Gender and Ethnicity Differences in HIV-related Stigma Experienced by People Living with HIV in Ontario, Canada

PLoS ONE

Volumn 7, Issue 12, 2012, Pages

  Loutfy, Mona R ^a,b   Logie, Carmen H ^a   Zhang, Yimeng ^b   Blitz, Sandra L ^c   Margolese, Shari L ^a   Tharao, Wangari E ^d   Rourke, Sean B ^e   Rueda, Sergio ^e   Raboud, Janet M ^c  

^a WOMEN S COLLEGE HOSPITAL   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c UNIVERSITY HEALTH NETWORK   (Canada)

^d Women's Health in Women's Hands Community Health Centre   (Canada)

^e ST MICHAEL'S HOSPITAL   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO ILLNESS; CANADA; CD4 LYMPHOCYTE COUNT; DISEASE DURATION; DRINKING BEHAVIOR; EDUCATIONAL STATUS; EMPLOYMENT STATUS; ETHNIC DIFFERENCE; FEMALE; HEPATITIS B; HEPATITIS C; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INCOME; INFECTION RISK; MALE; SELF DISCLOSURE; SEX DIFFERENCE; SEXUAL ORIENTATION; SOCIAL STIGMA;

ADULT; COHORT STUDIES; CROSS-SECTIONAL STUDIES; FEMALE; GENDER IDENTITY; HIV; HIV INFECTIONS; HUMANS; MALE; MIDDLE AGED; ONTARIO; PROSPECTIVE STUDIES; RISK FACTORS; SOCIAL STIGMA; SOCIOECONOMIC FACTORS;

EID: 84871670839     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0048168     Document Type: Article

References (89)

