'Standing up for my human rights': A group's journey beyond consultation towards co-production

British Journal of Learning Disabilities

Volumn 40, Issue 4, 2012, Pages 292-301

  Roberts, Amanda ^a   Greenhill, Beth ^a   Talbot, Annie ^a   Cuzak, Meryl ^a  

^a MERSEY CARE NHS TRUST   (United Kingdom)

Author keywords

Action research; Co production; Empowerment; Human rights; Learning disability; Meaningful outcomes

Indexed keywords

EID: 84869196663     PISSN: 13544187     EISSN: 14683156     Source Type: Journal    
DOI: 10.1111/j.1468-3156.2011.00711.x     Document Type: Article

References (39)

1. Aspis S. (1997) Self-advocacy for people with learning difficulties: does it have a future? Disabil Soc, 12: 647-54.
2. Aspis S. (2002) Vested interests and misunderstandings. Br J Learn Disabil, 30: 3-7.
3. Atkinson D. (1999) An old story. In: French S., Swain J., editors. Therapy and learning difficulties: advocacy, participation and partnership. Oxford, Butterworth Heinemann: 11-22.
4. Bailey S., Ridley J. & Greenhill B. (2010) A human rights based approach to 'challenging behaviour'. Adv Ment Health Intellect Disabil, 4: 20-6.
5. Ballinger C., Yardley L. & Payne S. (2004) Observation and action research. In: Marks D.F., Yardley L., editors. Research methods for clinical and health psychology. London, SAGE publications: 102-21.
6. Banister P., Burman E., Parker I., Taylor M. & Tindall C. (1994) Qualitative methods in psychology: a research guide. Milton Keynes, Open University Press.
7. Bhavnani K. (1990) 'What's power got to do with it?' Empowerment and social research. In: Parker A., Shotter J., editors. Deconstructing social psychology. London, Routledge: 141-152.
8. Boyle D. & Harris M. (2009) The challenge of co-production. How equal partnerships between professionals and the public are crucial to improving public services. Discussion Paper. London: New Economics Foundation & NESTA. Available at: http://www.nesta.org.uk/library/documents/Co-production-report.pdf (accessed on 15 June 2010).
9. Braun V. & Clarke V. (2006) Using thematic analysis in psychology. Qual Res Psychol, 3: 77-101.
10. British Broadcasting Corporation (2011) Undercover care: the abuse exposed, panorama, television programme, 31 May 2011, 21:00. London, British Broadcasting Corporation.
11. Care Quality Commission (2009) Voices into action: how the care quality commission is going to involve people. London, Care Quality Commission. Available at: http://www.cqc.org.uk/_db/_documents/A4_Report_2009_01.pdf (accessed on 24 October 2010).
12. Clark L. (2002) Accessible health information - a project report. Liverpool, Central Primary Care Trust. Available at: http://www.leeds.ac.uk/disability-studies/archiveuk/Clark, %20Laurence/liverpool%20NHS.pdf (accessed on 16 June 2010).
13. Croft J. & Beresford P. (1995) Whose empowerment? Equalizing the competing discourses in community care. In: Jack R., editor. Empowerment in community care. London, Chapman & Hold: 59-76.
14. Davis F.A. (2010) Can we sustain the 'magic'? The Psychologist, 23: 32-3.
15. Department of Health (2009a) NHS 2010-2015: from good to great. Preventative, people-centred, productive. London, Department of Health.
16. Department of Health (2009b) Valuing people now: from progress to transformation - a consultation on the next three years of learning disability policy. London, Department of Health.
17. Department of Health (2010a) Equity and excellence: liberating the NHS. London, Department of Health.
18. Department of Health (2010b) Human rights materials for use by people with learning disabilities. Available at http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/@ps/documents/digitalasset (accessed on 29 June 2010).
19. Department of Health (Chairman: Darzi, A) (2008a) High quality healthcare for all. NHS next stage review. London, Department of Health.
20. Department of Health (Chairman: J. Boyington) (2008b) New horizons for mental health commissioning - an opportunity to help shape the agenda. London, Department of Health.
21. Department of Health & British Institute of Human Rights (2007) Human rights in healthcare - a framework for local action. Best Practice Guidance. Available at: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_088970 (accessed on 29 June 2010).
22. Goodley D. (2005) Empowerment, self-advocacy and resilience. J Intellect Disabil, 9: 333-43.
23. Goodley D. & Moore M. (2000) Doing disability research: activist lives and the academy. Disabil Soc, 15: 861-2.
24. Gosling J. (2010) The ethos of involvement as a route to recovery. In: Weinstein J. editor. Mental health, service user involvement and recovery, London, Jessica Kingsley Publishers: 30-43.
25. Greenhill B. & Whitehead R. (2010) Promoting service user inclusion in risk assessment and management: a pilot project developing a human rights based approach. Br J Learn Disabil. DOI: 10.1111/j.1468-3156.2010.00664.x.
26. Healthcare Commission (2007). Investigation into the service for people with learning disabilities provided by Sutton and Merton primary care trust. London: Healthcare Commission.
27. Howarth J., Abbott D. & Gyde K. (2005) Secret loves hidden lives? Exploring issues for people with learning disabilities who are gay, lesbian or bisexual. Bristol, The Policy Press.
28. Human Rights Act (1998) Available at: http://www.opsi.gov.uk/acts/acts1998/ukpga_19980042_en_1 (accessed on 29 June 2010).
29. Joint Committee on Human Rights (2008) A life like any other? Human rights of adults with learning disabilities. Seventh report of session 2007-2008. London, Joint Committee on Human Rights. Available at: http://www.publications.parliament.uk/pa/jt200708/jtselect/jtrights/40/40i.pdf (accessed on 29 June 2010).
30. Kalton G. (1983) Introduction to survey sampling. Newbury Park, CA, SAGE.
31. Lewin K. (1946) Action research and minority problems. J Soc Issues, 2: 65.
32. Mencap (2007) Death by indifference. London, Mencap.
33. Ministry of Justice (2008) Guide to human rights act: a booklet for people with learning disabilities. London, Ministry of Justice.
34. Needham C. (2009) Co-production: an emerging evidence base for adult social care transformation, SCIE Research Briefing 31. London, Social Care Institute for Excellence.
35. Owen F. & Griffiths D. (2009) Challenges to the human rights of persons with intellectual disabilities. London, Jessica Kingsley Publishers.
36. Owen F., Griffiths D., Gosse L., Stoner K., Watson S.L. et al. (2003) Multi-level human rights training in an association for community living: first steps towards systemic change. J Dev Disabil, 10: 43-64.
37. Tardif-Williams C.Y., Trent-Kratz M. & Donato K. (2009) Rights and education. In: Owen F., Griffiths D., editors. Challenges to the human rights of persons with intellectual disabilities. London, Jessica Kingsley Publishers: 240-263.
38. The British Psychological Society (2010) Good practice guidelines to support the involvement of service users and carers in clinical psychology services. Leicester, DCP Professional Standards Unit.
39. Whitehead R., Carney G. & Greenhill B. (2010) Encouraging positive risk management: supporting decisions by people with learning disabilities using a human rights based approach. In: Whittington R., Logan C., editors. Self-harm and violence: towards best practice in managing risk in mental health services. Chichester, Wiley: 215-236.