On the HORYZON: Moderated online social therapy for long-term recovery in first episode psychosis

Schizophrenia Research

Volumn 143, Issue 1, 2013, Pages 143-149

  Alvarez Jimenez, M ^a,b   Bendall, S ^a,b   Lederman, R ^c   Wadley, G ^c   Chinnery, G ^b   Vargas, S ^b   Larkin, M ^a,b   Killackey, E ^a,b   McGorry, P D ^a,b   Gleeson, J F ^d  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b THE NATIONAL CENTRE OF EXCELLENCE IN YOUTH MENTAL HEALTH   (Australia)

^c UNIVERSITY OF MELBOURNE   (Australia)

^d AUSTRALIAN CATHOLIC UNIVERSITY   (Australia)

Author keywords

Early intervention; First episode psychosis; Long term recovery; Online; Schizophrenia; Social networking

Indexed keywords

ADULT; ARTICLE; CLINICAL ARTICLE; CLINICAL EFFECTIVENESS; CONSULTATION; FEMALE; FOLLOW UP; HEALTH PROGRAM; HUMAN; INTERNET; MALE; ONLINE SYSTEM; OUTCOME ASSESSMENT; PEER GROUP; PILOT STUDY; PRIORITY JOURNAL; PSYCHOEDUCATION; PSYCHOSIS; PSYCHOSOCIAL CARE; SAFETY; SOCIAL NETWORK;

ADOLESCENT; ADULT; COGNITIVE THERAPY; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; PEER GROUP; PILOT PROJECTS; PSYCHIATRIC STATUS RATING SCALES; PSYCHOTIC DISORDERS; RECOVERY OF FUNCTION; SOCIAL NETWORKING; YOUNG ADULT;

EID: 84871935883     PISSN: 09209964     EISSN: 15732509     Source Type: Journal    
DOI: 10.1016/j.schres.2012.10.009     Document Type: Article

References (74)

