When dementia is in the house: Needs assessment survey for young caregivers

Canadian Journal of Neurological Sciences

Volumn 40, Issue 1, 2013, Pages 21-28

  Nichols, Katherine ^e   Fam, David ^a   Cook, Cheryl ^d   Pearce, Michelle ^b   Elliot, Gail ^c   Baago, Sylvia ^b   Rockwood, Kenneth ^d   Chow, Tiffany ^a  

^a ROTMAN RESEARCH INSTITUTE   (Canada)

^b Young Carer's Initiative   (Canada)

^c MCMASTER UNIVERSITY   (Canada)

^d DALHOUSIE UNIVERSITY   (Canada)

^e Dalhousie University Geriatrics ^*

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CAREGIVER SUPPORT; CHILD; EXPERIENCE; FEMALE; FRONTOTEMPORAL DEMENTIA; HUMAN; INFORMATION SERVICE; INTERNET; MALE; NEEDS ASSESSMENT; NORMAL HUMAN; PRIORITY JOURNAL; SCHOOL CHILD;

EID: 84871294372     PISSN: 03171671     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0317167100012907     Document Type: Article

References (16)

1. Rascovsky K, Salmon DP, Lipton AM, et al. Rate of progression differs in frontotemporal dementia and Alzheimer's disease. Neurology. 2005;65:397-403
2. Grinberg A, Lagunoff J, Phillips D, Stern B, Goodman M, Chow TW. Multidisciplinary design and implementation of a day program specialized for the frontotemporal dementias. Am J Alzheimers Dis Other Demen. 2008;22:499-506
3. Chow TW, Binns MA, Cummings JL, et al. Apathy symptom profile and behavioral associations in frontotemporal dementia vs. Alzheimer's disease. Arch Neurol. 2009;66(7):888-93
4. Svanberg E, Stott J, Spector A. 'Just helping': Children living with a parent with young onset dementia. Aging Ment Health. 2010 Aug;14(6):740-51
5. Dearden C, Becker S. Young Carers in the UK: The 2004 Report. 2004 [cited; 19]. Available from: Http://www.lboro.ac.uk/ departments/ss/centres/ YCRG/youngCarersDownload/YCRepor t2004%5B1%5D.pdf 6. Luscombe G, Brodaty H, Freeth S. Younger people with dementia: Diagnostic issues, effects on carers and use of services. Int J Geriatr Psychiatry. 1998 May;13(5):323-30 http://www.lboro.ac.uk/departments/ss/centres/YCRG/youngCarersDownload/YCRepor t2004%5B1%5D.pdf 6. Luscombe G, Brodaty H, Freeth S. Younger people with dementia: Diagnostic issues, effects on carers and use of services
6. Gelman CR, Greer C. Young children in early-onset Alzheimer's disease families: Research gaps and emerging service needs. Am J Alzheimers Dis Other Demen. 2011 Feb;26(1):29-35
7. Stein JA, Rotheram-Borus MJ, Lester P. Impact of parentification on long-term outcomes among children of parents with HIV/AIDS. Fam Process. 2007 Sep;46(3):317-33
8. Gonzalez-Salvador MT, Arango C, Lyketsos CG, Barba AC. The stress and psychological morbidity of the Alzheimer patient caregiver. Int J Geriatr Psychiatry. 1999 Sep;14(9):701-10
9. Pinquart M, Sorensen S. Helping caregivers of persons with dementia: Which interventions work and how large are their effects? Int Psychogeriatr. 2006 Dec;18(4):577-95
10. Chow TW, Pio FJ, Rockwood K. An international needs assessment of caregivers for frontotemporal dementia. Can J Neurol Sci. 2011 Sep;38(5):753-7
11. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77-101
12. Muhr T. Atlas.ti. 5.2 ed: Scientific Software Develeopment GmbH 2004
13. Dempsey M, Baago S. Latent Grief: The unique and hidden grief of caregivers of loved ones with dementia. Am J Alzheimers Dis Other Demen. 1998;13(2):84-91
14. Boss P. Ambiguous Loss: Learning to live with unresolved grief. Boston: Harvard University Press; 2000
15. Charles G, Marshall S, Stainton T. Demographics profiles and initial results from the British Columbia Young Carers Study. Relational Child and Youth Care Practice. 2010;23(4):64-7
16. Moore T, McArthur M. We're all in it together: Supporting young carers and their families in Australia. Health Soc Care Community. 2007 Nov;15(6):561-8