Commentary on 'Disability outcome measures in multiple sclerosis clinical trials'

Multiple Sclerosis Journal

Volumn 18, Issue 12, 2012, Pages 1718-1720

  Noble, J Gareth ^a   Osborne, Lisa A ^a   Jones, Kerina H ^a   Middleton, Rod M ^a   Ford, David V ^a  

^a SWANSEA UNIVERSITY   (United Kingdom)

Author keywords

multiple sclerosis; Outcome measurement; quality of life

Indexed keywords

CLINICAL TRIAL (TOPIC); COMMUNITY CARE; DISABILITY; HUMAN; MULTIPLE SCLEROSIS; OUTCOME ASSESSMENT; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; REVIEW; SELF REPORT;

EID: 84871579493     PISSN: 13524585     EISSN: 14770970     Source Type: Journal    
DOI: 10.1177/1352458512457847     Document Type: Review

References (18)

1. Management of multiple sclerosis in primary and secondary care. London: National Institute for Clinical Excellence ; 2003 :
2. Benito-Leon JN, Morales JM, Rivera-Navarro JS, et al. A review about the impact of multiple sclerosis on health-related quality of life. Disabil Rehabil. 2003 ; 25: 1291-1303
3. Cofield SS, Cutter GR Multiple Sclerosis: A Comprehensive Text. Raine CS McFarland HF Hohlfeld R, ed. New York, NY: Elsevier Health Sciences ; 2008: 449-458.
4. Amato MP, Portaccio E. Clinical outcome measures in multiple sclerosis. J Neurol Sci. 2007 ; 259: 118-122
5. Bandari DS, Vollmer TL, Khatri BO, et al. Assessing quality of life in patients with multiple sclerosis. Int J MS Care. 2010 ; 12: 34-41
6. Benedict RHB, Zivadinov R. Reliability and validity of neuropsychological screening and assessment strategies in MS. J Neurol. 2007 ; 254: II/22 - II/25
7. D'Souza M, Kappos L, Czaplinski A. Reconsidering clinical outcomes in multiple sclerosis: relapses, impairment, disability and beyond. J Neurol Sci. 2008 ; 274: 76-79
8. Kragt JJ, Thompson AJ, Montalban X, et al. Responsiveness and predictive value of EDSS and MSFC in primary progressive MS. Neurology. 2008 ; 70: 1084-1091
9. Scherer P. Cognitive screening in multiple sclerosis. J Neurol. 2007 ; 254: II/26 - II/29
10. Dennison L, Moss-Morris R, Chalder T. A review of psychological correlates of adjustment in patients with multiple sclerosis. Clin Psychol Rev. 2009 ; 29: 141-153
11. Ebers GC. Commentary: outcome measures were flawed. Br Med J. 2010 ; 340: 2693
12. Sharrack B, Hughes RAC, Soudain S, et al. The psychometric properties of clinical rating scales used in multiple sclerosis. Brain. 1999 ; 122: 141-159
13. Osborne LA, Bindeman N, Noble JG, et al. Changes in the key areas of quality of life associated with age and time since diagnosis of long-term conditions. Chronic Illn. 2012 ; 8: 112-120
14. Minden SL. Mood disorders in multiple sclerosis: diagnosis and treatment. J Neurovirol. 2000 ; 6: S160 - S167
15. Ford DV, Jones KH, Verplancke J-P, et al. The SAIL databank: building a national architecture for e-health research and evaluation. BMC Health Serv Res. 2009 ;: 9 157
16. Lyons RA, Jones KH, John G, et al. The SAIL databank: linking multiple health and social care datasets. BMC Med Inform Decis Mak. 2009 ; 9: 3
17. Ford DV, Jones KH, Middleton RM, et al. The feasibility of collecting information from people with multiple sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS. BMC Med Inform Decis Mak. :
18. Osborne LA, Noble JG, Lockhart H, et al. Sources of discovery, reasons for registration, and expectations of an internet-based register for multiple sclerosis: visualisations and explorations of word uses and contexts. Int J Healthc Inf Syst Inform. 2012 ; 3: 27-43