1. ACMA Australian Communications Media Authority http://www.acma.gov.au.
2. Addington D., Addington J., Matickatyndale E. Assessing depression in schizophrenia - the Calgary Depression Scale. Br. J. Psychiatry 1993, 163:39-44.
3. Alvarez-Jimenez M., Gleeson J.F., Cotton S., Wade D., Gee D., Pearce T., Crisp K., Spiliotacopoulos D., Newman B., McGorry P.D. Predictors of adherence to cognitive-behavioural therapy in first-episode psychosis. Can. J. Psychiatry 2009, 54(10):710-718.
4. Alvarez-Jimenez M., Parker A.G., Hetrick S.E., McGorry P.D., Gleeson J.F. Preventing the second episode: a systematic review and meta-analysis of psychosocial and pharmacological trials in first-episode psychosis. Schizophr. Bull. 2011, 37(3):619-630.
5. Alvarez-Jimenez M., Priede A., Hetrick S.E., Bendall S., Killackey E., Parker A.G., McGorry P.D., Gleeson J.F. Risk factors for relapse following treatment for first episode psychosis: a systematic review and meta-analysis of longitudinal studies. Schizophr. Res. 2012, (as).
6. Alvarez-Jimenez M., Gleeson J.F., Bendall S., Lederman R., Wadley G., Killackey E., McGorry P.D. Internet-based interventions for psychosis: a sneak-peek into the future. Psychiatr. Clin. North Am. 2012, 35(3):735-747.
7. APA Diagnostic and Statistical Manual of Mental Disorders 1994, American Psychiatric Association, Washington, DC. 4 ed.
8. Bargas-Avila J.A., Hornbæk K.P. Old Wine in New Bottles or Novel Challenges? A Critical Analysis of Empirical Studies of User Experience. ACM CHI Conference, Vancouver 2011.
9. Beck A.T., Epstein N., Brown G., Steer R.A. An inventory for measuring clinical anxiety: psychometric properties. J. Consult. Clin. Psychol. 1988, 56(6):893-897.
10. Ben-Zeev D. Mobile technologies in the study, assessment, and treatment of schizophrenia. Schizophr. Bull. 2012, 38(3):384-385.
11. Bertelsen M., Jeppesen P., Petersen L., Thorup A., Ohlenschlaeger J., le Quach P., Christensen T.O., Krarup G., Jorgensen P., Nordentoft M. Five-year follow-up of a randomized multicenter trial of intensive early intervention vs standard treatment for patients with a first episode of psychotic illness: the OPUS trial. Arch. Gen. Psychiatry 2008, 65(7):762-771.
12. Birchwood M., Smith J., Macmillan F., Hogg B., Prasad R., Harvey C., Bering S. Predicting relapse in schizophrenia: the development and implementation of an early signs monitoring system using patients and families as observers, a preliminary investigation. Psychol. Med. 1989, 19(3):649-656.
13. Christensen H., Griffiths K.M., Korten A.E., Brittliffe K., Groves C. A comparison of changes in anxiety and depression symptoms of spontaneous users and trial participants of a cognitive behavior therapy website. J. Med. Internet Res. 2004, 6(4):e46.
14. Christensen H., Griffiths K.M., Mackinnon A.J., Brittliffe K. Online randomized controlled trial of brief and full cognitive behaviour therapy for depression. Psychol. Med. 2006, 36(12):1737-1746.
15. Clarke G., Eubanks D., Reid E., Kelleher C., O'Connor E., DeBar L.L., Lynch F., Nunley S., Gullion C. Overcoming Depression on the Internet (ODIN) (2): a randomized trial of a self-help depression skills program with reminders. J. Med. Internet Res. 2005, 7(2):e16.
16. Corrigan P.W. Impact of consumer-operated services on empowerment and recovery of people with psychiatric disabilities. Psychiatr. Serv. 2006, 57(10):1493-1496.
17. Craig T.K., Garety P., Power P., Rahaman N., Colbert S., Fornells Ambrojo M., Dunn G. The Lambeth Early Onset (LEO) Team: randomised controlled trial of the effectiveness of specialised care for early psychosis. BMJ 2004, 329(7474):1067.
18. Crumlish N., Whitty P., Clarke M., Browne S., Kamali M., Gervin M., McTigue O., Kinsella A., Waddington J.L., Larkin C., O'Callaghan E. Beyond the critical period: longitudinal study of 8-year outcome in first-episode non-affective psychosis. Br. J. Psychiatry 2009, 194(1):18-24.
19. Csikszentmihalyi M. Finding Flow: the Psychology of Engagement with Everyday Life 1990, Harper and Row, New York.
20. Davidson L., Chinman M., Sells D., Rowe M. Peer support among adults with serious mental illness: a report from the field. Schizophr. Bull. 2006, 32(3):443-450.
21. Depp C.A., Mausbach B., Granholm E., Cardenas V., Ben-Zeev D., Patterson T.L., Lebowitz B.D., Jeste D.V. Mobile interventions for severe mental illness: design and preliminary data from three approaches. J. Nerv. Ment. Dis. 2010, 198(10):715-721.
22. Edwards J., Elkins K., M, H., Harrigan S.M., Donovan K., Athanasopoulos O., McGorry P.D. Randomised controlled trial of a cannabis-focused intervention for young people with first-episode psychosis. Acta Psychiatr. Scand. 2006, 114:109-117.
23. Ewing S., Thomas J., Schiessl J. CCI Digital Futures Report: the Internet in Australia. ARC Centre of Excellence for Creative Industries and Innovation Institute for Social Research 2008, Swinburne University of Technology, Melbourne.
