordon, E.J. & Daugherty, C.K. (2003). "Hitting you over the head": Oncologists' disclosure of prognosis to advanced cancer patients. Bioethics, 17, 142-168. (Pubitemid 36416572)
24. Innes, S. & Payne, S. (2009). Advanced cancer patients' prognostic information preferences: A review. Palliative Medicine, 23, 29-39
25. Kirk, P., Kirk, I. & Kristjanson, L.J. (2004). What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. British Medical Journal, 328, 1343-1347. (Pubitemid 38738489)
26. Kwon, P. (2002). Hope, defense mechanisms, and adjustment: Implications for false hope and defensive hopelessness. Journal of Personality, 70, 207-231.
27. Lin, H. & Bauer-Wu, S.M. (2003). Psycho-spiritual wellbeing in patients with advanced cancer: An integrative review of the literature. Journal of Advanced Nursing, 44, 69-80. (Pubitemid 37352311)
28. Links, M. & Kramer, J. (1994). Breaking bad news: Realistic versus unrealistic hopes. Supportive Care in Cancer, 2, 91-93.
29. McClement, S.E. & Chochinov, H.M. (2008). Hope in advanced cancer patients. European Journal of Cancer, 44, 1169-1174.
30. Miller, J.F. (2007). Hope: A construct central to nursing. Nursing Forum, 42, 12-19.
31. Nekolaichuk, C.L. & Bruera, E. (1998). On the nature of hope in palliative care. Journal of Palliative Care, 14, 36-42. (Pubitemid 128643942)
32. Nekolaichuk, C.L. & Bruera, E. (2004). Assessing hope at the end of life: Validation of an experience of hope scale in advanced cancer patients. Palliative and Supportive Care, 2, 243-253.
33. Ngo-Metzger, Q., August, K.J., Srinivasan, M., et al. (2008). End-of-life care: Guidelines for patient-centered communication. American Family Physician, 77, 167-174. (Pubitemid 351162301)
34. Penson, R.T., Gu, F., Harris, S., et al. (2007). Hope. The Oncologist, 12, 1105-1103.
35. Perakyla, A. (1991). Hope work in the care of seriously ill patients. Qualitative Health Research, 1, 407-433.
36. Renz, M., Koeberle, D., Cerny, T., et al. (2009). Between utter despair and essential hope. Journal of Clinical Oncology, 27, 146-149.
37. Reynolds, M.A.H. (2008). Hope in adults, ages 20-59, with advanced stage cancer. Palliative and Supportive Care, 6, 259-264.
38. Sanatani, M., Schreier, G. & Stitt, L. (2008). Level and direction of hope in cancer patients: An exploratory longitudinal study. Supportive Care in Cancer, 16, 493-499. (Pubitemid 351502759)
39. Schulman-Green, D., McCorkle, R., Cherlin, E., et al. (2005). Nurses, communication of prognosis and implications for hospice referral: A study of nurses caring for terminally ill hospitalized patients. American Journal of Critical Care, 14, 64-70. (Pubitemid 40104939)
40. Simpson, C. (2004). When hope makes us vulnerable: A discussion of patient-healthcare provider interactions in the context of hope. Bioethics, 18, 429-447.
41. Snyder, C.R., Rand, K.L., King, E.A., et al. (2002). "False" hope. Journal of Clinical Psychology, 58, 1003-1022.
42. Solnit, R. (2004). Hope in the Dark: Untold Histories, Wild Possibilities. New York: Nation Books.
43. Whitney, S.N., McCullough, L.B., Fruge, E., McGuire, A.L. & Volk, R.J. (2008). Beyond breaking bad news: The roles of hope and hopefulness. Cancer, 113, 442-445.
44. Zimmermann, C. (2007). Death denial: Obstacle or instrument for palliative care? An analysis of the literature. Sociology of Health & Illness, 29, 297-314.