1. Herek GM, (1999) AIDS and Stigma. Am Behav Sci 42: 1106-1116.
2. UNAIDS (2007) AIDS epidemic update 2007. Geneva: UNAIDS. Available: http://data.unaids.org/pub/epislides/2007/2007_epiupdate_en.pdf. Accessed 2012 Jan 25.
3. Parker R, Aggleton P, (2003) HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Soc Sci Med 57: 13-24.
4. Sumartojo E, (2000) Structural factors in HIV prevention: Concepts, examples, and implications for research. AIDS 14Suppl: 3-10.
5. Public Health Agency of Canada (PHAC) (2009) HIV and AIDS in Canada. Surveillance Report to December 31, 2008. Ottawa: Public Health Agency of Canada. Available: http://www.phac-aspc.gc.ca/aids-sida/publication/survreport/2008/dec/pdf/survrepdec08.pdf. Accessed 25 January 2012.
6. UNAIDS 2010. UNAIDS Report on the Global AIDS Epidemic. Geneva: UNAIDS. Available: http://www.unaids.org/globalreport/documents/20101123_GlobalReport_full_en.pdf. Accessed 2012 Jan 25.
7. Berger BE, Ferrans CE, Lashley FR, (2001) Measuring Stigma in People with HIV: Psychometric Assessment of the HIV Stigma Scale. Res Nurs Health 24: 518-529.
8. Buseh AG, Stevens PE, (2007) Constrained but not determined by stigma: Resistance by African American women living with HIV. Women Health 44: 1-18.
9. Courtney-Quirk C, Wolitski RJ, Parsons JT, Gomez CA, (2006) Seropositive Urban Men's Study Team (2006) Is HIV/AIDS stigma dividing the gay community? Perceptions of HIV-positive men who have sex with men. AIDS Educ Prev 18: 56-67.
10. Heckman TG, Anderson ES, Sikkema KJ, Kochman A, Kalichman SC, (2004) Emotional distress in non-metropolitan persons living with HIV disease enrolled in a telephone-delivered, coping improvement group intervention. Health Psychol 23: 94-100.
11. Rueda S, Gibson K, Rourke S, Bekele T, Gardner S, et al. (2011) Mastery moderates the negative effect of stigma on depressive symptoms in people living with HIV. AIDS Behav 16: 660-669.
12. Vanable PA, Carey MP, Blair DC, Littlewood RA, (2006) Impact of HIV-Related Stigma on Health Behaviors and Psychological Adjustment among HIV-Positive Men and Women. AIDS Behav 10: 473-482.
13. Ware NC, Wyatt MA, Tugenberg T, (2006) Social relationships, stigma and adherence to antiretroviral therapy for HIV/AIDS. AIDS Care 18: 904-910.
14. Abell N, Rutledge SE, McCann TJ, Padmore J, (2007) Examining HIV/AIDS provider stigma: Assessing regional concerns in the islands of the Eastern Caribbean. AIDS Care 19: 242-247.
15. Kymla J, (2005) Dynamics of hope in adults living with HIV/AIDS: A substantive theory. J Adv Nurs 52: 620-630.
16. Konkle-Parker DJ, Erlen JA, Dubbert PM, (2008) Barriers and facilitators to medication adherence in a southern minority population with HIV disease. JANAC 19: 98-104.
17. Rao D, Kekwaletswe TC, Hosek S, Martinez J, Rodriguez F, (2007) Stigma and social barriers to medication adherence with urban youth living with HIV. AIDS Care 19: 28-33.
18. Rintamaki LS, Davis TC, Skripkauskas S, Bennett CL, Wolf MS, (2006) Social Stigma Concerns and HIV Medication Adherence. AIDS Patient Care ST 20: 359-368.
19. Bradford JB, Coleman S, Cunningham W, (2007) HIV system navigation: An emerging model to improve HIV care access. AIDS Patient Care ST 21 Suppl1: 49-58.
20. Naar-King S, Bradford J, Coleman S, Green-Jones M, Cabral H, et al. (2007) Retention in care of persons newly diagnosed with HIV: Outcomes of the outreach initiative. AIDS Patient Care ST 21Suppl 1: 40-48.
21. White RC, Carr R, (2005) Homosexuality and HIV/AIDS stigma in Jamaica. Cult Health Sex 7: 347-359.
22. Campbell C, Deacon H, (2006) Unravelling the contexts of stigma: From internalization to resistance to change. J Community Appl Soc Psychol 16: 411-417.
23. Mahajan AP, Sayles JN, Patel VA, Remien RH, Sawires SR, et al. (2008) Stigma in the HIV/AIDS epidemic: a review of the literature and recommendations for the way forward. AIDS 22Suppl 2: 67-79.
24. Van Brakel WH, (2006) Measuring health-related stigma: A literature review. Psychol Health Med 11: 307-334.
25. Logie C, Gadallla TM, (2009) Meta-analysis of health and demographic correlates of stigma towards people living with HIV. AIDS Care 21: 742-753.
26. Lee RS, Kochman A, Sikkema KJ, (2002) Internalized Stigma Among People Living with HIV-AIDS. AIDS Behav 6: 309-319.
27. Lekas HM, Siegel K, Schrimshaw EW, (2006) Continuities and discontinuities in the experiences of felt and enacted stigma among women with HIV/AIDS. Qual Health Res 16: 1165-1190.
28. Emlet CA, (2006) A comparison of HIV stigma and disclosure patterns between older and younger adults living with HIV/AIDS. AIDS Patient Care ST 20: 350-358.
29. Schuster MA, Collins R, Cunningham WE, Morton SC, Zierler S, et al. (2005) Perceived discrimination in clinical care in a nationally representative sample of HIV-infected adults receiving health care. J Gen Intern Med 20: 807-813.