24. Eysenbach G. The law of attrition. J. Med. Internet Res. 2005, 7(1):e11.
25. First M.B., Gibbon M., Spitzer R.L., Williams J.B.W. Structured clinical interview for DSM-IV Axis I Disorders-Patient Version (SCID-I/P) 1996, Biometrics Research Department, New York State Psychiatric Institute, New York, NY.
26. Friis S. Early specialised treatment for first-episode psychosis: does it make a difference?. Br. J. Psychiatry 2010, 196(5):339-340.
27. Gafoor R., Nitsch D., McCrone P., Craig T.K., Garety P.A., Power P., McGuire P. Effect of early intervention on 5-year outcome in non-affective psychosis. Br. J. Psychiatry 2010, 196(5):372-376.
28. Gleeson J.F., Cotton S.M., Alvarez-Jimenez M., Wade D., Gee D., Crisp K., Pearce T., Newman B., Spiliotacopoulos D., Castle D., McGorry P.D. A randomized controlled trial of relapse prevention therapy for first-episode psychosis patients. J. Clin. Psychiatry 2009, 70(4):477-486.
29. Gleeson J.F., Cotton S.M., Alvarez-Jimenez M., Wade D., Gee D., Crisp K., Pearce T., Spiliotacopoulos D., Newman B., McGorry P.D. A randomized controlled trial of relapse prevention therapy for first-episode psychosis patients: outcome at 30-month follow-up. Schizophr. Bull. 2011.
30. Gleeson, J.F., Lederman, R., Wadley, G., Bendall, S., McGorry, P.D., Alvarez-Jimenez, M., in press. Successful management of safety, confidentiality and privacy within a moderated online social therapy for young people recovering from first-episode psychosis. J. Med. Internet Res.
31. Goh T.T., Huang Y. Monitoring youth depression risk in Web 2.0. Vine. J. Inf. Knowl. Manag. Syst. 2009, 39(3):192-202.
32. Gonzalez-Blanch C., Crespo-Facorro B., Alvarez-Jimenez M., Rodriguez-Sanchez J.M., Pelayo-Teran J.M., Perez-Iglesias R., Vazquez-Barquero J.L. Cognitive dimensions in first-episode schizophrenia spectrum disorders. J. Psychiatr. Res. 2007, 41(11):968-977.
33. Granholm E., Ben-Zeev D., Link P.C., Bradshaw K.R., Holden J.L. Mobile Assessment and Treatment for Schizophrenia (MATS): a pilot trial of an interactive text-messaging intervention for medication adherence, socialization, and auditory hallucinations. Schizophr. Bull. 2012, 38(3):414-425.
34. Hall P.L., Tarrier N. The cognitive-behavioural treatment of low self-esteem in psychotic patients: a pilot study. Behav. Res. Ther. 2003, 41(3):317-332.
35. Huang Y.-P., Goh T., Liew C.L. Hunting Suicide Notes in Web 2.0-Preliminary Findings, Ninth IEEE International Symposium on Multimedia Workshops 2007.
36. Jackson H., McGorry P., Edwards J., Hulbert C., Henry L., Harrigan S., Dudgeon P., Francey S., Maude D., Cocks J., Killackey E., Power P. A controlled trial of cognitively oriented psychotherapy for early psychosis (COPE) with four-year follow-up readmission data. Psychol. Med. 2005, 35(9):1295-1306.
37. Jackson H.J., McGorry P.D., Killackey E., Bendall S., Allott K., Dudgeon P., Gleeson J., Johnson T., Harrigan S. Acute-phase and 1-year follow-up results of a randomized controlled trial of CBT versus befriending for first-episode psychosis: the ACE project. Psychol. Med. 2007, 1-11.
38. Jones R.B., Atkinson J.M., Coia D.A., Paterson L., Morton A.R., McKenna K., Craig N., Morrison J., Gilmour W.H. Randomised trial of personalised computer based information for patients with schizophrenia. BMJ 2001, 322(7290):835-840.
39. Killackey E., Jackson H.J., McGorry P.D. Vocational intervention in first-episode psychosis: individual placement and support v. treatment as usual. Br. J. Psychiatry 2008, 193(2):114-120.
40. Kreyenbuhl J., Nossel I.R., Dixon L.B. Disengagement from mental health treatment among individuals with schizophrenia and strategies for facilitating connections to care: a review of the literature. Schizophr. Bull. 2009, 35(4):696-703.
41. Lederman R., Wadley G., Gleeson J.F., Spiteri-Staines A., Alvarez-Jimenez M. Supporting young people with psychosis in the community: an ICT-enabled relapse prevention tool. Proceedings of the Pacific Asia Conference on Information Systems (PACIS), Brisbane 2011.
42. Lee Duckworth A., Steen T.A., Seligman M.E. Positive psychology in clinical practice. Annu. Rev. Clin. Psychol. 2005, 1:629-651.
43. Lieberman M.A., Goldstein B.A. Not all negative emotions are equal: the role of emotional expression in online support groups for women with breast cancer. Psychooncology 2006, 15(2):160-168.
44. Linszen D., Dingemans P., Lenior M. Early intervention and a five year follow up in young adults with a short duration of untreated psychosis: ethical implications. Schizophr. Res. 2001, 51(1):55-61.
45. Lloyd R., Bill A. Australia Online: How Australians Are Using Computers And the Internet. 2001 Australian Census Analytic Program. Publication 2056.0 2004, Australian Bureau of Statistics, Canberra.
46. Lukoff D., Liberman R.P., Nuechterlein K.H. Symptom monitoring in the rehabilitation of schizophrenic patients. Schizophr. Bull. 1986, 12(4):578-593.
