메뉴 건너뛰기




Volumn 60, Issue 2, 2013, Pages 275-280

The medical home experience among children with sickle cell disease

Author keywords

Health care utilization; Sickle cell disease

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CONTROLLED STUDY; DEMOGRAPHY; FAMILY COUNSELING; FEMALE; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; MULTIVARIATE LOGISTIC REGRESSION ANALYSIS; PEDIATRIC HOSPITAL; PRESCHOOL CHILD; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; SCHOOL CHILD; SICKLE CELL ANEMIA; SOCIAL EVOLUTION;

EID: 84871123312     PISSN: 15455009     EISSN: 15455017     Source Type: Journal    
DOI: 10.1002/pbc.24184     Document Type: Article
Times cited : (18)

References (46)
  • 1
    • 84871126956 scopus 로고    scopus 로고
    • Sickle Cell Disease Patients in U.S. Hospitals, 2004. HCUP Statistical Brief #21. December 2006. Agency for Healthcare Research and Quality, Rockville, MD.
    • Steiner CA, Miller JL. Sickle Cell Disease Patients in U.S. Hospitals, 2004. HCUP Statistical Brief #21. December 2006. Agency for Healthcare Research and Quality, Rockville, MD. http//www.hcup-us.ahrq.gov/reports/statbriefs/sb21.pdf
    • Steiner, C.A.1    Miller, J.L.2
  • 2
    • 66849102133 scopus 로고    scopus 로고
    • The cost of health care for patients with sickle cell disease
    • Ballas SK. The cost of health care for patients with sickle cell disease. Am J Hematol 2009; 84: 320-322.
    • (2009) Am J Hematol , vol.84 , pp. 320-322
    • Ballas, S.K.1
  • 3
    • 27944496081 scopus 로고    scopus 로고
    • Outcome of sickle cell anemia: A 4-decade observational study of 1056 patients
    • Powars DR, Chan LS, Hiti A, et al. Outcome of sickle cell anemia: A 4-decade observational study of 1056 patients. Medicine (Baltimore) 2005; 84: 363-376.
    • (2005) Medicine (Baltimore) , vol.84 , pp. 363-376
    • Powars, D.R.1    Chan, L.S.2    Hiti, A.3
  • 4
    • 77951712618 scopus 로고    scopus 로고
    • Improved survival of children and adolescents with sickle cell disease
    • Quinn CT, Rogers ZR, McCavit TL, et al. Improved survival of children and adolescents with sickle cell disease. Blood 2010; 115: 3447-3452.
    • (2010) Blood , vol.115 , pp. 3447-3452
    • Quinn, C.T.1    Rogers, Z.R.2    McCavit, T.L.3
  • 5
    • 0029587055 scopus 로고
    • Improved survival in homozygous sickle cell disease: Lessons from a cohort study
    • Lee A, Thomas P, Cupidore L, et al. Improved survival in homozygous sickle cell disease: Lessons from a cohort study. BMJ 1995; 311: 1600-1602.
    • (1995) BMJ , vol.311 , pp. 1600-1602
    • Lee, A.1    Thomas, P.2    Cupidore, L.3
  • 6
    • 0023906590 scopus 로고
    • Newborn screening for sickle cell disease: Effect on mortality
    • Vichinsky E, Hurst D, Earles A, et al. Newborn screening for sickle cell disease: Effect on mortality. Pediatrics 1988; 81: 749-755.
    • (1988) Pediatrics , vol.81 , pp. 749-755
    • Vichinsky, E.1    Hurst, D.2    Earles, A.3
  • 7
    • 0025832814 scopus 로고
    • Comprehensive care in sickle cell disease: Its impact on morbidity and mortality
    • Vichinsky EP. Comprehensive care in sickle cell disease: Its impact on morbidity and mortality. Semin Hematol 1991; 28: 220-226.
    • (1991) Semin Hematol , vol.28 , pp. 220-226
    • Vichinsky, E.P.1
  • 8
    • 79954497886 scopus 로고    scopus 로고
    • Translating scientific advances to improved outcomes for children with sickle cell disease: A timely opportunity
    • Raphael JL, Kavanagh PL, Wang CJ, et al. Translating scientific advances to improved outcomes for children with sickle cell disease: A timely opportunity. Pediatr Blood Cancer 2011; 56: 1005-1008.