30. Steward WT, Herek M GM, Ramakrishna J, Bharat S, Chandy S, (2008) HIV-related stigma: Adapting a theoretical framework for use in India. Soc Sci Med 67: 1225-1235.
31. Sandelowski M, Lambe C, Barroso J, (2004) Stigma in HIV-positive Women. J Nurs Scholarship 36: 122-128.
32. Swendeman D, Rotheram-Borus MJ, Comulada S, Weiss R, Ramos ME (2006) Predictors of HIV-related Stigma among Young People Living with HIV. Health Psychol 25: 501 - 509.
33. Sowell RL, Lowenstein A, Moneyham L, Demi A, Mizuno Y, et al. (1997) Resources, stigma, and patterns of disclosure in rural women with HIV infection. Public Health Nurs 14: 302-312.
34. Emlet CA, (2005) Measuring stigma in older and younger adults with HIV/AIDS: An analysis of an HIV stigma scale and initial exploration of subscales. Res Social Work Prac 15: 291-300.
35. Herek GM, Capitanio JP, Widaman KF, (2002) HIV-related Stigma and Knowledge in the United States: Prevalence and Trends, 1991 - 1999. Am J Public Health 92: 371-377.
36. Herek GM, Garnets LD, (2007) Sexual orientation and mental health. Annu Rev Clin Psycho 3: 353-375.
37. Meyer IH, (2003) Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychol Bull 129: 674-697.
38. Mak WS, Poon CY, Pun LY, Cheung SF, (2007) Meta-analysis of stigma and mental health. Soc Sci Med 65: 245-261.
39. Steward WT, Herek GM, Ramakrishna J, Bharat S, Chandy S, et al. (2008) HIV-related stigma: Adapting a theoretical framework for use in India. Soc Sci Med 67: 1225-1235.
40. Kalichman SC, Simbayi LC, Cloete A, Mthembu PP, Mkhonta RN, et al. (2009) Measuring AIDS stigmas in people living with HIV/AIDS: the Internalized AIDS-related Stigma Scale. AIDS Care 21: 87-93.
41. Nyblade LC, (2006) Measuring HIV stigma: Existing knowledge and gaps. Psychology, Health & Medicine. Special Issue: Perspect Health-related Stigma 11: 335-345.
42. Reidpath DD, Chan KY, (2005) A Method for the Quantitative Analysis of the Layering of HIV-Related Stigma. AIDS Care 17: 425-432.
43. Sengupta S, Banks B, Jonas D, Miles MS, Smith GC, (2011) HIV interventions to reduce HIV/AIDS stigma: A systematic review. AIDS Behav 15: 1075-87.
44. Deacon H, (2006) Towards a sustainable theory of health-related stigma: Lessons from the HIV/AIDS literature. J Community Appl Soc Psychol 16: 418-425.
45. Herek GM, Capitanio JP, (1999) AIDS stigma and sexual prejudice. Am Behav Sci 42: 1130-1147.
46. Herek GM, Capitanio JP, Widaman KF, (2003) Stigma, social risk and health policy: Public attitudes towards HIV surveillance policies and the social construction of illness. Health Psychol 22: 533-540.
47. Vanable PA, Carey MP, Blair DC, Littlewood RA, (2006) Impact of HIV-Related Stigma on Health Behaviors and Psychological Adjustment among HIV-Positive Men and Women. AIDS Behav 10: 473-482.
48. Collins PC (2000) Black Feminist Thought, 2nd Edition. New York: Routledge. 75p.
49. Crenshaw K, (1989) Demarginalizing the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. Univ Chicago Legal Forum 139: 139-167.
50. Collins PH (1991) Black Feminist Thought: Knowledge, Consciousness, and the Politics of Empowerment. New York: Routledge. 109p.
51. Shields SA, (2008) Gender: An Intersectionality Perspective. Sex Roles 59: 301-311.
52. Purdie-Vaughns V, Eibach RP, (2008) Intersectional Invisibility: The Distinctive Advantages and Disadvantages of Multiple Subordinate-Group Identities. Sex Roles 59: 377-391.
53. Collins PY, von Unger H, Armbrister A, (2008) Church ladies, good girls, and locas: Stigma and the intersection of gender, ethnicity, mental illness, and sexuality in relation to HIV risk. Soc Sci Med 67: 389-397.
54. Doyal L, (2009) Challenges in researching life with HIV/AIDS: An intersectional analysis of black African migrants in London. Cult Health Sex 11: 173-188.
55. Margulies P, (1994) Asylum, Intersectionality, and AIDS: Women with HIV as a Persecuted Social Group. Georgetown Law J 8: 521-555.
56. Newman PA, Williams CC, Massaquoi N, Brown M, Logie C, (2008) HIV prevention for Black women: Structural barriers and opportunities. J Health Care Poor Underserved 19: 829-841.
57. Williams CC, Newman PA, Sakamoto I, Massaquoi NA, (2009) HIV prevention risks or Black women in Canada. Soc Sci Med 68: 12-20.
58. Tharao E, Massaquoi N, Teclom S (2006) Silent Voices of the HIV/AIDS Epidemic: African and Caribbean Women Research Study (2002-2004). Toronto: Women's Health in Women's Hands.
59. Logie CH, James L, Tharao W, Loutfy MR, (2011) HIV, gender, race, sexual orientation, and sex work: A qualitative study of intersectional stigma experienced by HIV-positive women in Ontario, Canada. PLoS Med 8: e1001124.
