Effects of pain and fatigue on physical functioning and depression in persons with muscular dystrophy

Disability and Health Journal

Volumn 5, Issue 4, 2012, Pages 277-283

  Alschuler, Kevin N ^a   Jensen, Mark P ^a   Goetz, Mark C ^a   Smith, Amanda E ^a   Verrall, Aimee M ^a   Molton, Ivan R ^a  

^a UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

Author keywords

Depression; Fatigue; Muscular dystrophy; Pain

Indexed keywords

ADULT; AGE DISTRIBUTION; AGED; ARTICLE; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DEPRESSION; DISEASE ASSOCIATION; DISEASE SEVERITY; FATIGUE; FEMALE; FUNCTIONAL ASSESSMENT; HUMAN; MAJOR CLINICAL STUDY; MALE; MUSCULAR DYSTROPHY; PAIN; PAIN ASSESSMENT; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUESTIONNAIRE;

EID: 84871425581     PISSN: None     EISSN: 19366574     Source Type: Journal    
DOI: 10.1016/j.dhjo.2012.07.002     Document Type: Article

References (29)

1. Jensen MP, Abresch RT, Carter GT, McDonald CM. Chronic pain in persons with neuromuscular disease. Arch Phys Med Rehabil. 2005;86: 1155-1163.
2. Johnson ER, Abresch RT, Carter GT, Kilmer DD, Fowler WM, Sigford BJ, et al. Profiles of neuromuscular diseases. Myotonic dystrophy. Am J Phys Med Rehabil. 1995;74: S104eS116.
3. Kalkman J, Schillings M, van der Werf S, Padberg G, Zwarts M, van Engelen B, et al. Experienced fatigue in facioscapulohumeral dystrophy, myotonic dystrophy, and HMSN-I. Neurol Neurosurg Psychiatry. 2005;76: 1406-1409.
4. Laberge L, Dauvilliers Y, Begin P, Richer L, Jean S, Mathieu J. Fatigue and daytime sleepiness in patients with myotonic dystrophy type 1: to lump or split? Neuromuscul Disord. 2009;19: 397-402.
5. Lou J, Weiss M, Carter G. Assessment and management of fatigue in neuromuscular disease. Am J Hosp Palliat care. 2010;27: 145-157.
6. McDonald C. Physical activity, health impairments, and disability in neuromuscular disease. Am J Phys Med Rehabil. 2002;81: S108eS120.
7. Jensen MP, Hoffman AJ, Stoelb BL, Abresch RT, Carter GT, McDonald CM. Chronic pain in persons with myotonic dystrophy and facioscapulohumeral dystrophy. Arch Phys Med Rehabil. 2008;89: 320-328.
8. Abresch RT, Carter GT, Jensen MP, Kilmer DD. Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease. Am J Hosp Palliat Care. 2002;19: 39-48.
9. Kalkman J, Schillings M, Zwarts M, van Engelen B, Bleijenberg G. The development of a model of fatigue in neuromuscular disorders: a longitudinal study. J Psychosom Res. 2007;62: 571-579.
10. Jensen MP, Alschuler KN, Smith AE, Verrall AM, Goetz MC, Molton IR. Pain and fatigue in persons with post-polio syndrome: independent effects on functioning. Arch Phys Med Rehabil. 2011;92: 1796-1801.
11. Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Med Care. 2007;45: S3eS11.
12. Cella D, Riley W, Stone A, Rothrock N, Reeve B, Yount S, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. J Clin Epidemiol. 2010;63: 1179-1194.
13. Fries JF, Bruce B, Cella D. The promise of PROMIS: using item response theory to improve assessment of patient-reported outcomes. Clin Exp Rheumatol. 2005;23: S53eS57.
14. Rose M, Bjorner JB, Becker J, Fries JF, Ware JE. Evaluation of a preliminary physical function item bank supported the expected advantages of the Patient-Reported Outcomes Measurement Information System (PROMIS). J Clin Epidemiol. 2008;61: 17-33.
15. Fann JR, Bombardier CH, Dikmen S, Esselman P, Warms CA, Pelzer E, et al. Validity of the Patient Health Questionnaire-9 in assessing depression following traumatic brain injury. J Head Trauma Rehabil. 2005;20: 501-511.
16. Bombardier CH, Richards JS, Krause JS, Tulsky D, Tate DG. Symptoms of major depression in people with spinal cord injury: implications for screening. Arch Phys Med Rehabil. 2004;85: 1749-1756.
17. Nicklin J, Cramp F, Kirwan J, Greenwood R, Urban M, Hewlett S. Measuring fatigue in rheumatoid arthritis: a cross-sectional study to evaluate the Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional questionnaire, visual analog scales, and numerical rating scales. Arthritis Care Res. 2010;62: 1559-1568.
18. Salaffi F, Sarzi-Puttini P, Girolimetti R, Gasparini S, Atzeni F, Grassi W. Development and validation of the self-administered fibromyalgia assessment status: a disease-specific composite measure for evaluating treatment effect. Arthritis Res Ther. 2009;11: R125.
19. Jensen MP. Measurement of pain. In: Fishman SM, Ballantyne JC, Rathmell JP, eds. Bonica's management of pain. 4th ed. Media, PA: Williams & Wilkins; 2010: 251-270.
20. Cook KF, Molton IR, Jensen MP. Fatigue and aging with a disability. Arch Phys Med Rehabil. 2011;92: 1126-1133.
21. Hoffman BM, Papas RK, Chatkoff DK, Kerns RD. Meta-analysis of psychological interventions for chronic low back pain. Health Psychol. 2007;26: 1-9.
22. Ansved T. Muscle training in muscular dystrophies. Acta Physiol Scand. 2001;171: 359-366.
23. van derKooiEL,Kalkman JS,LindemanE,Hendriks JC,vanEngelenBG, BleijenbergG, et al. Effects of training and albuterol on pain and fatigue in facioscapulohumeral muscular dystrophy. J Neurol. 2007;254: 931-940.
24. Kierkegaard M, Harms-Ringdahl K, Edström L, Widen Holmqvist L, Tollbäck A. Feasibility and effects of a physical exercise programme in adults with myotonic dystrophy type 1: a randomized controlled pilot study. J Rehabil Med. 2011;43: 695-702.
25. Bombardier C, Ehde D, Stoelb B, Molton I. The relationship of agerelated factors to psychological functioning among people with disabilities. Phys Med Rehabil Clin N Am. 2010;21: 281-297.
26. Diener E, Suh ME. Subjective well-being and age: an international analysis. In: Schaie KW, Lawton MP, eds. Annual review of gerontology and geriatrics. New York, NY: Springer; 1997.
27. Kasl-Godley JE, Gatz M, Fiske A. Depression and depressive symptoms in old age. In: Nordhus IH, Vandenbos GR, Berg S, Fromholt P, eds. Clinical geropsychology. Washington, D. C: American Psychological Association; 1998.
28. Blanchflower DG, Oswald AJ. Is well-being U-shaped over the life cycle? Soc Sci Med. 2008;66: 1733-1749.
29. Mein G, Martikainen P, Hemingway H, Stansfeld S, Marmot M. Is retirement good or bad for mental and physical health functioning? Whitehall II longitudinal study of civil servants. J Epidemiol Community Health. 2003;57: 46-49.