    • (2011) Pediatr Blood Cancer , vol.56 , pp. 1005-1008
    • Raphael, J.L.1    Kavanagh, P.L.2    Wang, C.J.3
  • 9
    • 79955011693 scopus 로고    scopus 로고
    • Hydroxyurea for sickle cell anemia: What have we learned and what questions still remain
    • McGann PT, Ware RE. Hydroxyurea for sickle cell anemia: What have we learned and what questions still remain? Curr Opin Hematol 2011; 18: 158-165.
    • (2011) Curr Opin Hematol , vol.18 , pp. 158-165
    • McGann, P.T.1    Ware, R.E.2
  • 10
    • 67649983606 scopus 로고    scopus 로고
    • Dissatisfaction with hospital care for children with sickle cell disease not due only to race and chronic disease
    • Brousseau DC, Mukonje T, Brandow AM, et al. Dissatisfaction with hospital care for children with sickle cell disease not due only to race and chronic disease. Pediatr Blood Cancer 2009; 53: 174-178.
    • (2009) Pediatr Blood Cancer , vol.53 , pp. 174-178
    • Brousseau, D.C.1    Mukonje, T.2    Brandow, A.M.3
  • 11
    • 0028878342 scopus 로고
    • Comparison of costs to the health sector of comprehensive and episodic health care for sickle cell disease patients
    • Yang YM, Shah AK, Watson M, et al. Comparison of costs to the health sector of comprehensive and episodic health care for sickle cell disease patients. Public Health Rep 1995; 110: 80-86.
    • (1995) Public Health Rep , vol.110 , pp. 80-86
    • Yang, Y.M.1    Shah, A.K.2    Watson, M.3
  • 12
    • 77949473623 scopus 로고    scopus 로고
    • Sickle cell disease-related pediatric medical expenditures in the U.S
    • Amendah DD, Mvundura M, Kavanagh PL, et al. Sickle cell disease-related pediatric medical expenditures in the U.S. Am J Prev Med 2010; 38: S550- S556.
    • (2010) Am J Prev Med , vol.38
    • Amendah, D.D.1    Mvundura, M.2    Kavanagh, P.L.3
  • 13
    • 70349492889 scopus 로고    scopus 로고
    • The course and correlates of high hospital utilization in sickle cell disease: Evidence from a large, urban Medicaid managed care organization
    • Carroll CP, Haywood C Jr, Fagan P, et al. The course and correlates of high hospital utilization in sickle cell disease: Evidence from a large, urban Medicaid managed care organization. Am J Hematol 2009; 84: 666-670.
    • (2009) Am J Hematol , vol.84 , pp. 666-670
    • Carroll, C.P.1    Haywood Jr, C.2    Fagan, P.3
  • 14
    • 59449101957 scopus 로고    scopus 로고
    • Healthcare utilization and expenditures for low income children with sickle cell disease
    • Raphael JL, Dietrich CL, Whitmire D, et al. Healthcare utilization and expenditures for low income children with sickle cell disease. Pediatr Blood Cancer 2009; 52: 263-267.
    • (2009) Pediatr Blood Cancer , vol.52 , pp. 263-267
    • Raphael, J.L.1    Dietrich, C.L.2    Whitmire, D.3
  • 15
    • 84856890836 scopus 로고    scopus 로고
    • High resource hospitalizations among children with vaso-occlusive crises in sickle cell disease
    • Raphael JL, Mei M, Mueller BU, et al. High resource hospitalizations among children with vaso-occlusive crises in sickle cell disease. Pediatr Blood Cancer 2012; 58: 584-590.
    • (2012) Pediatr Blood Cancer , vol.58 , pp. 584-590
    • Raphael, J.L.1    Mei, M.2    Mueller, B.U.3
  • 16
    • 69849086873 scopus 로고    scopus 로고
    • Health care utilization and expenditures for privately and publicly insured children with sickle cell disease in the United States
    • Mvundura M, Amendah D, Kavanagh PL, et al. Health care utilization and expenditures for privately and publicly insured children with sickle cell disease in the United States. Pediatr Blood Cancer 2009; 53: 642-646.
    • (2009) Pediatr Blood Cancer , vol.53 , pp. 642-646
    • Mvundura, M.1    Amendah, D.2    Kavanagh, P.L.3
  • 17
    • 77950478131 scopus 로고    scopus 로고
    • Acute care utilization and rehospitalizations for sickle cell disease
    • Brousseau DC, Owens PL, Mosso AL, et al. Acute care utilization and rehospitalizations for sickle cell disease. JAMA 2010; 303: 1288-1294.