60. Link BG, Phelan JC, (2001) Conceptualizing stigma. Annu Rev Social 27: 363-385.
61. Rourke SB, Gardner S, Burchell AN, Raboud J, Rueda S, et al. (2012) Cohort Profile: The Ontario HIV Treatment Network Cohort Study (OCS). Int J Epidemiol Feb 16. [Epub ahead of print].
62. Raboud J, Su D, Walmsley S, Cooper C, Cohen J, et al. (2010) Representativeness of the Ontario Cohort Study of the clinics from which they are recruiting. In Proceeding of the OHTN Research Conference, Toronto, Ontario, Canada, November 2010.
63. Berger BE, Ferrans CE, Lashley FR, (2001) Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale. Res Nurs Health. 24(6): 518-29.
64. Gibson K, Bekele T, Rueda S (2009) Sociobehavioural Variables in the OHTN Cohort Study Extended Questionnaire: Summary of the Literature and Options for Scoring. Toronto: Ontario HIV Treatment Network.
65. Farmer P (2001) Infections and inequalities: The modern plagues. Berkeley: University of California Press. 111p.
66. Gilman S (1988) Disease and Representation: Images of Illness from Madness to AIDS. Ithaca, NY: Cornell University Press. 97p.
67. Herek GEG, (1988) An epidemic of stigma: Public reactions to AIDS. Am Psychol 43: 886-891.
68. Patton C (2002) Globalizing AIDS. Minneapolis: University of Minnesota Press. 115p.
69. Wolffers I, (2000) Biomedical and development paradigms in AIDS prevention. Bulletin of the World Health Organization 78: 267-273.
70. Lawless S, Kippax S, Crawford J, (1996) Dirty, diseased and undeserving: the positioning of HIV positive women. Soc Sci Med 43: 1371-1377.
71. Katz S, Nevid JS, (2005) Risk factors associated with posttraumatic stress disorder symptomatology in HIV-infected women. AIDS Patient Care ST 19: 110-120.
72. Green G (1996) Stigma and social relationships of people with HIV: Does gender make a difference? In: AIDS as a gender issue: Psychosocial perspectives. Sherr L, Hankins C, Bennett L (Eds), Washington, DC: Taylor & Francis. 46-63p.
73. Ingram D, Hutchinson SA (2000) Double binds and the reproductive and mothering experiences of HIV-positive women. Qual Health Res 10: 117 -132.
74. Amaro H, Raj A, (2000) On the margin: Power and women's HIV risk reduction strategies. Sex Roles 42: 723-749.
75. Newman PA, Woodford MR, Logie CH, (2012) HIV vaccine acceptability and culturally appropriate dissemination among sexually diverse Aboriginal peoples in Canada. Global Public Health 7: 87-100.
76. Cloete A, Simbayi LC, Kalichman SC, Strebel A, Henda N, (2008) Stigma and discrimination experiences of HIV-positive men who have sex with men in Capetown, South Africa. AIDS Care 20: 1105-10.
77. Goffman E (1963) Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice Hall. 30p.
78. Reif S, Golin CE, Smith SR, (2005) Barriers to accessing HIV/AIDS care in North Carolina: Rural and urban differences. AIDS Care 17: 558-565.
79. Stephenson J, (2000) Rural HIV/AIDS in the United States. JAMA 284: 167-168.
80. Brown L, Macintyre K, Trujillo L, (2003) Interventions to reduce HIV/AIDS stigma: What have we learned? AIDS Educ Prev 15: 49-69.
81. UNAIDS 2005 (2005) HIV-related stigma, discrimination and human rights violations: case studies of successful programmes. Geneva: UNAIDS. Available: http://data.unaids.org/publications/irc-pub06/jc999-humrightsviol_en.pdf. Accessed 2012 Jan 25.
82. Brondolo E, Gallo LC, Myers HF, (2009) Race, racism and health: Disparities, mechanisms, and interventions. J Behav Med 32: 1-8.
83. Schwartz J, Lindley L, (2009) Impacting Sexism through Social Justice Prevention: Implications at the Person and Environmental Levels. J Pri Prev 30: 27-41.
84. Baral S, Sifakis F, Cleghorn F, Beyrer C, (2007) Elevated risk for HIV infection among men who have sex with men in low- and middle-income countries 2000-2006: A systematic review. PLoS Med 4: e339.
85. Baral S, Adams D, Lebona J, Kaibe B, Letsie P, et al. (2011) A cross-sectional assessment of population demographics, HIV risks and human rights contexts among men who have sex with men in Lesotho. J Int AIDS Soc 14: 36.
86. Wright K, Naar-King S, Lam P, Templin T, Frey M, (2007) Stigma scale revised: Reliability and validity of a brief measure of stigma for HIV+ youth. J Adolescent Health 40: 96-98.
87. Crandall CS, Glor J, Britt TW, (1997) AIDS-related stigmatization: Instrumental and symbolic attitudes. J Appl Soc Psychol 27: 95-123.
88. Scott-Sheldon LA, Kalichman SC, Carey MP, Fielder RL, (2008) Stress management interventions for HIV+ adults: a Meta-analysis of randomized controlled trials, 1989 to 2006. Health Psychol 27: 129-39.
89. Simbayi LC, Kalichman S, Strebel A, Cloete A, Henda N, et al. (2007) Internalized stigma, discrimination, and depression among men and women living with HIV/AIDS in Capetown, South Africa. Soc Sci Med 64: 1823-31.