47. McFarlane W.R. Multifamily Groups in the Treatment of Severe Psychiatric Disorders 2002, Guilford Press, New York.
48. McFarlane W.R., Lukens E., Link B., Dushay R., Deakins S.A., Newmark M., Dunne E.J., Horen B., Toran J. Multiple-family groups and psychoeducation in the treatment of schizophrenia. Arch. Gen. Psychiatry 1995, 52(8):679-687.
49. McGorry P.D., Yung A.R. Early intervention in psychosis: an overdue reform. Aust. N. Z. J. Psychiatry 2003, 37(4):393-398.
50. McGorry P.D., Edwards J., Mihalopoulos C., Harrigan S.M., Jackson H.J. EPPIC: an evolving system of early detection and optimal management. Schizophr. Bull. 1996, 22(2):305-326.
51. McGorry P.D., Killackey E., Yung A. Early intervention in psychosis: concepts, evidence and future directions. World Psychiatry 2008, 7(3):148-156.
52. Melle I., Larsen T.K., Haahr U., Friis S., Johannessen J.O., Opjordsmoen S., Simonsen E., Rund B.R., Vaglum P., McGlashan T. Reducing the duration of untreated first-episode psychosis: effects on clinical presentation. Arch. Gen. Psychiatry 2004, 61(2):143-150.
53. Mohr D.C., Cuijpers P., Lehman K. Supportive accountability: a model for providing human support to enhance adherence to eHealth interventions. J. Med. Internet Res. 2011, 13(1):e30.
54. Mueser K.T., Drake R.E. How does a practice become evidenced-based?. Evidence-Based Mental Health Practice: a Textbook 2005, 217-241. W.W. Norton Company Ltd, New York. R.E. Drake, M.R. Merrens, D.W. Lynde (Eds.).
55. Norman R.M., Malla A.K. Duration of untreated psychosis: a critical examination of the concept and its importance. Psychol. Med. 2001, 31(3):381-400.
56. Norman R.M., Malla A.K., Manchanda R., Harricharan R., Takhar J., Northcott S. Social support and three-year symptom and admission outcomes for first episode psychosis. Schizophr. Res. 2005, 80(2-3):227-234.
57. Norman R.M., Manchanda R., Malla A.K., Windell D., Harricharan R., Northcott S. Symptom and functional outcomes for a 5 year early intervention program for psychoses. Schizophr. Res. 2011, 129(2-3):111-115.
58. OWASP the Open Web Application Security Project http://www.akamai.com.
59. Penn D.L., Uzenoff S.R., Perkins D., Mueser K.T., Hamer R., Waldheter E., Saade S., Cook L. A pilot investigation of the Graduated Recovery Intervention Program (GRIP) for first episode psychosis. Schizophr. Res. 2010, 125(2-3):247-256.
60. Petersen L., Jeppesen P., Thorup A., Abel M.B., Ohlenschlaeger J., Christensen T.O., Krarup G., Jorgensen P., Nordentoft M. A randomised multicentre trial of integrated versus standard treatment for patients with a first episode of psychotic illness. BMJ 2005, 331(7517):602.
61. Rashid T., Ostermann R.F. Strength-based assessment in clinical practice. J. Clin. Psychol. 2009, 65(5):488-498.
62. Riessman F. The 'helper-therapy' principle. Soc. Work. 1965, 10:27-32.
63. Rotondi A.J., Anderson C.M., Haas G.L., Eack S.M., Spring M.B., Ganguli R., Newhill C., Rosenstock J. Web-based psychoeducational intervention for persons with schizophrenia and their supporters: one-year outcomes. Psychiatr. Serv. 2010, 61(11):1099-1105.
64. Ryle A., Kerr I.B. Cognitive analytic therapy. Br. J. Psychiatry 2003, 183:79.
65. Schuler D., Namioka A. Participatory Design: Principles and Practices 1993, Routledge, Taylor & Francis group, Hillsdale, New Jersey.
66. Seligman M.E., Rashid T., Parks A.C. Posit. Psychother. Am. Psychol. 2006, 61(8):774-788.
67. Sharkey S., Jones R., Smithson J., Hewis E., Emmens T., Ford T., Owens C. Ethical practice in internet research involving vulnerable people: lessons from a self-harm discussion forum study (SharpTalk). J. Med. Ethics 2011, 37(12):752-758.
68. Singh S.P. Early intervention in psychosis. Br. J. Psychiatry 2010, 196(5):343-345.
69. Spaniel F., Vohlidka P., Hrdlicka J., Kozeny J., Novak T., Motlova L., Cermak J., Bednarik J., Novak D., Hoschl C. ITAREPS: information technology aided relapse prevention programme in schizophrenia. Schizophr. Res. 2008, 98(1-3):312-317.
70. Upthegrove R., Birchwood M., Ross K., Brunett K., McCollum R., Jones L. The evolution of depression and suicidality in first episode psychosis. Acta Psychiatr. Scand. 2010, 122(3):211-218.
71. Valimaki M., Anttila M., Hatonen H., Koivunen M., Jakobsson T., Pitkanen A., Herrala J., Kuosmanen L. Design and development process of patient-centered computer-based support system for patients with schizophrenia spectrum psychosis. Inform. Health Soc. Care 2008, 33(2):113-123.
72. Walker H. Computer-based education for patients with psychosis. Nurs. Stand. 2006, 20(30):49-56.
73. Williams C., Whitfield G. Written and computer-based self-help treatments for depression. Br. Med. Bull. 2001, 57:133-144.
74. Xia J., Merinder L.B., Belgamwar M.R. Psychoeducation for schizophrenia. Cochrane Database Syst. Rev. 2011, 6:CD002831.