Cancer patients' information needs the first nine months after diagnosis

Patient Education and Counseling

Volumn 90, Issue 1, 2013, Pages 96-102

  Matsuyama, Robin K ^a   Kuhn, Laura A ^b   Molisani, Anthony ^b   Wilson Genderson, Maureen C ^b  

^a VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

^b VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

Author keywords

Cancer patients; Education; Health literacy; Information needs

Indexed keywords

ADULT; AFRICAN AMERICAN; AGE; ARTICLE; CANCER PATIENT; EDUCATIONAL STATUS; FEMALE; HEALTH CARE NEED; HEALTH LITERACY; HUMAN; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MEDICAL INFORMATION; PRIORITY JOURNAL; QUESTIONNAIRE; RACE DIFFERENCE; SELF REPORT; SEX DIFFERENCE; TORONTO INFORMATIONAL NEEDS QUESTIONNAIRE;

ADULT; AFRICAN AMERICANS; AGED; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; HEALTH CARE SURVEYS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH LITERACY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INFORMATION SEEKING BEHAVIOR; INTERVIEWS AS TOPIC; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NEOPLASM STAGING; NEOPLASMS; PATIENT EDUCATION AS TOPIC; QUESTIONNAIRES; REGRESSION ANALYSIS; SELF REPORT; SOCIOECONOMIC FACTORS; TIME FACTORS;

EID: 84870811141     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2012.09.009     Document Type: Article

References (36)

