Illustrating child-specific linking issues using the Child Health Questionnaire

American Journal of Physical Medicine and Rehabilitation

Volumn 91, Issue 13 SUPPL.1, 2012, Pages

  Fayed, Nora ^a   Cieza, Alarcos ^b,c   Bickenbach, Jerome ^c,d  

^a MCMASTER UNIVERSITY   (Canada)

^b UNIVERSITY OF MUNICH   (Germany)

^c SWISS PARAPLEGIC RESEARCH   (Switzerland)

^d UNIVERSITY OF LUCERNE   (Switzerland)

Author keywords

Assessment; Child development; Child Health Questionnaire; ICF; ICF CY

Indexed keywords

ARTICLE; CANADA; CHILD; CHILD WELFARE; CLASSIFICATION; DISABILITY; FEMALE; HANDICAPPED CHILD; HUMAN; INTERNATIONAL CLASSIFICATION OF DISEASES; MALE; PRESCHOOL CHILD; QUALITY CONTROL; QUALITY OF LIFE; QUESTIONNAIRE; REFERENCE VALUE;

CANADA; CHILD; CHILD WELFARE; CHILD, PRESCHOOL; DISABILITY EVALUATION; DISABLED CHILDREN; FEMALE; HUMANS; INTERNATIONAL CLASSIFICATION OF DISEASES; MALE; QUALITY CONTROL; QUALITY OF LIFE; QUESTIONNAIRES; REFERENCE VALUES;

EID: 84869219496     PISSN: 08949115     EISSN: 15377385     Source Type: Journal    
DOI: 10.1097/PHM.0b013e31823d53cf     Document Type: Review

References (29)

1. Clarke SA, Eiser C: The measurement of healthrelated quality of life (QOL) in pediatric clinical trials: a systematic review. Health Qual Life Outcomes 2004; 2:66
2. Solans M, Pane S, Estrada M.D., et al.: Health-related quality of life measurement in children and adolescents: A systematic review of generic and disease-specific instruments. Value Health 2008; 11:742-64
3. Harding L: Children's quality of life assessments: A review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother 2001; 8:79-96
4. Eiser C, Morse R: A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001; 84:205-11
5. Bradley C: Importance of differentiating health status from quality of life. Lancet 2001; 357:7-8
6. Rajmil L, Herdman M, de Sanmamed F, et al.: Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. J Adolesc Health Care 2004; 34:37-45
7. Davis E, Waters E, Mackinnon A., et al.: Paediatric quality of life instruments: A review of the impact of the conceptual framework on outcomes. Dev Med Child Neurol 2006; 48:311-8
8. World Health Organization: The International Classification of Functioning, Disability and Health. Geneva, Switzerland: WHO; 2001
9. World Health Organization: The International Classification of Functioning, Disability and Health Children and Youth Version. Geneva, Switzerland: WHO; 2007
10. Cieza A, Brockow T, Ewert T., et al.: Linking health-status measurements to the International Classification of Functioning, Disability and Health. J Rehabil Med 2002; 34:205-10
11. Cieza A, Geyh S, Chatterji S., et al.: ICF linking rules: An update based on lessons learned. J Rehabil Med 2005; 7:212-8
12. Fayed N, Schiarit V, Cieza A., et al.: Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions. Qual Life Res 2011; 20:1247-58
13. Fayed N, Cieza A, Bickenbach J: Linking health and health-related information to the ICF: A systematic review of the literature from 2001 to 2008 [published online ahead of print]. Disabil Rehabil 2011; 33:1941-51
14. Fayed N, Kerr E: Comparing quality of life scales in childhood epilepsy: What's in the measures? Int J Disabil Comm Rehabil 2009; 8:1-11
15. Ostensjo S, Bjorbaekmo W, Carlberg E.B., et al.: Assessment of everyday functioning in young children with disabilities: An ICF-based analysis of concepts and content of the Pediatric Evaluation of Disability Inventory (PEDI). Disabil Rehabil 2006; 28:489-504
16. Ibramagova N, Lillvist A, Pless M., et al.: The utility of ICF for describing interaction in non-speaking children with disabilities: Caregiver ratings and perceptions. Disabil Rehabil 2007; 29:1689-700
17. Granlund M, Eriksson L, Ylven R: Utility of International Classification of Functioning, Disability and Health's participation dimension in assigning ICF codes to items from extant rating instruments. J Rehabil Med 2004; 36:130-7
18. McDougall J, Miller LT: Measuring chronic health condition and disability as distinct concepts in national surveys of school-aged children in Canada: A comprehensive review with recommendations based on the ICD-10 and ICF. Disabil Rehabil 2003; 25:922-39
19. Raggi A, Leonardi M: Assessing activity limitations in patients with neuromuscular diseases: is the ACTIVLIM questionnaire linked to ICF and ICF-CY? Int J Rehabil Res 2009; 32:148-53
20. McDougall J, Wright V: The ICF-CY and Goal Attainment Scaling: Benefits of their combined use for pediatric practice. Disabil Rehabil 2009; 31:1362-72
21. Nijhuis BJG, Reinders-Messelink HA, de Blecourt ACE, et al.: Goal setting in Dutch paediatric rehabilitation. Are the needs and principal problems of children with cerebral palsy integrated into their rehabilitation goals? Clin Rehabil 2008; 22:348-63
22. Landgraf JM, Abetz L, Ware JE: Child Health Questionnaire (CHQ): A user's manual. Boston, MA: The Health Institute New England Medical; 1996
23. Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19-22 June, 1946; signed on 22 July 1946 by the representatives of 61 States (Official Records of the World Health Organization, no. 2, p. 100) and entered into force on 7 April 1948
24. Raata H, Bonselb GJ, Essink-Bota ML, et al.: Reliability and validity of comprehensive health status measures in children: The Child Health Questionnaire in relation to the Health Utilities Index. J Clin Epidemiol 2002; 55:67-76
25. Gorelick MH, Scribano PV, Stevens M.H., et al.: Construct validity and responsiveness of the Child Health Questionnaire in children with acute asthma. Ann Allergy Asthma Immunol 2003; 90:622-8
26. World Health Organization: WHOQOL User Manual. Geneva, Switzerland: WHO; 1998
27. Landgraf JM, Abetz JN: Functional status and well-being of children representing three cultural groups: Initial self-reports using the CHQ-CF87. Psychol Health 1997; 12:839-54
28. Gardulf A, Borte M, Ochs H.D., et al.: Vivaglobin Clinical Study Group: Prognostic factors for health-related quality of life in adults and children with primary antibody deficiencies receiving SCIG home therapy. Clin Immunol 2008; 126:81-8
29. Narayanan U, Weir S, Fehlings D: CP Child Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) Questionnaire: An instrument to assess the health status, comfort, wellbeing and ease of caregiving of children with severe cerebral palsy. 2007. Available at: http://www.sickkids.ca/ Research/CPCHILD-Questionaire/Manual-interpretation-guide/index.html. Accessed November 10, 2010