    • (2010) JAMA , vol.303 , pp. 1288-1294
    • Brousseau, D.C.1    Owens, P.L.2    Mosso, A.L.3
  • 18
    • 79953057453 scopus 로고    scopus 로고
    • Hospital volume, hospital teaching status, patient socioeconomic status, and outcomes in patients hospitalized with sickle cell disease
    • McCavit TL, Lin H, Zhang S, et al. Hospital volume, hospital teaching status, patient socioeconomic status, and outcomes in patients hospitalized with sickle cell disease. Am J Hematol 2011; 86: 377-380.
    • (2011) Am J Hematol , vol.86 , pp. 377-380
    • McCavit, T.L.1    Lin, H.2    Zhang, S.3
  • 19
    • 36849020942 scopus 로고    scopus 로고
    • Impact of proximity to comprehensive sickle cell center on utilization of healthcare services among children with sickle cell disease
    • Shankar SM, Arbogast PG, Mitchel E, et al. Impact of proximity to comprehensive sickle cell center on utilization of healthcare services among children with sickle cell disease. Pediatr Blood Cancer 2008; 50: 66-71.
    • (2008) Pediatr Blood Cancer , vol.50 , pp. 66-71
    • Shankar, S.M.1    Arbogast, P.G.2    Mitchel, E.3
  • 20
    • 78651107615 scopus 로고    scopus 로고
    • Sickle-cell disease in California: A population-based description of emergency department utilization
    • Wolfson JA, Schrager SM, Coates TD, et al. Sickle-cell disease in California: A population-based description of emergency department utilization. Pediatr Blood Cancer 2011; 56: 413-419.
    • (2011) Pediatr Blood Cancer , vol.56 , pp. 413-419
    • Wolfson, J.A.1    Schrager, S.M.2    Coates, T.D.3
  • 21
    • 77955084173 scopus 로고    scopus 로고
    • Developing a policy-relevant research agenda for the patient-centered medical home: A focus on outcomes
    • Rittenhouse DR, Thom DH, Schmittdiel JA. Developing a policy-relevant research agenda for the patient-centered medical home: A focus on outcomes. J Gen Intern Med 2010; 25: 593-600.
    • (2010) J Gen Intern Med , vol.25 , pp. 593-600
    • Rittenhouse, D.R.1    Thom, D.H.2    Schmittdiel, J.A.3
  • 22
    • 77955058914 scopus 로고    scopus 로고
    • Defining and measuring the patient-centered medical home
    • Stange KC, Nutting PA, Miller WL, et al. Defining and measuring the patient-centered medical home. J Gen Intern Med 2010; 25: 601-612.
    • (2010) J Gen Intern Med , vol.25 , pp. 601-612
    • Stange, K.C.1    Nutting, P.A.2    Miller, W.L.3
  • 23
    • 77954917425 scopus 로고    scopus 로고
    • A nationwide survey of patient centered medical home demonstration projects
    • Bitton A, Martin C, Landon BE. A nationwide survey of patient centered medical home demonstration projects. J Gen Intern Med 2010; 25: 584-592.
    • (2010) J Gen Intern Med , vol.25 , pp. 584-592
    • Bitton, A.1    Martin, C.2    Landon, B.E.3
  • 24
    • 77955073602 scopus 로고    scopus 로고
    • How to buy a medical home? Policy options and practical questions
    • Berenson RA, Rich EC. How to buy a medical home? Policy options and practical questions. J Gen Intern Med 2010; 25: 619-624.
    • (2010) J Gen Intern Med , vol.25 , pp. 619-624
    • Berenson, R.A.1    Rich, E.C.2
  • 25
    • 77958094131 scopus 로고    scopus 로고
    • Prospects for rebuilding primary care using the patient-centered medical home
    • Landon BE, Gill JM, Antonelli RC, et al. Prospects for rebuilding primary care using the patient-centered medical home. Health Aff (Millwood) 2010; 29: 827-834.