1. Miller S.M. Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease. Implications for cancer screening and management. Cancer 1995, 76:167-177.
2. Rutten L.J., Arora N.K., Bakos A.D., Aziz N., Rowland J. Information needs and sources of information among cancer patients: a systematic review of research (1980-2003). Patient Educ Couns 2005, 57:250-261.
3. Squiers L., Finney Rutten L.J., Treiman K., Bright M.A., Hesse B. Cancer patients' information needs across the cancer care continuum: evidence from the cancer information service. J Health Commun 2005, 10(Suppl 1):15-34.
4. Smith T.J., Dow L.A., Virago E., Khatcheressian J., Lyckholm L.J., Matsuyama R. Giving honest information to patients with advanced cancer maintains hope. Oncology (Williston Park) 2010, 24:521-525.
5. Smith T.J., Dow L.A., Virago E.A., Khatcheressian J., Matsuyama R., Lyckholm L.J. A pilot trial of decision aids to give truthful prognostic and treatment information to chemotherapy patients with advanced cancer. J Support Oncol 2011, 9:79-86.
6. Feldman-Stewart D., Capirci C., Brennenstuhl S., Tong C., Abacioglu U., Gawkowska-Suwinska M., et al. Information needs of early-stage prostate cancer patients: a comparison of nine countries. Radiother Oncol 2010, 94:328-333.
7. Husson O., Mols F., van de Poll-Franse L.V. The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review. Ann Oncol 2011, 22:761-772.
8. Mistry A., Wilson S., Priestman T., Damery S., Haque M. How do the information needs of cancer patients differ at different stages of the cancer journey? A cross-sectional survey. JRSM Short Rep 2010, 1:30.
9. Monsonego J., Cortes J., da Silva D.P., Jorge A.F., Klein P. Psychological impact, support and information needs for women with an abnormal Pap smear: comparative results of a questionnaire in three European countries. BMC Womens Health 2011, 11:18.
10. Muusses L.D., Weert J.C., Dulmen S., Jansen J. Chemotherapy and information-seeking behaviour: characteristics of patients using mass-media information sources. Psychooncology 2011.
11. Neumann M., Wirtz M., Ernstmann N., Ommen O., Langler A., Edelhauser F., et al. Identifying and predicting subgroups of information needs among cancer patients: an initial study using latent class analysis. Support Care Cancer 2011, 19:1197-1209.
12. Halkett G.K., Kristjanson L.J., Lobb E., Little J., Shaw T., Taylor M., et al. Information needs and preferences of women as they proceed through radiotherapy for breast cancer. Patient Educ Couns 2012, 86:396-404.
13. Matsuyama R.K., Wilson-Genderson M., Kuhn L., Moghanaki D., Vachhani H., Paasche-Orlow M. Education level, not health literacy, associated with information needs for patients with cancer. Patient Educ Couns 2011.
14. Dieng M., Trevena L., Turner R.M., Wadolowski M., McCaffery K. What Australian women want and when they want it: cervical screening testing preferences, decision-making styles and information needs. Health Expect 2011.
15. Wittmann E., Beaton C., Lewis W.G., Hopper A.N., Zamawi F., Jackson C., et al. Comparison of patients' needs and doctors' perceptions of information requirements related to a diagnosis of oesophageal or gastric cancer. Eur J Cancer Care (Engl) 2011, 20:187-195.
16. Galloway S., Graydon J., Harrison D., Evans-Boyden B., Palmer-Wickham S., Burlein-Hall S., et al. Informational needs of women with a recent diagnosis of breast cancer: development and initial testing of a tool. J Adv Nurs 1997, 25:1175-1183.
17. Graydon J., Galloway S., Palmer-Wickham S., Harrison D., Rich-van der Bij L., West P., et al. Information needs of women during early treatment for breast cancer. J Adv Nurs 1997, 26:59-64.
18. Chen S.C., Lai Y.H., Liao C.T., Chang J.T., Lin C.C. Unmet information needs and preferences in newly diagnosed and surgically treated oral cavity cancer patients. Oral Oncol 2009, 45:946-952.
19. Guleser G.N., Tasci S., Kaplan B. The experience of symptoms and information needs of cancer patients undergoing radiotherapy. J Cancer Educ 2012, 27:46-53.
20. Halkett G.K., Kristjanson L.J., Lobb E., O'Driscoll C., Taylor M., Spry N. Meeting breast cancer patients' information needs during radiotherapy: what can we do to improve the information and support that is currently provided?. Eur J Cancer Care (Engl) 2010, 19:538-547.
21. O'Connor G., Coates V., O'Neill S. Exploring the information needs of patients with cancer of the rectum. Eur J Oncol Nurs 2010, 14:271-277.
22. Zeguers M., de Haes H.C., Zandbelt L.C., Ter Hoeven C.L., Franssen S.J., Geijsen D.D., et al. The information needs of new radiotherapy patients: how to measure? Do they want to know everything? And if not, why?. Int J Radiat Oncol Biol Phys 2012, 82:418-424.
23. Russell B.J., Ward A.M. Deciding what information is necessary: do patients with advanced cancer want to know all the details?. Cancer Manage Res 2011, 3:191-199.
24. Jacobs-Lawson J.M., Schumacher M.M., Hughes T., Arnold S. The relationship between lung cancer patients' educational level and evaluation of their treatment information needs. J Cancer Educ 2009, 24:346-350.
25. Davis T.C., Crouch M.A., Long S.W., Jackson R.H., Bates P., George R.B., et al. Rapid assessment of literacy levels of adult primary care patients. Fam Med 1991, 23:433-435.
26. Baker D.W., Williams M.V., Parker R.M., Gazmararian J.A., Nurss J. Development of a brief test to measure functional health literacy. Patient Educ Couns 1999, 38:33-42.
27. Parker R.M., Kindig D.A. Beyond the Institute of Medicine health literacy report: are the recommendations being taken seriously?. J Gen Intern Med 2006, 21:891-892.
28. Nurss J.R., Parker R., Williams M., Baker D. TOFHLA: test of functional health literacy in adults 2001, Peppercorn, Snow Camp, NC.
29. SPSS I PASW 17.0 (formerly SPSS) 2008.
30. Lyons K.S., Sayer A.G. Using multilevel modeling in caregiving research. Aging Ment Health 2005, 9:189-195.
31. Raudenbush S.W., Brennan R.T., Barnett R.C. A multivariate hierarchical model for studying psychological change within married couples. J Fam Psychol 1995, 9:161-174.
32. Raudenbush S.W., Bryk A.S., Congdon R. HLM 6 for Windows 2004, [computer software].
33. Albada A., van Dulmen S., Lindhout D., Bensing J.M., Ausems M.G. A pre-visit tailored website enhances counselees' realistic expectations and knowledge and fulfils information needs for breast cancer genetic counselling. Fam Cancer 2012, 11:85-95.
34. Chen C.M., Cano S.J., Klassen A.F., King T., McCarthy C., Cordeiro P.G., et al. Measuring quality of life in oncologic breast surgery: a systematic review of patient-reported outcome measures. Breast J 2010, 16:587-597.
35. Jean-Pierre P., Fiscella K., Griggs J., Joseph J.V., Morrow G., Carroll J., et al. Race/ethnicity-based concerns over understanding cancer diagnosis and treatment plan. J Natl Med Assoc 2010, 102:184-189.
36. Patrick D.L., Cheadle A., Thompson D.C., Diehr P., Koepsell T., Kinne S. The validity of self-reported smoking: a review and meta-analysis. Am J Publ Health 1994, 84:1086-1093.