    • (2010) Health Aff (Millwood) , vol.29 , pp. 827-834
    • Landon, B.E.1    Gill, J.M.2    Antonelli, R.C.3
  • 26
    • 52049094467 scopus 로고    scopus 로고
    • A review of the evidence for the medical home for children with special health care needs
    • Homer CJ, Klatka K, Romm D, et al. A review of the evidence for the medical home for children with special health care needs. Pediatrics 2008; 122: e922- e937.
    • (2008) Pediatrics , vol.122
    • Homer, C.J.1    Klatka, K.2    Romm, D.3
  • 27
    • 67650066976 scopus 로고    scopus 로고
    • Association of medical home care and disparities in emergency care utilization among children with special health care needs
    • Raphael JL, Zhang Y, Liu H, et al. Association of medical home care and disparities in emergency care utilization among children with special health care needs. Acad Pediatr 2009; 9: 242-248.
    • (2009) Acad Pediatr , vol.9 , pp. 242-248
    • Raphael, J.L.1    Zhang, Y.2    Liu, H.3
  • 28
    • 0036299935 scopus 로고    scopus 로고
    • The medical home
    • Medical Home Initiatives for Children with Special Needs Project Advisory Committee.
    • Medical Home Initiatives for Children with Special Needs Project Advisory Committee. The medical home. Pediatrics 2002; 110: 184-186.
    • (2002) Pediatrics , vol.110 , pp. 184-186
  • 29
    • 33845254119 scopus 로고    scopus 로고
    • Hospitalization rates and costs of care of patients with sickle-cell anemia in the state of Maryland in the era of hydroxyurea
    • Lanzkron S, Haywood C Jr, Segal JB, et al. Hospitalization rates and costs of care of patients with sickle-cell anemia in the state of Maryland in the era of hydroxyurea. Am J Hematol 2006; 81: 927-932.
    • (2006) Am J Hematol , vol.81 , pp. 927-932
    • Lanzkron, S.1    Haywood Jr, C.2    Segal, J.B.3
  • 31
    • 84871106915 scopus 로고    scopus 로고
    • National Quality Forum: Measure of Medical Home for Children and Adolescents. Accessed March 30, 2012.
    • National Quality Forum: Measure of Medical Home for Children and Adolescents. . Accessed March 30, 2012.
  • 32
    • 84871166443 scopus 로고    scopus 로고
    • National Quality Forum. Accessed March 30, 2012.
    • National Quality Forum. http://www.qualityforum.org/Home.aspx. Accessed March 30, 2012.
  • 33
    • 84871128822 scopus 로고    scopus 로고
    • The Child and Adolescent Health Measurement Initiative. Measuring medical home for children and youth. Accessed January 31, 2012.
    • The Child and Adolescent Health Measurement Initiative. Measuring medical home for children and youth. . Accessed January 31, 2012.
  • 34
    • 79953320432 scopus 로고    scopus 로고
    • The medical home: Health care access and impact for children and youth in the United States
    • Strickland BB, Jones JR, Ghandour RM, et al. The medical home: Health care access and impact for children and youth in the United States. Pediatrics 2011; 127: 604-611.
    • (2011) Pediatrics , vol.127 , pp. 604-611
    • Strickland, B.B.1    Jones, J.R.2    Ghandour, R.M.3
  • 35
    • 66249093863 scopus 로고    scopus 로고
    • Access to the medical home: New findings from the 2005-2006 National Survey of Children with Special Health Care Needs
    • Strickland BB, Singh GK, Kogan MD, et al. Access to the medical home: New findings from the 2005-2006 National Survey of Children with Special Health Care Needs. Pediatrics 2009; 123: e996- e1004.
    • (2009) Pediatrics , vol.123
    • Strickland, B.B.1    Singh, G.K.2    Kogan, M.D.3
  • 36
    • 74249100460 scopus 로고    scopus 로고
    • Comparing medical homes for children with ADHD and asthma
    • Toomey SL, Homer CJ, Finkelstein JA. Comparing medical homes for children with ADHD and asthma. Acad Pediatr 2010; 10: 56-63.
    • (2010) Acad Pediatr , vol.10 , pp. 56-63
    • Toomey, S.L.1    Homer, C.J.2    Finkelstein, J.A.3
  • 37
    • 0031662479 scopus 로고    scopus 로고
    • Effects of providing comprehensive ambulatory services to children with chronic conditions
    • Liptak GS, Burns CM, Davidson PW, et al. Effects of providing comprehensive ambulatory services to children with chronic conditions. Arch Pediatr Adolesc Med 1998; 152: 1003-1008.
    • (1998) Arch Pediatr Adolesc Med , vol.152 , pp. 1003-1008
    • Liptak, G.S.1    Burns, C.M.2    Davidson, P.W.3
  • 38
    • 2342467416 scopus 로고    scopus 로고
    • The Pediatric alliance for coordinated care: Evaluation of a medical home model
    • Palfrey JS, Sofis LA, Davidson EJ, et al. The Pediatric alliance for coordinated care: Evaluation of a medical home model. Pediatrics 2004; 113: 1507-1516.
    • (2004) Pediatrics , vol.113 , pp. 1507-1516
    • Palfrey, J.S.1    Sofis, L.A.2    Davidson, E.J.3
  • 39
    • 77956713447 scopus 로고    scopus 로고
    • The family-centered medical home: Specific considerations for child health research and policy
    • Stille C, Turchi RM, Antonelli R, et al. The family-centered medical home: Specific considerations for child health research and policy. Acad Pediatr 2010; 10: 211-217.
    • (2010) Acad Pediatr , vol.10 , pp. 211-217
    • Stille, C.1    Turchi, R.M.2    Antonelli, R.3
  • 40
    • 83155192977 scopus 로고    scopus 로고
    • Medical-legal partnership: Impact on patients with sickle cell disease
    • Pettignano R, Caley SB, Bliss LR. Medical-legal partnership: Impact on patients with sickle cell disease. Pediatrics 2011; 128: e1482- e1488.
    • (2011) Pediatrics , vol.128
    • Pettignano, R.1    Caley, S.B.2    Bliss, L.R.3
  • 41
    • 74949100456 scopus 로고    scopus 로고
    • Specialists/subspecialists and the patient-centered medical home
    • Kirschner N, Barr MS. Specialists/subspecialists and the patient-centered medical home. Chest 2009; 137: 200-204.
    • (2009) Chest , vol.137 , pp. 200-204
    • Kirschner, N.1    Barr, M.S.2
  • 42
    • 3242884342 scopus 로고    scopus 로고
    • Specialist physicians providing primary care services in Colorado
    • Fryer GE Jr, Consoli R, Miyoshi TJ, et al. Specialist physicians providing primary care services in Colorado. J Am Board Fam Pract 2004; 17: 81-90.
    • (2004) J Am Board Fam Pract , vol.17 , pp. 81-90
    • Fryer Jr, G.E.1    Consoli, R.2    Miyoshi, T.J.3
  • 43
    • 84871168675 scopus 로고    scopus 로고
    • National Heart, Lung, and Blood Institute. The Management of Sickle Cell Disease. NIH Publication No. 02-2117.
    • National Heart, Lung, and Blood Institute. The Management of Sickle Cell Disease. NIH Publication No. 02-2117. http:ww.nhlbi.nih.gov/health/prof/blood/sickle/sc_mngt.pdf
  • 44
    • 77949458310 scopus 로고    scopus 로고
    • Health status and healthcare use in a national sample of children with sickle cell disease
    • Boulet SL, Yanni EA, Creary MS, et al. Health status and healthcare use in a national sample of children with sickle cell disease. Am J Prev Med 2010; 38: S528- S535.
    • (2010) Am J Prev Med , vol.38
    • Boulet, S.L.1    Yanni, E.A.2    Creary, M.S.3
  • 45
    • 0034789676 scopus 로고    scopus 로고
    • Who cares for medicaid-enrolled children with chronic conditions
    • Kuhlthau K, Ferris TG, Beal AC, et al. Who cares for medicaid-enrolled children with chronic conditions? Pediatrics 2001; 108: 906-912.
    • (2001) Pediatrics , vol.108 , pp. 906-912
    • Kuhlthau, K.1    Ferris, T.G.2    Beal, A.C.3
  • 46
    • 0036190045 scopus 로고    scopus 로고
    • Do subspecialists working outside of their specialty provide less efficient and lower-quality care to hospitalized patients than do primary care physicians
    • Weingarten SR, Lloyd L, Chiou CF, et al. Do subspecialists working outside of their specialty provide less efficient and lower-quality care to hospitalized patients than do primary care physicians? Arch Intern Med 2002; 162: 527-532.
    • (2002) Arch Intern Med , vol.162 , pp. 527-532
    • Weingarten, S.R.1    Lloyd, L.2    Chiou, C.F.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.